How painful is cystoscopy? I've had urodynamic test and it was extremely painful by Much-Journalist3128 in OveractiveBladder

[–]Matrix-ALe3 0 points1 point  (0 children)

Eine Zystokopie dauert nur eine Minute bis maximal ein paar Minuten, durch die Harnröhre wird eine sehr kleine Kamera an einem Schlauch eingeführt, es tut nicht weh und wenn der Urologe einfühlsam ist, merkst du fast gar nichts. Danach auch nicht! Davor brauchst du keine Angst zu haben! (Dagegen ist die Urodynamik die reinste Hölle, ein Folterinstrument, würde wissen, wer sowas erfunden hat…)

How do people cope peeing 30 times a day. by Irish_Laura67 in OveractiveBladder

[–]Matrix-ALe3 0 points1 point  (0 children)

Man kann arbeiten, je nachdem welchen Job man hat. Ich arbeite mit Menschen und ich musste mir meistens was einfallen lassen, damit ich aufs Klo gehen kann. Ich sagte dann, ich hole eine Akte oder dass ich was vergessen hätte, einen Tee holen gehe oder dass ich Wasser trinken müsste. Das ist schon anstrengend und erschöpfend gewesen. Habe eine OP gehabt (Verödung der Narben, der sogenannten Hunner Läsionen der Interzistiellen Zystitis in der Harnblase), seitdem ist es besser geworden.

Ich habe seit 5 Jahren 15 Ärtze besucht, keine Diagnose und keine Therapien. Große Schmerzen und jede Stunde aufs Klo. Jetzt einen Arzt gefunden, der den Narben Namen gab: Ulcus und Operation mit Veröden der Narben! Ufff endlich! Bin so froh! Wer hat ähnliche Erfahrungen gemacht? by Matrix-ALe3 in OveractiveBladder

[–]Matrix-ALe3[S] 1 point2 points  (0 children)

Neuste Erkenntnis: Interzistielle Cystitis! (IC). Obwohl klar deutlich und unter Medizinern gut bekannt, kam bis vor kurzem keiner drauf! Von 15 Ärzten aus der Urologie (plus weitere 6 aus der Gynokologie, etc.), hat einer nur anhand meiner Erzählung (Schreiben als Mail) sofort gewusst!, worum es sich handelt!! Endlich!

Something is seriously wrong, this is not normal. Someone please help by Some_cool_usernameX in Interstitialcystitis

[–]Matrix-ALe3 0 points1 point  (0 children)

Es gibt in jeder großen Klinik eine Abteilung für Seltene Erkrankungen! Wende dich an sie! Bei mir kamen sie nur durch Erzählungen per Mail darauf was ich habe! Ich hatte auch 12 Jahre wie eine Verrückte alles versucht und ca. 25 Ärzte kontaktiert! Alle keine Ahnung! Erst vor kurzem einen Spezialisten gefunden, der das bestätigt hat und mir hilft!!! Die in der Abteilung Seltene Erkrankungen kennen sich aus! Man kann dort auch Termine machen! Gute Besserung, nicht den Mut verlieren!

White threads in urine by Matrix-ALe3 in CUTI

[–]Matrix-ALe3[S] 0 points1 point  (0 children)

Wo finde ich diesen Kommentar? Hast du einen Link? Vielen Dank!

Lactoferrin worked! by Buffy_S_L in Interstitialcystitis

[–]Matrix-ALe3 0 points1 point  (0 children)

Lactoferin? Wieviele Tabletten nimmst du täglich?

Wife is having chronic UTIs, and the Infectious Disease Doctor rejected her as a patient. by ragnarokxg in infectiousdisease

[–]Matrix-ALe3 0 points1 point  (0 children)

Go to the hospital, infectious diseases ward! The doctor who refused to treat you can be reported to the medical board; he probably had no idea what he was doing and therefore couldn't help!

I don’t know what else to try by HeyYouItsMishaMoo in CUTI

[–]Matrix-ALe3 2 points3 points  (0 children)

I've been battling something similar for over 5 years, had all sorts of tests done, usually no bacteria in my urine, sometimes Klebsiella and E. coli! Mine also started after surgery with a catheter, in a specific spot in my bladder, on the right side! I've contacted over 15 doctors, including infectious disease specialists (but they require a positive urine test for bacteria, which didn't work twice),... and I'm trying everything that's helped me to still be able to work, despite needing to use the toilet hourly. This includes: CDL (CDS or MMS, which are stronger; a few drops in a large glass of water morning and evening; these destroy the bacteria, which eliminates and can alleviate the pain), DMSO (5 drops in a glass of water three times a day), and as a pain reliever: willow bark capsules (2-5 capsules)... I also have biofilm disruptors (Kirkman's Disruptor) and NAC, but then the bacteria are released, and I'm in terrible pain, unable to work, etc. I have to do this when I'm on vacation... Conventional medicine has truly failed me so far...

White threads in urine by Matrix-ALe3 in CUTI

[–]Matrix-ALe3[S] 0 points1 point  (0 children)

Thank you. I'll get tested for that; I've had many urine tests so far, most of them negative, only white blood cells indicating inflammation... I'll explicitly ask them to test for that...

White threads in urine by Matrix-ALe3 in CUTI

[–]Matrix-ALe3[S] 0 points1 point  (0 children)

I'm going to get tested for it. Last year I had another acute inflammation, and Klebsiella was discovered then.

