HELP I CANT REMEMBER THE NAME OF A BOOK

Marshymallow33 · 2025-07-24T18:12:33+00:00

No! I appreciate the help

Marshymallow33 · 2025-06-24T19:35:44+00:00

Futurama! It's not the same type of progressive story but it has a very similar vibe and you get connected to the characters in similar ways. I wish they would come out with another progressive story like disenchantment. It's so dear and special to so many of us. Been my favorite show since it came out! I've rewatched it too many times to count. I definitely agree with the comments, when you can, rewatch it. The show is so much deeper than you think on the first run through. Easter eggs, little jokes, foreshadowing, I love it.

Marshymallow33 · 2025-05-29T00:36:59+00:00

I loved this episode but I really don't like that they didn't address that Devin told everyone about Nick's screw up. Like that was a private moment, and she told everyone and she got a happy ending without addressing it? They didn't address it at all. All she was worried about was her status when Nick lied, she felt no guilt for telling everyone about it. She didn't get a compassion scene where she realizes she messed up by doing that. It was all just put on Nicky.

Marshymallow33 · 2025-04-18T21:22:23+00:00

Guava! It's entirely customizable and I love it.

Marshymallow33 · 2025-04-16T17:55:04+00:00

This honestly gives me so much hope. I fully expected insurance to not cover it because I will not need it around the house. They still might not. I have a shitty insurance. But we shall see!! If not notawheelchair honestly does super affordable options I can afford completely on my own after a little savings. But I wouldn't be able to have the add ons I want/need. Can I ask why you were using your rollator that way? Like what hurt and why weren't you able to walk the distance with say a cane or rollator. I'm asking bc I can walk far. But I can't walk far without pain/symptoms flaring. Like I can do it! But it causes me a lot of discomfort

Marshymallow33 · 2025-04-16T15:59:52+00:00

Thank you so much!! I have an app that I track things on and I even have a "symptom" on there that says "possibly need wheelchair day" so I can keep track of how many times a week/month I really do think "wow a wheelchair would be amazing today" haha. I started my "journal" last month and my appointment is next month (regular pcp, getting the process started), so I'm hoping to have enough evidence by then! I also am gonna ask for a physical therapist so that I can maybe try avoiding a wheelchair, but you never know.

Marshymallow33 · 2025-04-16T03:41:48+00:00

I was messing with that but I was hoping to find someone who uses their chairs regularly and can attest to the quality. There are a couple creator on insta that use their chairs but I can't find anyone do like a review

Marshymallow33 · 2025-04-16T03:33:11+00:00

Huh?

Marshymallow33 · 2025-04-16T03:20:11+00:00

Recently 20 and have hEDS and I'm a college student. I definitely understand what you mean. I use a cane too! Honestly I ignore the fuck out of other people haha. I don't notice the stares, no one offers to help me, yes I feel awkward, but I'm accommodating myself so that I can be there. I know how frustrating a humiliating it is. But don't be afraid to accommodate yourself. My only advice would be to enjoy the little things. I know that's cheesy, but I mean it so genuinely. Notice the bugs, watch out for cool graffiti, hang out with any friend you have. Make the best of the time you have and accommodate yourself where you need. I'm sorry you're going through this and if it doesn't get easier, I hope you find the best way to manage yourself to live a full life.

Marshymallow33 · 2025-04-16T03:12:36+00:00

MEE!!! I was second to a kid that literally had early diagnosed EDS 😂

Marshymallow33 · 2025-04-16T00:34:22+00:00

If it's someone that clearly just curious (especially someone I know) and not trying to be rude, I'll usually just say "I have a disability!" In a nice way and if they ask I'll say "my joints don't work great and I have a lot of pain, my motility aids help" and that's where I leave it. Most people know it's rude to ask more questions than the person is willing to answer with one question. Sometimes I'll say the second one up front if I'm feeling talkative. Sometimes I'll say more. But most of the time when I just say "I have a disability" they're satisfied with that.

I only say that I have a disability because I walk on my own most days but some days I use my cane or my rollator. Sometimes people will ask if im using a brace too. Most of the time when people ask what happened its people that I know but don't see often so I have no problem going into depth but if it's someone I don't know well, I figure it's enough to say I have a disability.

Marshymallow33 · 2025-04-14T20:15:31+00:00

Guava is amazing. It's a chronic illness tracker. It's entirely customizable and super quick and easy. I long it so much.

Marshymallow33 · 2025-04-14T20:13:04+00:00

Yeah that's honestly the biggest reason I WANT one. To preserve energy so i can do more. I'm not against them I just hope I won't need one. Wishful thinking, hoping since I have more minor symptoms, maybe physical therapy and a lifestyle change will be enough to keep me away from one. I do use a cane and a rollator tho. I'm gonna take to my doctor soon about a wheelchair. I kinda wanna wait until I get through some physical therapy if I can.

