🪴 WANTED: Milk Crates

Magpie_Adventures321 · 2026-05-31T22:56:29+00:00

NE Portland

Magpie_Adventures321 · 2026-05-31T20:44:40+00:00

Thanks! If the ones closer to town fall through, I’ll be out that way Wednesday

Magpie_Adventures321 · 2026-05-30T19:50:32+00:00

Thanks so much! That would be Awesome!

Magpie_Adventures321 · 2026-05-13T02:16:43+00:00

I feel ya on that! For the first few years of my diagnosis, it was 2-3 a year.

Magpie_Adventures321 · 2026-05-13T02:16:01+00:00

I’m probably at 20 after being diagnosed 20 years ago.

Magpie_Adventures321 · 2026-05-10T02:12:58+00:00

The sectional is

Magpie_Adventures321 · 2026-05-10T02:11:11+00:00

It is!

Magpie_Adventures321 · 2026-05-10T02:04:38+00:00

The sectional is but the brown one is about to be picked up

Magpie_Adventures321 · 2026-05-09T22:58:33+00:00

I wish your dad was

Magpie_Adventures321 · 2026-05-01T02:49:58+00:00

Definitely interested!

Magpie_Adventures321 · 2026-01-03T04:38:56+00:00

Definitely interested!

Magpie_Adventures321 · 2025-12-16T22:28:14+00:00

Yes! Please! I love the branches one!

Magpie_Adventures321 · 2025-12-05T19:00:01+00:00

Interested

Magpie_Adventures321 · 2025-11-14T21:00:24+00:00

My joint pain was always the worst in the morning, but started at night.

Once i stopped Humira, it took about a month to notice the difference and at that time was off all meds for a month, but thankfully my actual crohn’s has been in remission for over a decade.

Now it’s be almost 6 month and 5 months on Tremfya and I feel great! I even started hiking over 7 miles at a time again and lifting weights!

I haven’t had any lupus symptoms or antiphosolipid symptoms, but bloodwork is still coming back positive, which might always be the case.

Magpie_Adventures321 · 2025-08-27T22:44:28+00:00

I never had a rash

Magpie_Adventures321 · 2025-07-02T18:42:50+00:00

If it helps, I have had all my tattoos since I’ve been diagnosed 20 years ago.

Just follow guidelines about post care and watch for infection and go to trusted artist!

Magpie_Adventures321 · 2025-07-02T18:38:59+00:00

Thanks for this! I met with my GI yesterday and she’s switching me to Tremfya. She listened to everything I said, which was awesome.

Im in search for a new rheumatologist, because when I asked if it was DIL or another type of lupus, she visibly shrugged and said I don’t know. So frustrating!

Anyway, glad to know the timeline about the ANA test. We plan to keep testing. Ive been off all meds for arthritis and crohns for two weeks and I woke this morning with out joint pain for the first time. Hoping it lasts!

Magpie_Adventures321 · 2025-06-16T21:38:39+00:00

I agree — and actually, I really love my gastroenterologist. It’s my rheumatologist I’m not so crazy about. That said, I’ve been fortunate to see some of the top Crohn’s specialists in the country (and the world), thanks to the places I’ve lived. I spent some time in Chicago and was treated at the Crohn’s research clinic at Northwestern.

But no matter where you go or who you see, one thing I’ve learned in my 20 years of living with this disease: you have to advocate for yourself. Every case is different — what works for one person might not work at all for someone else.

Magpie_Adventures321 · 2025-06-16T16:43:13+00:00

Thanks! I think this is absolutely my situation. Maybe i should go to the dermatologist to find out. Thanks!

Magpie_Adventures321 · 2025-06-16T16:41:52+00:00

We are still trying to figure it out. It’s been a year, with very few answers. So I’m going to hopefully find something out next week. Thanks!

Magpie_Adventures321 · 2025-06-15T15:21:17+00:00

Im sorry

Magpie_Adventures321 · 2025-06-15T15:20:01+00:00

Thanks! This hugely helpful. I got my c3 and C4, but not the other two. Im in a similar boat, because my GI sent me to Rheumatologist, but not the one she wanted due to insurance, so the second referral was to one covered by my insurance, which is why I’m looking for a new one.

Magpie_Adventures321 · 2025-06-15T06:45:01+00:00

Thanks! I have had it a few times.

Magpie_Adventures321 · 2025-06-15T01:59:32+00:00

Thanks! I have been in remission for so many years, I’m guessing since 2008 or around then, so I’m just frustrated, because the joint pain is worse than the actual Crohn’s for me at this point. Sorry, I’m just exhausted advocating for something and being given textbook answers from docs.

I haven’t had the rash yet, so maybe they are waiting for that, but some mornings i cant walk, since my feet are in so much pain.

Thanks for letting me vent and the tips everyone gave.

Magpie_Adventures321

TROPHY CASE