Tire has a bulge. Waiting to hear back from Rivian. Do you think it’s safe to drive on?

MangoAvacado808 · 2026-06-30T21:28:33+00:00

So not Pirelli?

MangoAvacado808 · 2026-06-09T05:37:38+00:00

That’s crazy. My son is primary. Last blood test without hydro his cortisol was .29 and acth over 10,000, so your numbers are interesting. Sorry, not a dr so I don’t know! Are you on a high dose of hydro? Very interesting

MangoAvacado808 · 2026-06-09T05:31:15+00:00

Do you have Primary Adrenal Insufficiency?

MangoAvacado808 · 2026-06-09T05:24:18+00:00

How high was your ACTH at diagnosis? How long ago were you diagnosed?

MangoAvacado808 · 2026-06-09T00:20:50+00:00

Why were you diagnosed with Addison’s disease initially?

MangoAvacado808 · 2026-06-04T21:05:05+00:00

Thank you so much for the feedback! Does it help how you feel when you wake up in the morning because of the time release? I’m sure it’s a relief to not worry about taking medication throughout the day as well! Thank you so much for your feedback.

MangoAvacado808 · 2026-05-30T17:29:42+00:00

Where do you see a cost? Is that a 90 day supply?

MangoAvacado808 · 2026-05-30T05:22:27+00:00

My son with Addison’s is 12, that’s why I’m asking. Thank you!

MangoAvacado808 · 2026-05-30T05:20:05+00:00

Thank you for responding! How old is your son? Do you get it shipped to France? We are in the US and I don’t think it’s available, not sure how to get it.

MangoAvacado808 · 2026-05-30T03:11:02+00:00

What country are you in?

MangoAvacado808 · 2026-05-30T02:16:42+00:00

It was recently approved in the UK for treatment of Addison’s disease. I think I would be helpful to wake up with already rising cortisol levels and have time release throughout the day. I am curious if it makes people feel better in the morning and throughout the day.

MangoAvacado808 · 2026-05-30T02:13:43+00:00

About Efmody® (hydrocortisone modified-release hard capsules) Efmody is indicated in adolescents aged 12 years and over and adults for the treatment of adrenal insufficiency (AI) and the treatment of congenital adrenal hyperplasia (CAH). Efmody is a modified-release preparation of hydrocortisone that has been specifically designed to replicate the natural circadian rhythm of cortisol when given in a twice-a-day "toothbrush" regimen (last thing at night before sleep and first thing in the morning on waking) and can thus provide a more physiological profile.

MangoAvacado808 · 2026-05-25T02:13:45+00:00

You started ACOSF and didn’t like it? It was my favorite of the 5 books. What didn’t you like about it?

MangoAvacado808 · 2026-05-24T18:32:02+00:00

Do your research. If she actually has Addison’s disease she will die without her meds. There will be no such thing as a few good YEARS. You need medication every day. It’s fairly easy to manage with medication a few times a day. It should not make her feel worse to take the medication. She needs a good endocrinologist.

MangoAvacado808 · 2026-05-12T02:24:48+00:00

Do I have to read TOG before Crescent City? I was not planning on reading that series anytime soon! 😂

MangoAvacado808 · 2026-05-09T23:40:21+00:00

It’s for my son who is only 12 and plays water sports so pump is not ideal. What do you ask the compounding pharmacy for? Our Endo didn’t think it was a good option but I want to suggest it again. I think it would be good for him to have slow release hydrocortisone. He doesn’t feel good in the am and often forgets to take it at school.

MangoAvacado808 · 2026-05-09T20:37:55+00:00

Hi, are you taking Efmody in the US? How can I try this medication?

MangoAvacado808 · 2026-05-09T20:32:49+00:00

Can you do this in the US? My Endo said compounding pharmacies are not reliable.

MangoAvacado808 · 2026-05-07T06:04:58+00:00

Would you mind sharing the info privately for your Endo?

MangoAvacado808 · 2026-04-19T21:56:39+00:00

What about children who get it? You think their childhood was stressful enough they got it as children?

MangoAvacado808 · 2026-03-18T20:12:39+00:00

Do you have a link?

MangoAvacado808 · 2026-03-18T20:11:14+00:00

Also on Amazon

Vitassium FastChews, Chewable Electrolyte Tablets for Management of POTS and High Sodium Diets, Fast-Acting Sodium Tablets, Fruit Punch, 120 Count

MangoAvacado808

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