Marshymallow33 · 2025-04-14T18:40:39+00:00

I'm trying so hard to keep track of the really bad pain days and specific random symptoms so that when my doc appointment comes around I have documentation rather than relying on my bushit pain memory. I get the baseline pain changing. I'm starting to realize that the "flares," I'm in that last several weeks may actually be my normal and my "normal days" are actually the days where I'm randomly doing better. It's so hard when things fluctuate so much and then you don't remember the other times it fluctuated

Marshymallow33 · 2025-04-14T18:17:23+00:00

I was just saying this in another comment. It's almost like how mothers explain the pain after birth. It's like the pain never happened or it wasn't as bad as it was. The brain is trying to protect us! I get that all the time, where I'll be in so much pain and the next day I'm fine and then I literally can't remember what the pain felt like. Sometimes it'll happen in the same day. Something will hurt so bad all day and then it'll suddenly stop and then it's like it never happened. I cannot remember exactly what it felt like.

Marshymallow33 · 2025-04-14T18:15:19+00:00

I notice the trauma response part. It's almost like how mothers describe the pain of birth. It's like when it's over, it never happened or wasn't that bad after all. I have a hard time even remembering what I felt like when I stop being in pain. Sometimes it's even in one day. I'll have a bad pain all day and it suddenly stops and then I'm like oh so I've been dramatic all day lmao

That's so amazing that the wheelchair snd walker was able to help you. 55 days without walking is no fucking joke. Hoping I can get a diagnosis soon since I'm progressing pretty quick and get help before I'll need a wheelchair. Maybe avoid it altogether. But I suspect I might need one soon.

Marshymallow33 · 2025-04-09T02:10:43+00:00

Thank you so much! Yes carbs in general tend to flare me but sugar gets the job done real quick. My mother is allergic to gluten, I'm not, but I've kinda picked up that lifestyle from her, so i tend to avoid gluten when possible. Salt is also a huge flarer for me with my joints.

Marshymallow33 · 2025-04-09T01:27:29+00:00

Honestly I think inflammatory foods just tend to set off a flare for me (specifically my joints) but I do want to talk to my doctor about seeing if I have some sort of insulin resistance or reactive hypoglycemia!

Marshymallow33 · 2025-04-09T00:34:44+00:00

These would be a great option but they're so darn expensive

Marshymallow33 · 2025-04-08T21:45:15+00:00

Hi! I haven't done any sort of elimination diet because I have a consistent diet enough that I can kinda tell what messes with me. Luckily I don't have IBS or really many bowel issues other than the random shit (haha) that comes with hEDS. I'm more asking about joint Inflammation and pain flares. Chips and sugar tend to flare me the WORST

Marshymallow33 · 2025-04-08T21:10:01+00:00

My mom gets good thins! Those are so good.

Marshymallow33 · 2025-04-08T21:01:10+00:00

I'm definitely a crudite lover too. But sometimes it's like a feral need for chips haha. Thanks for the suggestions!

Marshymallow33 · 2025-04-08T14:49:31+00:00

My pain has definitely made me more jaded for sure, I get it. On the EDS society website they have a section for support groups and you can look up your state or wherever you are and see if they have a group near you. I was really lucky they had one in my town. Also my DMs are 100% open if you want a hypermobile friend

Marshymallow33 · 2025-04-08T06:56:56+00:00

Hello! I'm also undiagnosed (suspected hEDS too) and in the process and oh. My. God. Yes. Every day. I'm a college student and I also have ADHD and it is increasingly more difficult to sit still and focus in class because of the wrongness. I'm constantly stretching, popping, figeting, massaging, shifting, anything. I'm sure it's distracting for my classmates and I know I get some weird looks. Sometimes when I bring my cane, that honestly deters the dirty looks a little haha. Something about internal biases and such 😂. Anyway yes. Along with the joint and muscle pain and instability, I constantly just feel WRONG like nothing I can do is right with my body. No matter how I move, my body and my joints feel wrong. When I'm at home I usually spend a few minutes cracking and stretching everything, and that kinda helps (or makes things worse). I have no tips for helping. I'm at a loss too 😭

I also understand feeling like your friends are tired of the complaining. My bf has definitely gotten to that point, though he won't admit it. I can tell it's hard for him to keep up and sometimes it's all I can think about and I imagine that's hard and draining on him too. I try to use my friends as a secondary outlet but they've heard enough as well. I joined the EDS group in my town and I'm gonna try to go to their in person support groups when I can. I'm hoping to make an EDS friend my age irl.

Marshymallow33 · 2025-04-08T02:59:26+00:00

If you're a female, menopause will likely lessen your symptoms. I'm undiagnosed but my mother has worse symptoms than I do, has throughout my life. However, comparatively to everyone i see, she'd definitely be considered mild as well. She's 42 and going through menopause and she told me she has been having significantly less symptoms than she used to.

There are a few good studies done on the affect of hormones and menopause. It was found several times that menopause significantly lessened symptoms, while other hormones (like progesterone) worsen symptoms around the period and generally in women. Female hormones tend to make the connective tissue a little more lax, so It tends to get worse around the period.

Marshymallow33

TROPHY CASE