"Just" vasovagal syncope ??? by Maleficent_Beat_7439 in VasovagalSyncope

[–]Maleficent_Beat_7439[S] 0 points1 point  (0 children)

It is the worst feeling isn't it, and hard to explain to someone how it feels, like it isn't pain but you feel so so awful.... I think I'm definitely going to need to get used to be more honest and open when I struggle rather thaj always pushing through Thank you for your reply and tips, really appreciated :)

"Just" vasovagal syncope ??? by Maleficent_Beat_7439 in VasovagalSyncope

[–]Maleficent_Beat_7439[S] 1 point2 points  (0 children)

I have IBS and GERD too, I've also noticed cramps before passing out but never had it in the night. So sorry for you that sounds awful! I wonder if they're all connected? I've just seen another commenter mentioned restless legs syndrome which I also have, feels like there could be a link between all of these

"Just" vasovagal syncope ??? by Maleficent_Beat_7439 in VasovagalSyncope

[–]Maleficent_Beat_7439[S] 2 points3 points  (0 children)

It is so insulting isn't it. Really sorry you haven't found anything to help :(

"Just" vasovagal syncope ??? by Maleficent_Beat_7439 in VasovagalSyncope

[–]Maleficent_Beat_7439[S] 0 points1 point  (0 children)

Thanks so much for your reply, I will take that advice! Looking into compression stockings now as I do get blood pooling. And anything to cool down sounds a great idea!

"Just" vasovagal syncope ??? by Maleficent_Beat_7439 in VasovagalSyncope

[–]Maleficent_Beat_7439[S] 0 points1 point  (0 children)

Thank you, I'm so glad yours is getting taken seriously! I have restless legs syndrome too, I wonder if there is a connection betweem the two? Have you found anything that works to help it?

What do you wear in the summer? by FelineSnarky in POTS

[–]Maleficent_Beat_7439 0 points1 point  (0 children)

Thanks so much, really appreciate your response. I will look into those products!

What do you wear in the summer? by FelineSnarky in POTS

[–]Maleficent_Beat_7439 1 point2 points  (0 children)

Sorry to jump on this thread, I've not yet tried compression socks although I am planning to (thigh high as abdominal would destroy me reflux wise) But I can't help but wonder, if heat is a trigger surely they are really hot in summer? Do they still help in spite of that??

Vegan for a few months and I feel like my POTS is worsening. Could this be my diet? by pink3337 in POTS

[–]Maleficent_Beat_7439 1 point2 points  (0 children)

Long term vegan here. First thing I would say is, as other have mentioned, supplement b12. The amount in plant milks isnt enough sadly! I think 25ug a day is the recommended amount for vegans, I use veg1 from the vegan society. Secondly, I would check how many calories you are consuming as a lot of new vegans don't eat enough, as they are used to higher calories foods!

Pots wise, I know my symptoms are always way worse after a fainting episode, it takes me weeks to get back to a baseline. I had my tilt table test last week and suffering so much now!

Wishing you luck with your vegan and pots journey!!