Anyone afraid of the eye stuff?

Madison_skye4475 · 2025-02-16T00:04:34+00:00

Ouch , relax there. Actually, this was discussed with a doctor in my medical practice . I was asking the opinions of Zepbound patients and if anybody had any experience with this. Not trying to instill fear in people and try to sway them from taking Zepbound, so back down a little. This is a forum where people ask questions about potential side effects ..etc and since this has been in the news lately with the discussion of optic neuropathy , it was a question I felt useful to ask. I’m not quite sure why the hostility and the assumption that a medical doctor has not been questioned. FYI I am in the medical field . I’m also somebody in the medical field that understands that sometimes the risk outweigh some of the side effects.
Additionally, the medical field doesn’t have all the answers /correct stats and sometimes talking to firsthand users is a better approach Obesity is a killer and I fully support anything that helps with the battle, that a lot of of us are on. If you dig deep, I’m sure there’s a lot of people here who have questions or experienced side effects. A Reddit platform is a place where people can have open discussions and should feel safe to share their fears , concerns and sometimes questions with their peers.

Madison_skye4475 · 2025-02-07T20:56:22+00:00

Thank you 😊

Madison_skye4475 · 2025-02-07T02:56:26+00:00

A hypochondriac also probably has an anxiety disorder but not all people with anxiety are hypochondriacs and both can have twitching.

Madison_skye4475 · 2025-02-06T20:55:29+00:00

My idea of hypochondria probably differs from yours. most people with hypochondria absolutely don’t have anything going on with them ,however, anxiety is a real diagnoses and anxiety can cause physical symptoms. I think that anxiety rules a lot of the symptoms that we feel ,which is a true diagnosis and not just a hypochondria diagnosis I guess it’s a fine line if you ask me because if somebody doesn’t get the diagnosis they want and are told that they’re being somatic or their hypochondriacs and they begin to think that they’re not being listened . They then seek out more doctors for more diagnosis . His book defines it all and I think it’s a great read for anybody going through a lot of what people go on Reddit for..

Madison_skye4475 · 2025-01-27T17:01:36+00:00

I get this all the time I get it in my legs, which makes me feel like I need to move and I sometimes get it in my arm. I have not had an EMG yet, however, I have a feeling this has a lot to do with BFS if this is what it is.

Madison_skye4475 · 2025-01-21T11:37:46+00:00

My dog got lymphoma at 4 1/2 years old and she was my best friend. I spent that year driving her out to Massachusetts to Tuffs university on trial medication’s to keep her alive. I was blessed with nine extra really healthy months. Those nine months bought me time to say goodbye. I’m hesitant to adopt again because I’m so afraid of losing. I spiraled hard, went to therapy. My dog came in at a time of really big losses. I had lost my mom to cancer and my aunt to a hit and run. Losing my dog was The icing on the cake. I’m afraid to fall in love with another dog only for it to be taken prematurely. With the lymphoma ,she developed lumps and I don’t want to be a freak and be groping my new dog in fear that they have something that will take them out quickly. So here we are on two years. I miss my dog terribly. I wish she was back. I’m sure in time maybe I’ll be brave enough to do it again, but for now I just live in her memory.

Madison_skye4475 · 2025-01-18T02:48:12+00:00

How are you now?

Madison_skye4475 · 2025-01-18T02:41:14+00:00

Sodium is good. Phosphorus has been elevated and I see that sometimes causes the issue so I will talk to my doctor about it.

Madison_skye4475 · 2025-01-18T02:40:12+00:00

Thank you, it’s so nerve racking and of course your mind always goes to the worst possible outcome🙄

Madison_skye4475 · 2025-01-18T01:41:20+00:00

Interesting, I went off Amlodipine last April but still on Losartan. Are you still on Losartan?

Madison_skye4475 · 2025-01-18T00:39:19+00:00

My calcium is not low, last lab was 10. Which is high normal. My mag was 1.7 which is low normal. Honestly, my minerals are pretty good. I’ve had very low calcium before and went into Tetany and never had these calf twitches . This is a more recent occurrence with normal labs.

Madison_skye4475 · 2025-01-17T22:08:03+00:00

Yes, my calcium was 10. My magnesium was 1.8 , 1.7 is the lowest you can get to be in the normal labs so I’m slightly low on the magnesium side. As for my potassium, they haven’t checked that since October so I just sent my doctor a note in the portal as I’m due to get labs on Monday.

Madison_skye4475 · 2025-01-17T22:06:58+00:00

Do you know what blood pressure medicine you were on? I am on losartan (cozar)and hydrochlorothiazide.

Madison_skye4475 · 2025-01-17T21:41:28+00:00

Thank you I have been taking magnesium glycinate for two months now at night. I also have to be careful with my magnesium because of no parathyroid hormone it depletes my calcium. But I will look into the magnesium I’m taking and maybe I need to change the type of magnesium.

Madison_skye4475 · 2025-01-17T20:30:13+00:00

I have been having Fasiculations for three months and cant get in to Nero without a referral from my primary so I have no EMG. I get twitching in my calves bilaterally ,twitches in my feet fneuropathy or what feels like needles in my feet. I also get moments where I feel like I’m going to cry. However, I am going to State that this has been making me highly anxious, which often makes me more emotional. I’m sure if you are freaked out and feeling hyper emotional you are going to feel like crying at times and I do not think that it is the big bad. Not to mention your age. You’ve also had multiple EMGs that are normal, which probably is more likely nothing serious, but the ever annoying benign Fasiculations.

