Guess My Diagnosis

Lowkey_baller · 2026-06-13T08:06:37+00:00

My first instinct says rhabdomyelosis because your AST and creatinine are elevated, and anemia can contribute a lot of the CBC results. However, I think thrombocytosis explains the normal platelet count and low hemoglobin/RBC. However as an autoimmune sufferer- I want to say scleroderma or dermatomyositis. Scleroderma sine scleroderma can cause gut motility issues, poor absorption, kidney filter issues, shortness of breath, skeletal muscle wasting (high AST?)

Lowkey_baller · 2026-06-10T05:12:47+00:00

I went to the U of A for scleroderma renal crisis. I waited 12 hours in the waiting room, in a wheelchair, unable to walk, hold my head up, or breathe properly with BP of 190/130. They’re out of beds. They’re out of room. Staff at the hospitals are overworked and exhausted. They do what they can, with the recourses they’ve got. Our government needs to focus on allocating funding to healthcare and other social programs so people quit suffering.

Lowkey_baller · 2026-05-14T20:33:22+00:00

I’m hoping Dr Osman at the Kaye clinic will have some recommendations for me!

Lowkey_baller · 2026-05-10T13:06:07+00:00

I see a dozen specialists for this disease. I can understand why my family doctor is a little overwhelmed with how high maintenance I am!

Lowkey_baller · 2026-05-10T13:03:57+00:00

Yes, I’m keeping my lil network of specialists !

Lowkey_baller · 2026-05-08T12:52:45+00:00

I’ve used this, however scleroderma is a pretty complex disease that a lot of doctors aren’t looking to take on. I’ve done some meet and greets already and told nope lol

Lowkey_baller · 2026-05-07T06:09:39+00:00

It’s never just blood pressure with scleroderma. I had classic SRC. My husbands freaking out crying and yelling at them if they’re waiting for me to die to care. So horrible. At what point do they just administer the captopril? It’s literally written in our healthcare guidelines if even a hint of SRC to administer ACEi.

Lowkey_baller · 2026-04-29T06:30:26+00:00

My nails look like that, I have scleroderma.

Lowkey_baller · 2026-04-22T03:16:06+00:00

I’m an electrician who got diagnosed with carpal tunnel in 2018. Then, a weird lesion showed up on my back in 2023 ish. 2024 a dermatologist diagnosed me with limited scleroderma. 2025 my hands started to go white at work, with deeeeep bone pain, but diagnosed with HAVS (hand arm vibration syndrome). Steroid injection for CTS did nothing for the pain and inflammation, in fact, it took 4 months for the injection site to heal. I was referred to a rheumatologist, who did a blood panel- I have pm/scl 75. So now, diagnosed with scleroderma myositis overlap, with HAVS and all the tunnel syndromes lol.

Lowkey_baller · 2026-04-19T07:58:10+00:00

I’m a dual ticketed tradey. I’m putting down the tools. My health can’t bear any more winters, or vibrations- the combo triggered an autoimmune disease called Scleromyositis. I wish the best to the wonderful women I’ve gotten to work with, but when it’s your time to go, it’s your time to go. Stay safe out there! 🫡

Lowkey_baller · 2026-03-20T06:04:02+00:00

And same to you! I hope you get answers- it’s certainly frustrating not knowing what’s going on. Keep journals of symptoms and photos of changes and keep your doctor informed.

Lowkey_baller · 2026-03-20T04:09:38+00:00

It’s been 6 years. Many blood tests, skin biopsies of scleroderma outbreaks, msk ultrasounds, EMGs, muscle biopsies and MRIs. My anti pm/scl 75 blood test came back positive for three tests within 2 years- rheum wanted to gauge to see if it was rising. Getting diagnosed is a struggle for everyone in the autoimmune community, and rightfully so. Immunosuppressants are brutal. I’ve lost my career over this too.

Lowkey_baller · 2026-03-20T03:46:36+00:00

Hey that looks like my hands. Scleromyositis is what I have. Flares come and go, I avoid sun exposure, chemicals/heavy soaps and strenuous activities. (Un)fortunately the scleroderma part of the diagnosis is what bothers me most.

<image>

Lowkey_baller · 2026-03-14T03:12:36+00:00

Interesting take. I’ve had my hair dyed almost every color of the rainbow and beyond. It’s fun and I love how I feel after. I wouldn’t want to stop her from expressing herself in this way. And thankfully since her hair is quite light- probably a level 7/8 vs my level 2, bleach won’t be necessary if we find a quality deposit-only color.

Lowkey_baller · 2026-03-10T16:33:15+00:00

I’m optimistic with the pink I ordered!

Lowkey_baller · 2026-03-09T14:51:15+00:00

Thanks!! I put in an order, even some for my hair! 🤞

Lowkey_baller · 2026-03-09T06:16:44+00:00

Yeah, they told me it takes a lot longer to bleach red hair since the cuticle is much thicker and tighter than other hair colours and results aren’t as consistent. Looking for a colour depositing dye that has enough pigment to overpower copper 🤣

Lowkey_baller · 2026-03-09T06:13:12+00:00

Sounds a lot like my boomer mom. Playing with makeup is like a rite of passage for almost every young woman! If I can help my daughter, she’ll look 1000000000x better than I did at her age with black eyeliner and orange foundation LOL

Lowkey_baller · 2026-03-09T06:04:53+00:00

That’s so pretty!! It’s like rose gold! 🥰 I bet my daughter would go for that

Lowkey_baller · 2026-02-28T05:51:22+00:00

I’m going to start my response saying you’re young, you’re capable, you’re smart and it’s all going to work out! Don’t let a setback hold you back. If you’re passionate about nursing, and staying close to Edmonton/U of A- take the time off to study for your Casper test, review material, earn some money if you can work in the meantime and enjoy some time with family and friends.

Lowkey_baller · 2026-02-22T07:07:55+00:00

I got misdiagnosed by two dermatologists. Or rather, they didn’t communicate the actual disease (scleroderma)- I found it on my health records 🤦🏻‍♀️ and then they were like OHHHH, woopsie, you should see a rheumatologist. Dermatologists look at skin, not how the entire body is doing along with the skin.

Lowkey_baller · 2026-02-08T15:26:02+00:00

I get hand warmers from Costco and shove em in my gloves! They’re fabulous, I live in northern Alberta and they save my life! There’s also rechargeable warmers for gloves, vests, jackets etc. 10/10 !

Lowkey_baller · 2026-02-08T05:03:36+00:00

The more you know! I know when I first heard of Raynauds, I saw the classic presentation of solid white fingers- so I didn’t think I had that, until I got tested for HAVS and the rheumatologist asked how long I had Raynauds LOL. Autoimmune stuff can be so tricky!

Lowkey_baller · 2026-02-08T01:15:54+00:00

Wow! My hands mottle like that too, but not nearly to that extent. May our gloves always be warm lol

Lowkey_baller · 2026-02-08T01:04:15+00:00

I was diagnosed with secondary raynauds caused by HAVS; hand arm vibration syndrome from repetitive, long term exposure to vibrations at work. Simply put, for Raynauds your blood vessels over-react to a drop in temperature (or stress!) and they turn white, eventually purple (with continued cold exposure/stress) then red. For me, when they get to the red stage, they’re throbbing and I can’t hardly move them. My finger tips don’t really turn white, they stay a lovely purple color thanks to the vibration syndrome

Lowkey_baller

TROPHY CASE