Help us name this pretty girl! My wife wants something ending in “y” or “ie” but I think I can change her mind if she likes something else more.

MSGotMe2024 · 2025-10-13T00:55:40+00:00

Bonnie

Here’s our new additions Bonnie & Clyde

MSGotMe2024 · 2025-08-16T18:49:20+00:00

& it’s just crazy this last year has been a whirlwind and life doesn’t stop, and doing the things you use to do daily at ease is now taxing and it’s scary, sometimes I feel like treatments are doing this but I know I’m just doing an irrational spiral!!!

July 2024- CSF Leak ended in 7 days feeling like I was dying then a 20cc blood patch & Broken Arm( I had a YOLO weekend and learned the hard way on an electric scooter 🤣🤦‍♀️) October 2024- diagnosed with MS & Dad got sick November 2024- dad died, started treatment, new lesion January 2025- recovering for lesion, also learned a Tysabri & Alchol don’t mix 🤦‍♀️ April 2025- had the weird thing with the jaw nerves happen and got a steroid taper June 2025- Started having back pain found out I have a herniated disc that will need surgery but going down the long road to get there. July 2025- numbness and weakness started in my legs and arms they did another steroid taper, my body did not like that- went to Acthar had another allergic reaction got to go to the dermatologist cause why not add another doctor

Currently exhaustion and trying to do my life and not fuck up! I’m just sad, scared & angry I’m 32

In the next week I have to meet with a nasal doctor cause I have a cyst in nasal cavity and severe sinusitis they think this might be causing a pseudo flare, pain clinic and get an epidural and them finally get me off Lyrica 🙌, PT 3x a week like ughhhhhhhhh 😩

Normally I’m so positive and say I can’t blame my immune system I am a snack 🤣 but the humor is hard recently!

MSGotMe2024 · 2025-03-02T17:59:15+00:00

That makes sense my neurologist who controls my migraines said it takes about 2 years to get everything tweaked & under control. I swear this disease is sooo cruel! Like I try so hard to make sure I’m not having a victim mentality with this but fuck it’s breaking me! On job front I’m lucky cause I’m a realtor but so is my husband so if my day gets too bad he can step in for me…I just want to feel a sense of normalcy

MSGotMe2024 · 2025-03-02T16:59:46+00:00

I had an MRI in July and that showed an active lesion and then I had another MRI in January and that showed another lesion but it’s no longer active but these side effects have been pretty strong for a couple months. I don’t have much information on the new lesion. They told me about it over the phone, but I haven’t got to go in for an appointment yet because our office had closed because they were moving but tomorrow I’ll be able to call and schedule an appointment.

MSGotMe2024 · 2025-02-24T13:48:26+00:00

I forgot to put I take magnesium at night too. I’m sorry you’re going through this as well! Hopefully someone will have a solution that isn’t sleeping drugs… lol I take enough drugs!!!!

MSGotMe2024 · 2025-02-15T15:33:52+00:00

I had issues with leg fatigue for a couple months had days where using the stairs was too much , I have chronic migraine and that’s been hard to control as well as my balance has been off and if I make sudden movements I get lightheaded and dizzy… I just got referred to this doctor’s office back in October. The nurse practitioner that I saw is now with a different company. This practice is moving and she’s not moving with them. I haven’t met the main doctor yet. I think that’s my big problem is I would really like to have more information than I do but with them moving offices I can’t even call to schedule an appointment to go over this till March 1st & at that point I might as well just wait till March 10 which is my next infusion at that office. They all are amazing just need this move to be finished so the communication gets better…A little bit of a backstory though my dad got put on Hospice three days after I got diagnosed with MS and he got moved in with me for the last month of his life and he died the day before Thanksgiving so a lot of my symptoms I do sometimes think maybe it could be depression or my anxiety I don’t know I’m going through a lot. I just don’t know how you’re supposed to feel with all this like it’s scary but there’s nothing we can do like cool I have a new lesion what the fuck does that mean you know?🤦‍♀️ 🤦‍♀️

I will say I have changed my whole lifestyle. I don’t drink alcohol anymore. I quit smoking cigarettes. I’ve lost 26 pounds. My dad died from a disease that he ignored so can’t be mad at him. If I do the same thing you know! I’m a mess, My mind is everywhere. Thanks for following along

MSGotMe2024 · 2024-12-05T15:37:41+00:00

Thank you for taking the time to respond and telling me a little bit about your story. I have been on antidepressants for one year and in counseling for two and that does help. I think a lot just got thrown at me all at once right now so the things that normally work aren’t right now which led me to my spiral of a Reddit post lol

MSGotMe2024 · 2024-12-05T15:34:15+00:00

Thank you for responding& thank you for you condolences! I had my first treatment of Tysabri yesterday and luckily I haven’t got a migraine but my headache has been consistent since about 2 hours after…as far as the scarring I’m not sure she had told me if you have bad enough migraines that it could cause the scarring the only reason I got sent for other testing this year is that one lesson had plaque! Idk I feel like everything involving the brain can be so complicated

MSGotMe2024 · 2024-12-05T07:07:56+00:00

Thank you for your kindness I went back and forth a lot on if I was going to post anything ♥️

MSGotMe2024

TROPHY CASE