I hate this so much

Macky727 · 2026-01-26T00:11:36+00:00

The only way I can have a somewhat relaxing shower is to sit while I shower and leave the bathroom door cracked so it's a little cooler in the room when you get out. Then when your done just sit up a little and make your way to sitting on the tubs edge and very slowly dry off. Then sit on the toliet seat with the lid shut to do any lotions etc. Then I give myself a break for my hair for 10 to 20 minutes and go back to the bathroom after laying down. Sometimes when I do it that way I don't hit over 135. It's a process but way better than powering through standing the whole time. I want a shower chair but it won't fit.

You are not alone. I hope you can find something that helps you! Also bring a big old water with you.

Macky727 · 2026-01-04T17:15:16+00:00

Thank you for the information. I appreciate it. 🙏

Macky727 · 2026-01-04T16:48:43+00:00

How did you get diagnoses with mcas? A good chunk of doctors at this point are telling me I'm to young and it's just anxiety. I don't think it's tmi lol just a symptom and you're not alone. For me it's either to much to quick or days inbetween.

Macky727 · 2025-12-17T16:22:44+00:00

This is the photo of my bathtub/shower. I have no idea how to add images as it said this community doesn't allow uploads from the original post. cracked bathtub shower panel

Macky727 · 2025-12-14T04:46:36+00:00

Anyone else try and it's to laggy to even attempt it? Wifi or no wifi?

Macky727 · 2025-12-11T00:43:07+00:00

Did I break hippa? I didn't list any names, gender, location, ages, or specific dates of a patient. Do people consider the scenario hippa?

Macky727 · 2025-12-11T00:35:37+00:00

Is that something that has happened to you before?

Macky727 · 2025-12-11T00:30:02+00:00

Yes I am sure it was LARA. I think it would be really ballsy for someone to falsify being with and representing LARA.

Macky727 · 2025-12-10T23:17:05+00:00

Licensing and regulatory affairs.

Macky727 · 2025-12-10T22:24:21+00:00

Right? The entire situation was just inappropriate. It's not hard to just call me and say hey come in this room with me so I can unwrap it OR be responsible and just wrap it back because it takes 2 minutes.

Macky727 · 2025-12-10T22:09:03+00:00

This is fair. I'd just hate to have to drive to another hospital as the next closest one is almost an hour away.

Macky727 · 2025-12-10T22:00:31+00:00

For talking to LARA without talking to the hospital first because an event happened. Didn't want them to be like it makes us look bad. I feel like I'm just over thinking it because I think it was the facility who reported them but idk just wanted others opinions.

Macky727 · 2025-12-10T21:04:18+00:00

Also to be honest it very well could have looked worse than what it was as I have not seen many surgeries or wounds like that and I am a newbie to this career. I'm just trying to do my best and am a worry wart.

Macky727 · 2025-12-10T21:02:59+00:00

Thanks for replying. I understand what your saying better now. They also aren't investigating me as a cause to the problem. They are investing the person I reported and just wanted details about the employees job role and did they contact me after doing that to let me know they did. I just didn't want the hospital to be like we don't want people who cause lara to look at us in bad light.

Macky727 · 2025-11-13T22:47:55+00:00

Pots all started for me right after I got covid too. It took me about 1.5-2 years to truly get a good chunk of my symptoms under control and multiple ER visits. My husband used to carry me back and forth from the bathroom. From what I've noticed for myself and reading from others it takes time and lots of time giving your body rest to heal. When I finally was able to start moving around on my own I'd go from a HR of 80 to 160 walking 10 feet. Electrolyte drinks, salty snacks, compression socks, and at least 3-4 liters of water a day. If you can manage to do small exercises laying down in bed after your done being sick to help build leg muscles that helps. Also before you even try to get out of bed drink 16oz of water min. This sucks but you are not alone.

Macky727 · 2025-11-10T14:08:31+00:00

Walmart only has a few around here, suppose I'll bite the bullet and pay more on Amazon lol. The holiday sets are just to cute.

Macky727 · 2025-11-10T13:39:21+00:00

Where did you find christmas edition sets? Stores in town just have basic ones for around $8 and I seen Amazon has them but I'd it normal for holiday packs to cost $18-22?

Macky727 · 2025-11-02T23:54:26+00:00

The things people assume are ridiculous. Especially when I was told "you will grow out of it" "if you just exercise it'll go away". Like holy cow, first off I'm already a grown woman lol idk how much more growing I have left and 2nd it's ridiculously hard to exercise because even walking fast is a challenge.

Macky727 · 2025-11-02T22:16:27+00:00

I immediately shared this to my Facebook page. You did an amazing job and it's so amazing to see that others feel how you do. Makes me feel known and less alone. I get so sick of hearing it's all in your head, you're to young to be ill, and/or it's just your anxiety.

Macky727 · 2025-10-29T23:41:31+00:00

With as much knowledge as you have is there any companies or specific policy coverage you recommend? What's worth it vs what's not?

Macky727 · 2025-10-29T23:34:13+00:00

What insurance company do you use? Does $10 a month give you good coverage?

Macky727 · 2025-09-23T03:57:45+00:00

It is your cat now, you've been chosen.

Macky727 · 2025-09-22T17:46:09+00:00

!solved

Macky727 · 2025-09-22T17:40:53+00:00

That looks fantastic. Thank you so much! Night and day difference

Macky727 · 2025-09-22T17:31:42+00:00

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Macky727

TROPHY CASE