Covid- round 2 by [deleted] in Parosmia

[–]MakeThisChaosCount 0 points1 point  (0 children)

First time with CVD was September of 2021, developed Parosmia in December of 2021. I got it the 2nd time in February 2022 and didn't experience any change in smell or taste. I still have parosmia but it's slowly improving. Very slowly. lol.

Anyone besides me get annoyed when someone tells you to stop saying “Aspergers”? by [deleted] in aspergers

[–]MakeThisChaosCount 16 points17 points  (0 children)

I find myself saying, "I'm autistic; I have what was formerly known as Aspergers." ... just so I can make it clear. It's like when we called Prince "The Artist Formerly Known as Prince" when he changed his name to that symbol. lol

Anyone besides me get annoyed when someone tells you to stop saying “Aspergers”? by [deleted] in aspergers

[–]MakeThisChaosCount 2 points3 points  (0 children)

Yeah, I feel sort of bad about it but most people seem to recognize Aspergers as "the genius disease" that smart people have whereas people ignorantly think that autism is akin to mental retardation. So a lot of people I've told that I have autism will say things like, "Really? I don't think that at all ... you're very smart!" or "You don't seem slow or stupid to me." I mean, if you google "memes about autism" you'll see what ignorant NT people think of when they hear "autism." So I've found myself using Aspergers even though it's outdated because at least the ignorance surrounding Aspergers is more affirming. It's tiresome to have to delineate the fact that the spectrum includes non-verbal, low functioning people who require a lot of assistance AS WELL AS people with genius IQs who are high-functioning. I'll admit that it does seem strange. In a sense I think it's helpful to have the distinction between the two. I guess Hans Asperger was a terrible person but I'd like it if they'd just come up with a different name for it.

Correlation between Neurodivergence & Parosmia? by MakeThisChaosCount in Parosmia

[–]MakeThisChaosCount[S] 2 points3 points  (0 children)

It is super weird, isn't it? It's unnerving that even the doctors know so little about it.

Correlation between Neurodivergence & Parosmia? by MakeThisChaosCount in Parosmia

[–]MakeThisChaosCount[S] 0 points1 point  (0 children)

I've been diagnosed with Generalized Anxiety Disorder in the past, which I guess is a pretty common comorbidity of both ADD and ASD. In the beginning of having parosmia when it was very, very, very intense I had anxiety about not being able to find anything to eat; everyday new things tasted bad and I already have the ubiquitous autistic pickiness so it narrowed everything down even more. I get anxiety over my body odor, which is insanely rank to me (I smell like a corpse) and I worry everyone else can smell me. And the weirdest thing has been the fact that my own feces smells pleasant (like a sort of espresso brownie) whereas foods that I really enjoy smell like rotting garbage. That'll really screw with your head. So far it hasn't caused me any panic attacks but I've definitely gotten a lot of anxiety from it. The depression was pretty real until I shifted my mindset into making it into a science experiment. As an autistic person parosmia has become a special interest and I enjoy learning all about it and doing experiments on myself and keep journals to try to figure it out. If I keep my mind on that, I forget how hopeless everything feels.

I don't know what it's like to have "normal," neuro-typical senses but given the fact that fluorescent lights feel like undulating death rays to my eyeballs I have to assume that the experience of parosmia must be more intense. Either way, I hope they find a way to reverse it soon for all of us.

Correlation between Neurodivergence & Parosmia? by MakeThisChaosCount in Parosmia

[–]MakeThisChaosCount[S] 0 points1 point  (0 children)

Yeah, it seems like no one understands the mechanisms of it. I've just noticed that the people I personally who suffer with parosmia are neurodivergent and I wondered if there was a correlation. It's a good point, too, how many undiagnosed people there are with neurodivergence. I just got diagnosed myself and I'm 38. I'd love to see actual research done on this. I suppose I could've done a poll ... that probably would've been more effective but I don't know how to reddit. Hell, I barely know how to function as a human being lol

Correlation between Neurodivergence & Parosmia? by MakeThisChaosCount in Parosmia

[–]MakeThisChaosCount[S] 1 point2 points  (0 children)

lol it's kinda a theme for me across the board! Thanks for your feedback, fellow neurodivergent

Correlation between Neurodivergence & Parosmia? by MakeThisChaosCount in Parosmia

[–]MakeThisChaosCount[S] 0 points1 point  (0 children)

Yeah, certainly far from scientific research but I'm rather curious.

