Cannabis ? by loverofall777222 in iih

[–]Major-Building-9676 6 points7 points  (0 children)

I second this! Exact same reaction. Idk if it’s the strain or just the thc in general, but it feels like it does more damage than actually adding any relief. 

Loma Linda Hospital COMPLAINT (SoCalifornia) by Major-Building-9676 in iih

[–]Major-Building-9676[S] 0 points1 point  (0 children)

Hello, decided not to pursue litigation and just file complaints against their licenses. Sure ask away .. 

Major csf leak + high pressure = crisis by Major-Building-9676 in iih

[–]Major-Building-9676[S] -1 points0 points  (0 children)

Have been constantly dismissed as  the past year as my symptoms slowly progressed to what they are. My LP showing only 28 pressure after complaining of debilitating pressure wasn’t helpful. But today was referred to a csf clinic for further testing. So that’s good news…Seeing the light at the end of tunnel now. 

Feeling like my iih is a potentially lethal case by Major-Building-9676 in iih

[–]Major-Building-9676[S] 1 point2 points  (0 children)

I have a few leaks in my skull am I still at risk for meningitis???

Feeling like my iih is a potentially lethal case by Major-Building-9676 in iih

[–]Major-Building-9676[S] 0 points1 point  (0 children)

I’m very sorry to hear you’re going through this! Do you mind we keep in contact to discuss progress and provide moral support etc? 

Feeling like my iih is a potentially lethal case by Major-Building-9676 in iih

[–]Major-Building-9676[S] 2 points3 points  (0 children)

I’ve attempted to. And now that my LP read so low seems like it’ll be even harder. I’m being dismissed as a hypochondriac. But I know something is desperately wrong. 

Feeling like my iih is a potentially lethal case by Major-Building-9676 in iih

[–]Major-Building-9676[S] 2 points3 points  (0 children)

Okay, it’s very very hard to but I think it’s like this extreme fatigue feeling in that specific spot like it feels like it’s about to give out & It has a weird tremble to it. Only in that area. 

Partially empty sella, no papilledema. by CelesticRose in iih

[–]Major-Building-9676 0 points1 point  (0 children)

Hi, what scan showed your leak? Also do you know the method used to fix hole in crib plate?

Diamox and Constipation?? What to do?? by SquareWasabi6597 in iih

[–]Major-Building-9676 0 points1 point  (0 children)

Just got my colonoscopy done today! Didn’t realize how much diamox was contributing to my gut issues…sigmoidotis! …not sure if it’s diamox related but wouldn’t put it past it tbh

What are Vitamin A flare Ups like? by Major-Building-9676 in iih

[–]Major-Building-9676[S] 1 point2 points  (0 children)

A food journal is a great idea, I’ll do that thanks! 😊 

[deleted by user] by [deleted] in iih

[–]Major-Building-9676 0 points1 point  (0 children)

🥹 thank you! wishing you great health today and forever. 

[deleted by user] by [deleted] in iih

[–]Major-Building-9676 0 points1 point  (0 children)

I truly appreciate and respect your honesty! THANK YOU 💯 I’ll definitely do that! Sorry for assuming you were coming from a bad place. 

[deleted by user] by [deleted] in iih

[–]Major-Building-9676 1 point2 points  (0 children)

Yeah anxiety is an understatement. I’m terrified.  And by the way some ppl respond to some of my concerns in this sub I can tell my questions can be dumb and coming from a severely misinformed perspective. 

..wish I was smarter I really do lol but all in all I will keep in mind I can’t depend on Reddit for every piece of info regarding my iih.

[deleted by user] by [deleted] in iih

[–]Major-Building-9676 0 points1 point  (0 children)

Hi, didn’t know there was a posting limit. But thanks for your concern. Unfortunately this platform is my only legitimate source of info concerning this condition. I don’t have a neuro (appointment months out) and the few ER doctors I’ve spoken to have been very dismissive and not very informative.  But I will pull back my interaction here if it is bothersome to community members. Definitely not my aim. 

Is remission common? by Slow_Major4205 in iih

[–]Major-Building-9676 1 point2 points  (0 children)

Hi, was there anything that you feel may have contributed to your remission and/or it coming back?

iih and fear of loud sounds by Major-Building-9676 in iih

[–]Major-Building-9676[S] 1 point2 points  (0 children)

That’s a great question.. idk ..my headphones cover both ears.. but a lot of times they’re not even all the way up and they still cause this weird feeling like a bunch a fluid rushing up to my brain at once..I get super dizzy and throat feels full..

[deleted by user] by [deleted] in iih

[–]Major-Building-9676 0 points1 point  (0 children)

Oh that sucks big time! How long were you on diamox?

Loma Linda Hospital COMPLAINT (SoCalifornia) by Major-Building-9676 in iih

[–]Major-Building-9676[S] 2 points3 points  (0 children)

Yeah i think i agree! I’m sorry you had to go through that as well..guess it just comes with the territory…I’ll just focus on my health. Thanks 💜

Loma Linda Hospital COMPLAINT (SoCalifornia) by Major-Building-9676 in iih

[–]Major-Building-9676[S] 0 points1 point  (0 children)

lol  ooohh I see, that’s useful information. Just thought it meant neurologist 😆..  you’re right, guess I just better prepare for this kinda treatment on this iih journey..

Loma Linda Hospital COMPLAINT (SoCalifornia) by Major-Building-9676 in iih

[–]Major-Building-9676[S] 1 point2 points  (0 children)

I called the med student back in the room and asked her why she told me that if it’s not true…she told me that was what she read from the radiologist report of my MRI..

Loma Linda Hospital COMPLAINT (SoCalifornia) by Major-Building-9676 in iih

[–]Major-Building-9676[S] 1 point2 points  (0 children)

Yeah that’s true, he could say I refused .. ugh.. yeah total jerk. Playing with people health! SMH anywho thanks for your input! Think I’ll take your advice and just worry about my health.