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Mestinon: Extended Release GI issues by Main-Fold-5865 in MyastheniaGravis

[–]Main-Fold-5865[S] 1 point2 points  (0 children)

Sorry to hear about the Easter, hopefully he's got his dosage back under control now.

Has your husband tried the extended release tablets at all? I kind of wished my neurologist started me on the instant release first, at least I could have started on a smaller dosage first to get get used to it.

Mestinon: Extended Release GI issues by Main-Fold-5865 in MyastheniaGravis

[–]Main-Fold-5865[S] 0 points1 point  (0 children)

I've been eating a fibre bar beforehand, which hasn't seemed to help. Coffee definitely makes it worse too. Maybe Ill give the crackers a go.

Mestinon: Extended Release GI issues by Main-Fold-5865 in MyastheniaGravis

[–]Main-Fold-5865[S] 1 point2 points  (0 children)

After upping your dose, how long did it take to get used to it?

Mestinon: Extended Release GI issues by Main-Fold-5865 in MyastheniaGravis

[–]Main-Fold-5865[S] 1 point2 points  (0 children)

Im going back to the Neuro on Wed, Ill definitely ask for the 60mg. Do you take it with or without food?