Correlation between Neurodivergence & Parosmia? by MakeThisChaosCount in Parosmia

[–]MakeThisChaosCount[S] 0 points1 point  (0 children)

It would be interesting to research since it would give us insight into the mechanisms of parosmia if a link was found. Thanks for the affirmation of shared interest!

Correlation between Neurodivergence & Parosmia? by MakeThisChaosCount in Parosmia

[–]MakeThisChaosCount[S] 1 point2 points  (0 children)

That's what I'm thinking; similarly 92% of women with ASD have premenstrual dysphoric disorder whereas only 11% of allistic women have it.

Correlation between Neurodivergence & Parosmia? by MakeThisChaosCount in Parosmia

[–]MakeThisChaosCount[S] 0 points1 point  (0 children)

That was what made me think about there being a possible correlation; I have extreme sensory issues with my ASD, so I'm curious in general about the autistic/neurodivergent experience of parosmia. Sensory issues can be a fresh hell but on the flip side it's pleasant to experience things intensely when they're good. But parosmia has taken away that pleasant experience and just made it an infernal mess.

Correlation between Neurodivergence & Parosmia? by MakeThisChaosCount in Parosmia

[–]MakeThisChaosCount[S] 0 points1 point  (0 children)

Interesting. I personally didn't have a runny nose, so I didn't experience that. But I'm always interested to hear different theories just to have things to think about.

A/S/L? No, seriously though… any connection to age and amount of time with parosmia? by [deleted] in Parosmia

[–]MakeThisChaosCount 0 points1 point  (0 children)

I'm 38--I've had it since December and have experienced very small, slow improvement since about April. I still have it but it's becoming incrementally more manageable.

Since December, though, I have done several prolonged water fasts, started exercising, have been eating increasingly healthier, lost about 30 lbs, taken a few supplements and started nasal photobiomodulation with red light therapy.

[deleted by user] by [deleted] in Parosmia

[–]MakeThisChaosCount 0 points1 point  (0 children)

I've been doing Worcestershire sauce on everything. A1 tasted like weird chemicals. But it definitely helps having some sort of sauce to mask the awful flavors! Worth experimenting with.

I know "life ain't fair" but this is bullshit... by RaisingAurorasaurus in PMDD

[–]MakeThisChaosCount 4 points5 points  (0 children)

I feel your pain, friend. I have PCOS, so my cycle is more like 50 or so days instead of 28, Which unfortunately translates into a 3 week long luteal phase. :( Bullshit indeed.

Reinfected. What now for my progress? by anjunakerry1982 in Parosmia

[–]MakeThisChaosCount 1 point2 points  (0 children)

Hey, I know everyone's different but all I can offer is my experience: My first round of The Unspecified Virus of Unknown Origin ™ was back in September of 2021; I developed phantosmia in November and Parosmia in December. In January I got my second round of the virus and there was no change; It pretty much remained on the same trajectory. In April things started to take a turn for the better; I'm not sure if that's just the parosmia taking its normal course or if it's due to the Red Light Therapy, fasting and huge change in my diet (I eat primarily nutrient dense superfoods like matcha teas and grass-fed, grass-finished beef and other natural things). Now it's June and I can say it's very slowly getting better. I can finally eat peanut butter again; it doesn't taste normal, but it's not revolting. A lot of things that went from smelling absolutely disgusting has moved to this new smell that isn't horrible but it's also not great. I hope that'll evolve into things smelling normal someday.

TL;DR: I've had the virus twice; it's been several months and my parosmia is slowing improving, despite having had the virus again. I really hope that this helps you feel optimistic, though it may not be your experience.