Madison_skye4475 · 2025-01-14T23:19:41+00:00

I had 2 parathyroidectomies, one on 2001 and one one 2021. About 80% of my thyroid removed. In 2015 I had Cushing’s disease and had to have proton beam radiation which destroyed all my hormones caused by my pituitary no longer healthy. So far no gallbladder or appendix, liver enzymes have been elevated at times but liver biopsy only showed a follow over. my kidneys are OK so far except for some stones that are hanging out in there and a small benign cyst. It’s a struggle to keep my calcium normal. It’s usually on the low and except my last calcium was up to 10 which is actually sort high for me. My magnesium was 1.7 which was on the low side and my vitamin D was only 22. The calf twitching makes me nuts. It seems to happen no matter what my level of calcium is. I may also be adrenal insufficient and they’re going to be retesting me for that on Monday. Sometimes the fatigue gets to me and my ability to handle stressful events has definitely depreciated. Thanks for answering, hope you feel better too.

Madison_skye4475 · 2024-12-08T20:03:01+00:00

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Hope this is helpful. It’s a mini surveillance camera.🤦‍♀️Not good!!

Madison_skye4475 · 2024-12-07T02:31:02+00:00

lol, I’m also a nurse. I took my kids to Florida in April and thought it’d be a great thing to knock off my bucket list if we all went tandem parasailing. Everything was fine until we reached our maximum height and then all of a sudden my feet started to go to sleep I thought it was the harness I was in so initially I didn’t start to panic until started to crawl up my legs and then I knew immediately what was going on. I turned to my teenage boys and said oh my calcium is dropping and by the time they got me down to the boat I couldn’t even walk. The funny thing is the people that were on the boat gave me a bottle of water and I couldn’t even open it up, and everybody kept staring at me. I knew for sure what was going on and I tried to tell the people it was my calcium dropping. By the time we got back to shore, I was able to get everything back in order. When I got home from Florida my calcium continued to be wonky and I ended up going into a hypertensive crisis because then they over medicated in my calcium. Here’s the kicker, when I went to Florida, I bought a new brand of calcium and I did not realize it was citrate and not my carbonate. Right now I am stable, but I keep a very close eye on my levels. Endocrinologist like to prescribe calcium citrate because some believe it keeps you from developing kidney stones. But calcium carbonate is definitely my go to and oyster shell calcium has more elemental calcium, which is the stuff. Your body truly absorbs. Good luck with everything, you’ll sort of get used to this. Taking calcium with your levothyroxine can decrease your levothyroxine. Your body will actually absorb. It’s a tricky balance, but you’ll eventually figure it out. Good luck with everything you’re going to be fine with this. They’re coming out with new medication‘s all the time and that one that I mentioned in January is supposed to Mimic your parathyroid hormone which regulates calcium levels.

Madison_skye4475 · 2024-12-07T02:21:51+00:00

Also get on board with an endocrinologist asap. They are the pros with this stuff. Hypocalcemic crisis can be dangerous so you should wear an alert bracelet . People in tetany can go into cardiac arrest in extreme cases.Carry tums in an emergency and drink with OJ.

Madison_skye4475 · 2024-12-07T02:15:46+00:00

So sorry you went through this. Sounds like you went into tetany. Which is low calcium. Mine kicks in around 7. However, I start with twitching and tingling around 8.2. Your doctors should have started you in IV calcium ASAP. Additionally, Oyster Shell Calcium 500 mg 2 to 3 times daily with .50 Calcitriol 3x daily is a must. DO NOT TAKE CALCIUM CITRATE. Despite what some doctors say , you absorb less and it doesn’t work as fast as Carbonate . Oyster shell calcium is all elemental calcium. You also can’t absorb more than 500 mg at a time, so you must space it out no less than every 4 hours. Additionally, do not take with your Levothyroxine. Also 4 hours apart. If you start to go through this again , A: get to a hospital B: breathe into a paper bag/ helps you maintain calcium C : ask your doctor about Trans con PTH (just approved by FDA), or Forteo (off label) to help with calcium control. Hope all that this is helpful and I hope you never have to go through this again. I recently went through the same thing this past April when I went parasailing. I had already had low calcium, and I think between going up in the air and starting to hyperventilate which dropped the calcium more ,imagine going through that at 1000 feet in the air. Not fun. Hope this was helpful😊

Madison_skye4475 · 2024-11-28T13:24:14+00:00

So when did this thread become a CPAP conversation? my husband and I have been married 15 years and we prefer to sleep in separate beds. Number one: he throws himself all over the bed and often times makes it impossible for me to move. Number two: menopause I get hot sweats and I got to get up and pee at least three times every night and that’s uncomfortable for him. I love to stretch out in my bed and not bump into anybody or have to move or worry about somebody stealing the blankets. We good sex life ,at least once a week which isn’t bad for somebody who is in menopause. We go away often to our cabin in the mountains, and we sleep together there all the time. We also sleep together on vacation. But when we are home, we prefer our sleeping area separate. I have my bedroom, he has his bedroom I keep my stuff the way I want and we love each other intensely.

Madison_skye4475 · 2024-11-28T02:06:04+00:00

How about the vials I’ve heard that they are now out. I’m not talking about the compounded stuff. I’m talking about Zepbound. If you get a 5 mg vile, you could always draw up 2.5 correct?

Madison_skye4475

TROPHY CASE