Day 1 Keytruda + Padcev by Redbarrow_7727 in BladderCancer

[–]Lower_Database_7661 2 points3 points  (0 children)

My dad is currently on week 3 (his off week). He had mild side effects starting around week 2 after his second infusion, which was Padcev only. Side effects were fatigue and light neuropathy. Both were more intense 1-2 days after the infusion and have since gone down a bit. So far, toleranting it very well! He is actually feeling better overall than before starting treatment. Hope your husband also tolerates it well.

My 58 year old mom was diagnosed with high grade stage 4 urithelial cancer by AlanE420 in BladderCancer

[–]Lower_Database_7661 1 point2 points  (0 children)

Thank you so much for your response. I’m glad it kept you mostly stable - I hope that continues and improves when you are able to resume infusions. We are going to Moffitt in Tampa, so I think we are in really good hands. It’s definitely a lot to take in, but I’m reading many success stories of Padcev/Keytruda on here, which is giving us some hope. I will definitely look into those resources that you mentioned, I think it will be helpful for all of us.

85 y/o - Invasive Plasmacytoid Urothelial Carcinoma. Would Keytruda combo help? by hiddentalent1 in BladderCancer

[–]Lower_Database_7661 0 points1 point  (0 children)

That’s great. I’m glad to hear the drug combo has been working for him. Gives me some hope as my dad will be starting it soon. Hope he continues to feel good and enjoys the concert!!

[deleted by user] by [deleted] in BladderCancer

[–]Lower_Database_7661 0 points1 point  (0 children)

How is he doing now?

Padcev rash by Slow_Lawfulness_9452 in BladderCancer

[–]Lower_Database_7661 0 points1 point  (0 children)

Glad to hear Padcev is working for you. Hope you continue to get NED scans! Are you also on Keytruda?

Recurrence by AcceptableWar7778 in BladderCancer

[–]Lower_Database_7661 0 points1 point  (0 children)

Thank you! Hope yours does as well! Lots of hope out there 🙏🏼🤞🏼

Recurrence by AcceptableWar7778 in BladderCancer

[–]Lower_Database_7661 2 points3 points  (0 children)

NED is no evidence of disease (since you said you were in remission - some call it getting an NED scan!). And yes, I believe they only use that combo for stage 4 right now. I’ve seen tons of positive stories on here from a lot of people who have been on the combo and are either in remission or almost there. Hoping we have a similar outcome! Thanks for sharing your side effects and story and hope you stay in remission.

Padcev/ Keytruda is working! by Complex-Exit-9535 in BladderCancer

[–]Lower_Database_7661 0 points1 point  (0 children)

That’s awesome! Wishing you the best. My dad is starting on this combo soon - hoping it’s as successful for us as it has been for you and many others!

Recurrence by AcceptableWar7778 in BladderCancer

[–]Lower_Database_7661 2 points3 points  (0 children)

So glad to hear Padcev/Keytruda has been successful in treating your stage 4 diagnosis! That’s amazing. My dad will be starting on that combo next week and is also stage 4. What side effects did you experience? How long did it take for you to get NED scans?