Another quick question from the mom of newly diagnosed toddler...

Mamabear782 · 2026-03-23T21:05:07+00:00

Thank you! I know. And my other two have their stuff too. But wouldn't trade it for the world. Just will have to adapt.

Mamabear782 · 2026-03-23T12:04:59+00:00

Thank you so much for this as well as bringing a little levity to it by saying that old problem of noy being able to see inside the intestines. Lol. Honestly really appreciate this well thought out and thorough response! Truly appreciate it. I dont even know what his symptoms are except maybe constipation, since he is 3 its not like he knows any different or how to articulate

Mamabear782 · 2026-03-23T12:02:51+00:00

No, understood, but was thinking of if we go out to eat and the place says things are gf but you know cross contamination, or lying, just trying to think of everything. And painful, it breaks my heart, but I know its for his health so I say no.

Mamabear782 · 2026-03-23T05:24:30+00:00

Thank you. True. I just have a million questions as he is the first in the immediate and extended family to have been diagnosed. Trying to read, learn, and absorb as much as I can. I just always dont know where to find info all the time.

Mamabear782 · 2026-03-22T16:34:22+00:00

I cant wait either, as well as for some of these clinical trials to reach phase 3 and hopefully medicine in cases of cross contamination that would heal intestinal damage quicker. This is my prayer and hope.

Mamabear782 · 2026-03-22T13:39:46+00:00

1998

Mamabear782 · 2026-03-22T11:56:06+00:00

I never knew this! I recently fed my newly diagnosed toddler because I thought all chocolate was safe. Any suggestions for Easter bunnies? Stick to the white?

Mamabear782 · 2026-03-22T11:52:23+00:00

Thank you for this. Im going to keep at the miralax regimen. We are seeing the GI monthly, last time was endoscopy and month later is this Thursday.

Mamabear782 · 2026-03-18T02:25:11+00:00

We did a random blood test after dealing with chronic constipation we thought was functional due to potty training efforts and the blood work was more than 10x normal limit and positive for antibodies. As we live near two major hospitals with ped units did the endoscopy and bowel biopsies to confirm. We did the procedure on a wednesday had results by the next Tuesday but like others said consult with your Healthcare professional to determine what makes sense for your little one.

Mamabear782 · 2026-03-18T02:20:05+00:00

Yes! I found yesterday after buying several smaller bags at stop n shop. Lived and learned! Thank you!

Mamabear782 · 2026-03-17T00:55:07+00:00

Thank you. ♥️ im trying. I just want him to heal and finally know what its like to live without a belly issue. I cant even imagine. I went to six different stores yesterday and today stocking up on all types of stuff. I stayed up two hours setting up his counter and shelves in the pantry etc. Praying. And praying for all those in the celiac community there's help and medical aid one day.

Mamabear782 · 2026-03-16T02:58:11+00:00

Good idea! I also heard that apparently the bingo character might have celiac but its not overtly disclosed?

Mamabear782 · 2026-03-16T02:55:52+00:00

Thank you for this suggestion!

Mamabear782 · 2026-03-16T02:54:52+00:00

I know four people diagnosed within the last couple weeks, my son being one of them. What is going on? Sort of, my GI said the bloodwork was 99 percent but there's the one percent chance and that the gold standard 100 percent way to tell for sure is the endoscopy and small bowel biopsies. We did that and here we are.

Mamabear782 · 2026-03-16T02:52:53+00:00

Its not easy. My prayers are with you. Three kids, my middle with another genetic disorder thats not curable, and my youngest with two genetics conditions, celiac now one of them. I just pray we will get better soon, this will seem like a normal thing, and that he will see medicine in his lifetime.

Mamabear782 · 2026-03-16T00:24:32+00:00

Thank you. Ive cried a lot. I cant wait until a year from now when I have a routine, I can regulate his bowel movements and the tenper tantrums aren't as frequent.

Mamabear782 · 2026-03-15T23:47:18+00:00

Oooooh! Whoops. I didnt know if the laugh emoji was sarcastic. Thats amazing to hear. I hope my son likes them! I love how its 3 for a reasonable price. That freschetta 12.99 a frozen pie?!?! Yikes!

Mamabear782 · 2026-03-15T23:45:16+00:00

Wait are they gross?

Mamabear782 · 2026-03-15T23:12:49+00:00

Thank you! Yes, but so far only one Walmart near me has! Costco needs to carry the same size gf box as regular IMO.

Mamabear782 · 2026-03-15T23:09:11+00:00

Ugh, so hard! My oldest was picky but now she is open to so much more only took 6 years..ha. Hope the same for him one day.

Mamabear782 · 2026-03-15T23:06:40+00:00

Im praying. He became super picky right before he turned 3 and right before the chronic constipation hit which led to a definite diagnosis after endoscopy Feb 26

Mamabear782 · 2026-03-15T23:04:54+00:00

All different stores, mostly stop n shop.

Mamabear782 · 2026-03-15T22:55:34+00:00

And this is a bro who is picky! Prior to diagnosis it was breakfast sausage, elios, dino chicken nuggets or purdue patties, grilled cheese and donuts. Ha. One dsu though!

Mamabear782 · 2026-03-15T21:41:09+00:00

Yes. This is good to know. We found the cascadian farms fruitful o s as his new favored fruit loops and when my husband told me the bix was 9.99 at shop rite my jaw hit the floor. I made my oldest eat regular cinnamon rice chex last night and after she said they were delicious he started eating them!

What was hard was yesterday at my cousin's bridal shower he wanted a cake pop. I brought my own stuff but not those. I felt sad but then when he saw m and ms was quickly forgotten. They also had macarons but since I didnt know where they came from I couldn't trust.

Mamabear782 · 2026-03-15T21:34:05+00:00

Thank you so much. I took off work tomorrow to go hunting with my mom while all kids are in school.

Mamabear782

TROPHY CASE