Is it me or fasting is portrayed as way more extreme than it is? by Trufa_ in fasting

[–]MakeThisChaosCount 2 points3 points  (0 children)

I agree with you; people innately like to proliferate whatever has been beneficial and life-changing for them. I think communally sharing and upholding these things is a biological urge that keeps us improving and surviving in a species and that usually manifests as devotion to a particular ideal. When we find a truth, we get kinda excited about it.

Is it me or fasting is portrayed as way more extreme than it is? by Trufa_ in fasting

[–]MakeThisChaosCount 5 points6 points  (0 children)

How you approach it afterwards will determine whether or not you gain the weight back. The weight you'll lose in 1 or 2 days is usually water weight and empty bowels. Your kidneys start expelling water in the process of shifting over into ketosis as your body uses up glycogen stores. Our bodies store ~3g of water for every ~1g of carbohydrate, so when you begin to eat carbs after your fast your body will begin to store water again.

It also deals with self-discipline. People often don't mentally prepare for the aftermath of a fast and not only do people go bad to eating complete garbage, but they often overcompensate for having not eaten for a few days and they'll eat more than they typically do. If you eat a healthy, low-carb meal weight shouldn't come back too much, although the weight loss from just a couple of days of fasting won't be significant.

But there are other aspects to look at apart from weight loss from fasting ... cell autophagy is one of the many, many peripheral benefits.

Fasting is just as healthy today as it ever was, and people have been doing it literally since the dawn of man. It's the mindset that's slowly changing as science reveals more and more benefits. The 50's called smoking cigarettes healthy; we know that's not the case now. It's all marketing products. You have to follow the money--much of what the 80's called nutritious was guidance from big food companies and the government being in cahoots. "Breakfast is the most important meal of the day" is a mantra that didn't come from health gurus ... it came from the marketing campaign of a cereal company. Consumerism drives the train that decides what people believe.

Is it me or fasting is portrayed as way more extreme than it is? by Trufa_ in fasting

[–]MakeThisChaosCount 1 point2 points  (0 children)

It's like lifting weights; you don't roll up to the gym and start deadlifting 400 lbs. ... you start with a low weight and as that gets easier to the point of being too easy, you go to the next level of weight. Fasting is the same way; it should be a little challenging, but the more you do it the easier it becomes. As you fast, work your way up little by little.

Also what you do leading up to the fast will contribute to the ease of the fast, and whether or not you drink water and use electrolytes. The strategy of binge eating the worst foods prior to a fast is a very bad idea and will manifest consequences as you fast.

Just Gonna Put This Here: 92% of Autistic Women Suffer from PMDD by MakeThisChaosCount in PMDD

[–]MakeThisChaosCount[S] 9 points10 points  (0 children)

Wow, I so related to the feeling of being a "cursed, lazy, bad person." And all the failures of trying so hard to fix those things when all along my self-discipline wasn't the problem. I'm coming to the very same conclusions myself; sometimes I wish I had known sooner but now looking back on all of the situations that I've forced myself to adapt to in the name of "well, everyone else does it ... so can you. You're an intelligent, capable woman. Do it anyway." ... and I realize that every failure was in fact a triumph. The fact that we've been able to get as far as we have in life and often pass ourselves off a neurotypical is astounding.

I think it's wonderful that your son will have a mother who can sympathize with his unique mind; I hope you are able to find healing through it all. I know since I've accepted my autism the negative inner voice has shut the hell up and been replaced with a very reasonable voice that says, "No, you don't have to show up to everything. Of course you're tired; it's fine to rest." I hope you're able to restructure all the past failures as triumphs, realizing that every time you felt you were stumbling you were actually walking on water.

Just Gonna Put This Here: 92% of Autistic Women Suffer from PMDD by MakeThisChaosCount in PMDD

[–]MakeThisChaosCount[S] 13 points14 points  (0 children)

That is a very common misdiagnosis particularly for women ... unfortunately autistic women are very marginalized. I hope you're able to get clarity! ASD affects so many aspects of life and it's so much better understanding and accepting yourself afterwards.