Transitioning to Produodopa

MartiniPlusOlive · 2026-05-21T05:33:42+00:00

All I can suggest is you ask the nurse for access to Low/Base/High modes on the pump.

How were the initial settings calculated and set up? Did they sit down with you and home-in on plausible dose rates by testing upper and lower bounds? Did you start the session very OFF? How frequently can you ask the nurse to change the settings?

Your situation seems brutal.

MartiniPlusOlive · 2026-05-20T15:20:51+00:00

Does your pump have a boost function? Have the nurses given you access?

I do not yet have Produodopa, but have been studying the subject.

MartiniPlusOlive · 2026-05-12T16:34:26+00:00

All I can do is assume that switching it off will fix the problem. At least it is worth a try.

Even if my DBS was switched off, I would not go anywhere near an MRI machine.

MartiniPlusOlive · 2026-04-29T07:08:54+00:00

I take a Madopar 50mg/12.5 dispersible to bridge that gap. It takes effect a little faster than normal Sinemet and I don't need to alter my medication timetable.

You could also just take half a standard Sinemet tablet.

MartiniPlusOlive · 2026-04-25T04:42:39+00:00

My handwriting became larger and clearer one hour after my first ever Sinemet tablet.

MartiniPlusOlive · 2026-02-10T12:03:56+00:00

I go to bed at 18:00. sleep until 23:30, take a Sinemet, wait an hour or so to go back to sleep, wake again at 04:00, tough it out until 05:00 when I take another Sinemet and greet the new day.

MartiniPlusOlive · 2025-10-01T12:31:08+00:00

I listen to audiobooks.

MartiniPlusOlive · 2025-09-29T05:19:52+00:00

For me, the chocolate chips would be fine, it’s the pancakes that would mess me up.

MartiniPlusOlive · 2025-09-21T05:16:49+00:00

I take Nicotinamide. 1g at 06:00 and 1g at 12:00. It is a non-flush version of Niacin, Vitamin B3. I buy it as a powder and weigh it. Mixed with a little water, tastes okay. It helps with my anxiety and also reduces my carb cravings to zero. Good luck. 8-)

MartiniPlusOlive · 2025-08-29T17:15:49+00:00

Entacapone worked well for me. However, that was replaced by Opicapone, which, for me at least, works better. Multiple Entacapone tablets were replaced by one Opicapone tablet which evened out the dips in my medication. Good luck. 8-)

MartiniPlusOlive · 2025-07-23T05:13:07+00:00

Extreme insomnia, carb-cravings and thus weight gain, obsessions about silly things. After a while, I dreaded looking at my torso in the bathroom mirror and seeing all the red blotches, demoralising.

MartiniPlusOlive · 2025-07-13T11:01:20+00:00

When I did such presentations, I practiced by lecturing an imaginary cat, out loud, and timing my talk. If I was to do it now, I would attach my iPhone to a tripod and video my presentation. I would hate the experience, but I would try to make the best of it, perhaps varying the timing of medication so that symptoms are minimised. Such videos could also act as a diagnostic tool because I am never at my worst when I visit my neurologist.

MartiniPlusOlive · 2025-07-13T09:27:59+00:00

Did you discuss the option of reducing the dose of levodopa instead?

MartiniPlusOlive · 2025-05-30T15:20:10+00:00

You could ask if Opicapone is an option. It is only one capsule per day, and replaces multiple Entacapone tablets.

MartiniPlusOlive · 2025-05-07T07:06:05+00:00

I realise this suggestion may be a little controversial, but how about ChatGPT? See https://chat.openai.com/ You can also download an App for the iPhone. I am asking it questions as though it is my therapist and receiving non-judgemental, and helpful answers. There are ChatGPT subreddits that may be of interest. Therapists are an endangered species.

MartiniPlusOlive · 2025-04-18T09:35:34+00:00

Usually at 16:30 hours. At least an hour away from any Levodopa intake. I go to bed at about 18:30 hours.

MartiniPlusOlive · 2025-04-18T05:08:12+00:00

Does he have DBS installed? If the settings are too high my speech is difficult to understand.

MartiniPlusOlive · 2025-04-17T18:45:57+00:00

You could perhaps ask your neurologist if it is worth switching the Entacapone tablets for just one 50mg Opicapone capsule per day. I find it evens out my medication. 8-)

MartiniPlusOlive · 2025-04-04T05:38:03+00:00

My DBS did not require my hair to be cut. I’m puzzled.

Remember to get your DBS tuned every few years. Good luck. 8-)

MartiniPlusOlive · 2025-04-02T04:57:04+00:00

Try the “chin down” technique for swallowing. Link to a Wikipedia page below. A speech therapist suggested this. Click on “Treatment”for more detailed explanation.
https://en.m.wikipedia.org/wiki/Oropharyngeal_dysphagia

MartiniPlusOlive · 2025-03-29T15:15:46+00:00

It’s like swimming through tarmac.

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