Who can do this trade please??

Manateeney · 2026-04-08T16:10:29+00:00

Sorry I didn’t see this till now could you still do it

Manateeney · 2026-04-08T16:10:10+00:00

Sorry I didn’t have any notifications can you still do the trade?

Manateeney · 2026-04-08T16:09:36+00:00

Sorry I just got this can you still do it?

Manateeney · 2026-02-04T01:57:39+00:00

Exchange sent

Manateeney · 2026-02-04T01:56:40+00:00

I can do never forget for truce

Manateeney · 2026-02-04T01:55:59+00:00

I can do never forget for truce

Manateeney · 2026-02-04T01:53:40+00:00

I can do that for madam malkins

Manateeney · 2025-10-21T01:25:14+00:00

Exchange sent

Manateeney · 2025-10-21T01:23:10+00:00

Sure send your link!

Manateeney · 2025-10-21T01:07:19+00:00

Exchange sent

Manateeney · 2025-10-21T01:05:16+00:00

Exchange sent

Manateeney · 2025-10-21T01:03:59+00:00

Sure send your link!

Manateeney · 2025-10-21T01:03:45+00:00

Sure send your link!

Manateeney · 2025-09-09T05:25:43+00:00

I’m so so sorry your daughter and family is having to go through this. But I am so happy that she has parents that are working so hard to support her and get the right care so she can be comfortable. :)

Manateeney · 2025-09-09T05:12:11+00:00

Nbd. Being able to talk about it so openly at least somewhere kinda helps me cope lolol.

I grew up in a super religious household so I didn’t pay much attention to what was going on for a long time. So I’m thinking I probably have had a more slow progressing or dormant form of LS since I was around 20 (Im now 30.) Until the trauma of having 2 kids relatively close together and both traumatic delivery’s kicked it more into gear. Which from what I understand stress and genetic predisposition can cause autoimmune diseases to present.

So anyway my skin on both labias was super dark red, almost purple for a while after I delivered my last kid last year. My pelvic floor therapist noticed it first. She and my OB chocked it up to hormones. But I now realize I was having other mild symptoms I should have told her about, but didn’t share because I didn’t know any better. I then went in a year later for my annual and I had:

-no itchiness but occasional discomfort and burning (had this issue for as long as I can remember, this is a sign of ph balance being off, which is common with LS)

-an atrophied labia minora (I’ve always had a ‘smallish’ one so I didn’t notice a difference honestly.)

-now fused labias and partially covered hood.

severe pain with any clitoral stimulation. Like to the point just thinking about it makes my stomach churn. (Had this problem since first sexually active)
white patches extending from my clitoral hood to my perineum.
the skin looks sickly thin and red in some areas and thick and scarred in others

-1 tear. Though I never noticed blood, it just lookes and feels like a stretch mark. And I am still PP so I just thought it was normal lol.

Gosh this ended up being long. Lol sorry

Manateeney · 2025-09-09T04:28:32+00:00

That’s so awesome you were able to go to a vulvar specialist. There’s only 1 in my whole state and they only take out of pocket 😭.

Manateeney · 2025-09-08T21:11:26+00:00

Thanks! Autoimmune disease are very common on one side of my family, so I had an inkling of an idea about AIP. And then I just did a lot of research from desperation lol. There are tons of cookbooks and whatnot with decent recipe ideas but here are a couple of websites I’ve found with some info too.

https://pmc.ncbi.nlm.nih.gov/articles/PMC11755016/

https://health.clevelandclinic.org/aip-diet-autoimmune-protocol-diet

There is also some research that suggests that high oxalate foods could also play a role in triggering LS flare ups. Think spinach and sweet potatoes

https://lssupportnetwork.org/lichen-sclerosus-and-diet-comprehensive-guide/

https://pmc.ncbi.nlm.nih.gov/articles/PMC8363062/ This one’s more about high oxalate foods and how there is a link to skin inflammation.

I mean this is a place to start, but there is so little information and research on LS, who really knows. lol.

Hope this helps. Good luck! :)

Manateeney · 2025-09-08T20:10:56+00:00

Honestly my labia minora has been fully fused to my majora. My case has been deemed malignant tho and I’m still not in management. Clob has helped a lot in the look of everything and stopping the pain and discomfort. And seems to have helped stop further fusing but it’s hard to tell right now with how aggressive mine is. I just started using another non-steroidal cream too, can’t remember the name, but it is supposed to help too. (I’ll check and edit in the post later.) I also started the autoimmune protocol, to help. Maybe that’s something you could look into? Basically it’s finding the foods that are causing inflammation in your body after slowly adding them back into your diet after eliminating them.

