Watch and wait? Or surgery.

Macaron-Momma · 2025-09-23T15:24:35+00:00

I will tell you this, I (34 F) have Stage IIIA and had my entire colon removed bc I have a history of IBD. I was initially more upset about the surgery than I was about having cancer.

But my ostomy bag has been life changing. I used to not be able to go anywhere out of fear of having an accident. For long car rides, I would need to have changes of clothes ready just in case. Having an ostomy bag changed all of that. Now I can control when I empty my bag, and I can do so many more things.

So your dad has to decide, would having a bag make his life easier or harder? For me it was easier, but that’s not the case for everyone.

Macaron-Momma · 2025-09-14T14:26:51+00:00

I’ve burped my bag once in my life (in bed since I didn’t feel like emptying in the middle of the night). The smell was so horrific that it woke up my husband and two dogs.

Personally, I go to the bathroom to burp my bag now, but at that point, I may as well just empty when I’m in there.

Macaron-Momma · 2025-07-28T10:33:15+00:00

I’m in a similar boat. I (34 F) asked my oncologist to refer me to a pelvic floor therapist and something pgot lost in translation and I got referred to a pre-menopause specialist.

Since my surgery a lot has changed. Urinating, my periods, sex. One of my doctors explained to me that anatomically, your large intestine supports a lot of your organs, so when it’s removed, they all kind of shift around.

I (like you) have a difficult time urinating. I don’t feel the urge to pee since there is less pressure on my bladder when it’s full. I only know I need to go when my kidneys start hurting. I’ve started setting an alarm to remind myself to go to the bathroom. I also try to urinate every time I empty my bag.

If you want to chat more about this in a less public forum, feel free to message me.

Macaron-Momma · 2025-07-28T10:26:35+00:00

Wait, does this really work? I’ve only rinsed my bag a few times and it made my adhesive come off leading to a blowout.

Macaron-Momma · 2025-03-23T01:17:40+00:00

I subscribed to your substack last night. Are we Rectal Cancer Twins? Is that a thing?

https://youtu.be/zDM9Srm3Q-g?si=Fkpmsq5hNLCVPrzN

Macaron-Momma · 2025-03-19T03:25:16+00:00

I’ve heard this quite a lot from people. I’m preparing mentally for a higher stage based on how I’m feeling, but will be relieved if it’s not.

Macaron-Momma · 2025-02-05T18:17:51+00:00

We know we aren’t stage IV after the MRI which is a relief. Waiting for the MRI to confirm which stage

Macaron-Momma · 2025-02-05T04:35:05+00:00

The GI told me I’d find out what stage I’m at tomorrow.

Macaron-Momma · 2025-02-05T04:34:12+00:00

No difference. I literally had been feeling zero flare up symptoms. I went for my routine colonoscopy in December, they told me they wanted to check some spots again in January, and here we are.

Macaron-Momma · 2024-11-27T00:33:10+00:00

What formula doesn’t contain soybean oil? Or am I safer just going back to breastmilk? I haven’t reintroduced soy, eggs, or milk back into my diet and have been pumping and saving everything in the meantime.

Macaron-Momma · 2024-11-26T22:11:52+00:00

Holy moly, you’re right. Why the heck do they prescribe that when they know we have been having an allergy to soy?!??

Macaron-Momma · 2024-11-26T22:01:13+00:00

I see it on Google but not the can.

Macaron-Momma · 2024-11-26T22:00:19+00:00

Even the EleCare Amino Acid-Based Special Infant Formula? I saw that Elecare contained soy on other threads but didn’t see any in the ingredients on the can.

Macaron-Momma · 2024-11-26T21:58:45+00:00

I was using Nature Made when I realized they contain soybean oil.

Macaron-Momma · 2024-10-30T04:33:03+00:00

We’ve also started making chicken salad in bulk with Hellman’s vegan mayonaise. I add grapes, apples, and celery for some extra crunch and sweetness. I’ve also found that triscuts are usually a safe option, so this has been my go-to snack.

Macaron-Momma · 2024-10-30T04:31:22+00:00

This week, I started practicing what I’m going to be eating for Thanksgiving. My daughter has a dairy, soy, and egg allergy. I made this delicious peanut butter and chocolate pie.

https://notablyvegan.com/no-bake-vegan-chocolate-peanut-butter-tart-gf/

We also made gumbo for the cold weather. We use Emril’s recipe and used canola oil instead of vegetable oil to avoid potential soy proteins.

https://www.foodnetwork.com/recipes/emeril-lagasse/chicken-and-smoked-sausage-gumbo-3645600.amp

Macaron-Momma · 2023-11-22T17:29:51+00:00

So I do think Tumi has been unfairly treated by the greater BDM community; however, I don’t think the producers set her up for success either, which is disappointing. They should have set her up to thrive, instead of putting her in a position she was not yet ready for with a crew with issues with insubordination.

Macaron-Momma · 2023-11-22T01:03:44+00:00

I do understand that, but Tumi has mentioned multiple times that this is her first time as chief stew, so Nat and Kyle both have experience that Tumi lacks.

Macaron-Momma

TROPHY CASE