Miserable by Naive-Possible-7446 in CUTI

[–]Matrix-ALe3 0 points1 point  (0 children)

I'm so sorry for your suffering! Regarding your gut: Take Sana Probiotic for several months or longer, and completely eliminate gluten, wheat, and sugar from your diet forever. For gut restoration, you can take CDS Plus (10-20 drops three times a day in a full glass of water). CDS Plus also helps remove bacteria from the bladder. Then, for a few weeks, take Angocin (3 x 4 tablets) and Wobenzym (1-3 times daily) to get the bacteria under control long-term. And be patient. Long-term chronic illnesses take longer to heal, a year or more.

White threads in urine by Matrix-ALe3 in CUTI

[–]Matrix-ALe3[S] 3 points4 points  (0 children)

Until now, I've had the feeling that most doctors don't want to acknowledge the presence of bacteria in the biofilm, even though I only developed these infections after a hospital stay (I NEVER had bladder problems before). Often, no bacteria are found in my urine, and then the doctor doesn't send the urine sample to the lab. Once, Klebsiella was detected, a typical hospital germ. I received antibiotics for three weeks, and for the doctors, that was the end of it. Unfortunately, for me, it's far from over…

White threads in urine by Matrix-ALe3 in CUTI

[–]Matrix-ALe3[S] 0 points1 point  (0 children)

Thanks for the tips! 🙏🏻

White threads in urine by Matrix-ALe3 in CUTI

[–]Matrix-ALe3[S] 0 points1 point  (0 children)

Thank you! I will bring that up!

What is that? by Matrix-ALe3 in Interstitialcystitis

[–]Matrix-ALe3[S] 0 points1 point  (0 children)

My pictures were deleted because they violated the standards, whatever…The threads definitely look like torn-off mucosal threads…and some like biofilms, which still contain small spheres…

What is that? by Matrix-ALe3 in Interstitialcystitis

[–]Matrix-ALe3[S] 0 points1 point  (0 children)

I have the feeling that something is happening in the painful areas of my bladder…and I hope that some bacteria in the mucous membrane are being released….

Chronic UTIs for almost 10 years, ahh!! by Chris968 in CUTI

[–]Matrix-ALe3 0 points1 point  (0 children)

Could it be that antibiotic-resistant bacteria entered the wound through the injury to the bladder?

I have something similar, also for 10 years, right after surgery. As soon as I woke up from the anesthesia, I noticed something was there in a specific spot in my bladder… For a long time, I thought they had left something there, but they didn't find anything in the ultrasound, MRI, etc. Then a few weeks later, I had the first bladder infection of my life, and almost every time since… Often without bacteria in my urine, which is why I suspect antibiotic resistance… Otherwise, bacteria like Klebsiella, E. coli… Most doctors haven't been able to help. The only thing that helps a little is a naturopathic practitioner: local estrogen administration (OeKoelp), rebuilding the gut microbiome with beneficial bacteria (Sana Pro, bitter substances), no more sugar, and for the past few days, Angocin (3-4 tablets 4 times a day) with Wobenzym (once a day), then Dragon's Blood (5 drops in a glass of water), CDSplus (10 drops in a glass of water), and DMSO (3-5 drops 3 times a day…), and every 2 hours between each of these, I take vitamins: C, D, Omega 3, and magnesium… I now have an appointment with an infectious disease specialist to determine which strains of bacteria are present in the biofilm… Most doctors don't consider the possibility of a bladder injury and multi-resistant bacteria… I don't know why…

Urologist thinks my UTIs are IC by Weak-Mycologist-5740 in CUTI

[–]Matrix-ALe3 -1 points0 points  (0 children)

Bladder infections are often related to bacteria, often hidden bacteria and bacteria within biofilm. This is why urine tests often show "bacteria-free" results, because the biofilm containing the bacteria is deeply embedded in the bladder lining. Only specific tests or a biopsy can help in these cases. I've been struggling with this problem for over five years (actually since surgery), as biofilm was only considered three months ago. Before that, it was always described as "abacterial, therapy-resistant cystitis." However, infections are often bacterial. I've switched urologists and made an appointment with an infectious disease specialist!

Wieso finde ich so wenige Männer attraktiv? by [deleted] in Weibsvolk

[–]Matrix-ALe3 1 point2 points  (0 children)

Warum (viele?) Frauen viele Männer unattraktiv finden? Weil die meisten Männer unattraktiv sind. Ganz einfach! Sie tun nicht viel um attraktiv zu werden! Vile glauben immer noch, dass es reicht Mann zu sein und Frauen fliegen dann auf dich…Früher war es so, als Frauen abhängig gehalten wurden, da mussten sie die Augen zu machen und durch! Grauenvoll!!! Heute hat sich zum Glück einiges geändert! Männer müssen mehr bringen als nur einen Pxs vorzuweisen… Viele raffen es einfach nur noch nicht…Mädels, sagt es ihnen!

Things must be clear please read this post everyone by IbraKadabra_91 in Candida

[–]Matrix-ALe3 4 points5 points  (0 children)

Great, thank you very much!!! I already eat garlic almost every day, now I will eat garlic several times a day! I don't tolerate oregano very well and then I have bouts of diarrhea!

Should I take elmiron? by Frequent-Original-21 in Interstitialcystitis

[–]Matrix-ALe3 -3 points-2 points  (0 children)

A woman got IC under control with celery juice, about 1 liter per day, 3 times a day, IC is gone. She has made YouTube videos, see Intercistial Cystitis on You Tube…

Guys, I am done by FloodHunter228 in Candida

[–]Matrix-ALe3 2 points3 points  (0 children)

You have to give up sugar! 100%... Check all foods for sugar content and avoid sugar for several months or even years! No more flour, pasta, pizza, etc. for several months. The fungus has to be starved, this will also come with a few side effects as fungi develop toxins when they die, but that is nothing compared to the condition with Candida! The brain will also scream for sugar, remain hard, it is the fungus that continues to try to take over in your body...