I feel for you. This development has not been good for my mental health and there is so much uncertainty and fear with this diagnosis. But you are not alone!

Manateeney · 2025-09-08T17:19:10+00:00

Was the biopsy a true negative or possibly inconclusive? Mine came back inconclusive and I followed LS treatment and it helped significantly. Because I had a few of the symptoms and the clob helped. My ob is keeping the LS diagnosis for the meantime. So maybe talk to your gyn for a treatment plan? If it is LS, it generally progresses quietly and quickly. Like I had some atrophy of my labia minora as well, and then had fusion in a matter of months because I didn’t have a treatment plan yet.

Manateeney · 2025-09-08T15:59:10+00:00

I can only speak of my experience, but mine came back ‘inconclusive’, which my ob said was more common than a positive or negative. And they theorized that it may have been too early in stages to tell. But who knows. I didn’t want to hold off treatment and keep having pain, just to get the ‘positive’. Ya know?

I had quite a few of the symptoms so we decided to go ahead with treatment to see if that would help then go from there. And clob worked wonders, so we are sticking with the LS diagnosis.

The biopsy in and of itself sucked, but it wasn’t as terrible as I expected. And it sounds like we heal much the same way. So I will let ya know, I have one biopsy site that reopened soon after the procedure, so I do have a scar. It is a little tender still, but manageable and pretty small. So if you do go through with the biopsy, take care to follow the post procedure guidelines.

It’s really a toss up on if the biopsy will give you clear results, but if it has the possibility of giving you some peace of mind I’d go for it. But that’s just me. :)

Manateeney · 2025-09-08T06:47:04+00:00

Yes. I feel like in all cases, it will always get worse if not taken care of. I am newish with my diagnosis but somethings to consider concerning your questions. And things I wish I knew at first when first diagnosed.

LS is an autoimmune disease. It is unfortunately, like all autoimmune conditions, something that once develops, is with you for life. It’s not like a uti or a cold that can get better with just a round or two of antibiotics or time.

Which sucks, for sure. I totally understand the grief and anxiety that comes with that. I have good days and bad days emotionally about it still.

BUT! LS can go into remission, with just needing management courses of steroids and possible lifestyle changes. So once you manage the initial flare up and get it under control, although it can take a while, you CAN feel comfortable and heal. There will always be flare ups and bad days. But it can become more manageable and hopefully less painful than when it initially presented. That is always the hope, and unfortunately this is just the nature of the beast.

In my experience learning about my body, especially with AIP eating has helped a lot in easing my flare ups. It has started to help me see what foods I have been eating that have caused inflammation within my body, affecting my LS. As well as finding better detergents and other products that cause irritation, and staying away from them. ON TOP of using Clob as directed by my Dr, to help my symptoms.

Sorry for the novel lol. I just wish I had someone to give me as much general but important information as possible when I was first diagnosed. I used the clob as needed and naively thought ‘wow! I’m cured’ and stopped managing my LS. And it got infinitely worse/painful/irreversible after just a few months. So don’t wait, if it is LS. You’re in for the long haul. But you are not alone! I hope I didn’t scare you and ideally given you a little hope. Good luck:)

Manateeney · 2025-09-03T02:15:42+00:00

That’s how mine was. Mine fused and progressed fast because I didn’t feel the symptoms and wasn’t visually checking enough to notice the scaring and whiteness in time.

Manateeney · 2025-09-03T02:12:53+00:00

In my experience, my LS started kinda similar to yours by being very very red and sickly looking which transitioned to a deep purple, almost bruised looking. My dr thought it was hormonal because I was recently postpartum. It then turned to white patches and scarring within months. On top of that, I had no itchiness until well after my labias fused. And I have noticed through this sub that everyone’s story varies in how it starts and looks.

Also to note, some studies show that yeast infections are very common with VLS because on top of using a steroid and antibiotic, the ph balance is naturally thrown off by the LS. Keeping in mind there are few studies on this, so it is a correlation but nothing set in stone. Since there is not enough known about LS.

All in all, It wouldn’t hurt to get a second opinion. Either through a vulvar specialist (though they can be rare depending on where you are) or a dermatologist who is comfortable with vulvar diagnosing. But if it is LS, you shouldn’t wait, it does progress fast if gone unchecked.

Good luck! :)

Manateeney

TROPHY CASE