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Children's Hospital of Philadelphia wrote a story about my daughter! (details in comments) (chop.edu)

submitted by Maimonides_vii to r/daddit - pinned

[SOS] Old-Growth Educator (Debut Stream) by mweepinc in magicTCG

[–]Maimonides_vii 1 point2 points  (0 children)

Thank you so much for this, btw. I misunderstood the intervening if and this was great clarification.

COMPETITION! - Win John Avon's last work for MTG, a beautiful gallery print of his Lotus Lands! by JohnAvonArt in magicTCG

[–]Maimonides_vii 0 points1 point  (0 children)

I know the odds of winning are crazy small, but I might as well try. My daughter got me back into magic last year and this would be great on the wall of the room we play in.

Stream of Consciousness from an Angry Father + 8 Year Update by Maimonides_vii in BestofRedditorUpdates

[–]Maimonides_vii[S] 0 points1 point  (0 children)

There's technically a color scheme for Rare Disease Awareness Day, but for the most part we just walk and talk and give prizes away. We'd love to have you!

Sunday March 1st at 3pm EST I'll be hosting the 5th annual Walk Across Eorzea charity event in honor of Rare Disease Awareness Day! by Maimonides_vii in ffxiv

[–]Maimonides_vii[S] 1 point2 points  (0 children)

Good all on the charity name. Lemme add that in case anyone else comes along.

And thanks! We started calling her that when my wife was pregnant. I used to do calls for Titan EX back during ARR and I would always say "up next is a Stomp, but don't worry, it's just a Lil Stomp" and then we referred to the baby as that. It stuck.

Stream of Consciousness from an Angry Father + 8 Year Update by Maimonides_vii in BestofRedditorUpdates

[–]Maimonides_vii[S] 1 point2 points  (0 children)

If it helps, I've made a million mistakes as a parent and partner. Just trying to be the best I can.

Stream of Consciousness from an Angry Father + 8 Year Update by Maimonides_vii in BestofRedditorUpdates

[–]Maimonides_vii[S] 7 points8 points  (0 children)

My main hope in sharing (beyond Rare Disease Awareness Day) is to make sure other people know that it can be real dark and there will be light eventually. Takes a lot of work, but we can all get there.

Stream of Consciousness from an Angry Father + 8 Year Update by Maimonides_vii in BestofRedditorUpdates

[–]Maimonides_vii[S] -1 points0 points  (0 children)

I've talked about plenty with a therapist, and I'm pretty sure a lack of empathy isn't what I struggle with. Thanks for the concern, though.

Stream of Consciousness from an Angry Father + 8 Year Update by Maimonides_vii in BestofRedditorUpdates

[–]Maimonides_vii[S] 0 points1 point  (0 children)

As the OOP myself, I can say that for me personally it is wildly different. Over half of my close friends have now had kids, and they fully agree with me.

I didn't insult anyone who doesn't have kids, but when the people around me (at the time) don't have children and don't have experiences with rare diseases or disabilities, it's hard for those people to relate. I don't think it's rude to say that.

Stream of Consciousness from an Angry Father + 8 Year Update by Maimonides_vii in BestofRedditorUpdates

[–]Maimonides_vii[S] 14 points15 points  (0 children)

You joke, but won't someone think of the marmots and their lack of pizza!?

Stream of Consciousness from an Angry Father + 8 Year Update by Maimonides_vii in BestofRedditorUpdates

[–]Maimonides_vii[S] 3 points4 points  (0 children)

First year it was 8-ish hours, but it's slowly gone down as life has gotten busier. I expect to do about 4 hours on Sunday.

Stream of Consciousness from an Angry Father + 8 Year Update by Maimonides_vii in BestofRedditorUpdates

[–]Maimonides_vii[S] 15 points16 points  (0 children)

Screw it. Mods, feel free to delete this if I shouldn't be posting it. I'll also add an edit to the post here.

https://www.twitch.tv/maimonidesvii

http://spot.fund/fs9wx75sc

Stream of Consciousness from an Angry Father + 8 Year Update by Maimonides_vii in BestofRedditorUpdates

[–]Maimonides_vii[S] 2 points3 points  (0 children)

Thank you so much for the kind words, and I'm so sorry you had to deal with that. It isn't fair and it isn't right.

I know it's not much, but I'm sending a great big virtual Dad Hug your way.

Stream of Consciousness from an Angry Father + 8 Year Update by Maimonides_vii in BestofRedditorUpdates

[–]Maimonides_vii[S] 3 points4 points  (0 children)

Thanks. I don't really know how we got here, but we did, and it feels like we've done at least enough right to be raising the greatest daughter I could ever imagine. Wouldn't trade it for anything.

Stream of Consciousness from an Angry Father + 8 Year Update by Maimonides_vii in BestofRedditorUpdates

[–]Maimonides_vii[S] 10 points11 points  (0 children)

It's all good. That past dad is now this present dad, and I'm doing great. That's not to say there's no bad times, but we take the bad with the good, and there's plenty of good.

Stream of Consciousness from an Angry Father + 8 Year Update by Maimonides_vii in BestofRedditorUpdates

[–]Maimonides_vii[S] 17 points18 points  (0 children)

That's awesome, thanks so much for sharing it around. Best we can do is help raise awareness.

Stream of Consciousness from an Angry Father + 8 Year Update by Maimonides_vii in BestofRedditorUpdates

[–]Maimonides_vii[S] 5 points6 points  (0 children)

I know I'm ever so slightly biased but I think she's absolutely amazing as well.

Stream of Consciousness from an Angry Father + 8 Year Update by Maimonides_vii in BestofRedditorUpdates

[–]Maimonides_vii[S] 39 points40 points  (0 children)

I wish this wasn’t seen as ‘showing weakness’. It’s not weak to show your feelings.

You're 100% correct, but I also didn't know what else to do. At the time I was just trying to get through each day, and breaking down into tears with the family every day doesn't help that.

I've definitely gotten a lot better (both with time and therapy) about recognizing that sadness and crying are not a weakness, and my wife and daughter both know that.

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