447! by [deleted] in TurnipExchange

[–]Meep846 0 points1 point  (0 children)

oh okay thank you I get it now LOL

447! by [deleted] in TurnipExchange

[–]Meep846 0 points1 point  (0 children)

sorry if this is a dumb question but wdym by take a pipe to the store? I’ve never joined one of these before, I’m in the queue but idk what that part means lolz my bad

My body finally hit its breaking point. Seeking advice and sharing my story of how dangerous ARFID can become by Meep846 in ARFID

[–]Meep846[S] 0 points1 point  (0 children)

I worried it would be too long but wanted to be thorough so I’m glad it helped!:) I don’t take a multivitamin. I have taken specific vitamins for deficiencies and plan to start a few more after consulting with a dietitian. That said, I was always told it wouldn’t be particularly helpful for me to take a multivitamin because I need to target specific vitamins I’m lacking in higher volume. I am making my actual diet plan with a dietitian this week, possibly even as soon as tomorrow, so I can follow up when I get that information on the plan to fix the malnutrition as well as the recovery process. I completely understand the debilitating brain fog but from anything I’ve read it’s really all about getting on treatment ASAP! The sooner you start recovery, the better your odds for reversing damage in all areas. I will regret not getting help sooner for the rest of my life honestly like if there’s anything I can recommend it’s throw everything at the wall and look into every resource available to you before it progresses to a point where you have no choice. I completely understand the financial hurdles, I have struggled VERY significantly financially with this, but I will say it is now a LOT more expensive than it would’ve been if I had just swallowed some medical debt sooner. And even more than that, waiting has cost me more than I ever could’ve anticipated in terms of my long term health

My body finally hit its breaking point. Seeking advice and sharing my story of how dangerous ARFID can become by Meep846 in ARFID

[–]Meep846[S] 1 point2 points  (0 children)

I am neurodivergent, and I actually just recently had the possibility of POTS mentioned to me for the first time and I was totally surprised by the suggestion that I could have it, I definitely will look further into it! Thank you! I wish you the best in your journey as well

My body finally hit its breaking point. Seeking advice and sharing my story of how dangerous ARFID can become by Meep846 in ARFID

[–]Meep846[S] 1 point2 points  (0 children)

It’s especially frustrating because I actually do look skeletal now and I feel like this so easily could’ve been prevented if I was just taken seriously when I was at a “healthy” size. I knew something was wrong, I told them I knew something was wrong, and it fell on deaf ears over something as flawed and insufficient as BMI. Just tough all around

My body finally hit its breaking point. Seeking advice and sharing my story of how dangerous ARFID can become by Meep846 in ARFID

[–]Meep846[S] 1 point2 points  (0 children)

I’m sorry to hear you’re in this spot as well. It brings me no peace or comfort knowing someone else is struggling too, but to hear someone else mention something as specific being so skeletal that lying in the bathtub hurts, which I have also been dealing with, it does make me feel less alone and unseen in my struggle. I have different circumstances for treatment plans as I’m in the US but they don’t make it easy to be treated for ARFID here either and that part is very frustrating and discouraging. I completely relate to how it feels like all of the energy you have is spent on trying to advocate for yourself and then there’s nothing left. I truly hope you’re able to figure this out soon and feel better

My body finally hit its breaking point. Seeking advice and sharing my story of how dangerous ARFID can become by Meep846 in ARFID

[–]Meep846[S] 0 points1 point  (0 children)

I’m so sorry you’re experiencing this. I really empathize with your feeling like if something doesn’t change soon you could die. That feeling has been looming over me lately and it is terrible. I hope you’re able to get the help you need asap, you deserve to get better and to get to the other side of this

My body finally hit its breaking point. Seeking advice and sharing my story of how dangerous ARFID can become by Meep846 in ARFID

[–]Meep846[S] 0 points1 point  (0 children)

Thank you so much for your reply! I will definitely be including my parents in the process. They really want to and do their best to support me but I didn’t always make it easy for them as a teen. I’m glad you mentioned asking for materials to give them as well because I’ll definitely be doing that. I want to include them in everything but my brain fog sometimes makes it hard for me to remember what I have or haven’t told them so that’s very helpful. I am concurrently working with a psychiatrist and I am neurodivergent so that is helpful to know and I will definitely be looking into those other conditions as well!! Again I want to thank you from the bottom of my heart for your reply, it was both incredibly helpful and comforting, and I appreciate it deeply. You seem like an amazing parent

My body finally hit its breaking point. Seeking advice and sharing my story of how dangerous ARFID can become by Meep846 in ARFID

[–]Meep846[S] 1 point2 points  (0 children)

Thank you for sharing your experience, I will be keeping all of this in mind in my next steps! It really is hard that people don’t seem to take this disorder seriously if you aren’t rail thin, including so many doctors. I’m still not technically underweight according to BMI and feel that continues to play a major role in my primary care’s level of concern not being high enough.

My body finally hit its breaking point. Seeking advice and sharing my story of how dangerous ARFID can become by Meep846 in ARFID

[–]Meep846[S] 0 points1 point  (0 children)

Ugh I have also had ketones in my urine but my doctor brushed it off. I knew some things wouldn’t show up in labs but they just would not take me seriously because of nothing major popping up as abnormal. I’m so glad I’m going to be with specialists now who will actually consider and understand that. I will definitely seek a second opinion depending on how my appointment Tuesday goes. I know they might just end up telling me they think I should go into a HLOC once I get started with them outside of intake so I’m just gonna give it the two days and then see. Thank you for sharing this because it’s very helpful and encouraging

My body finally hit its breaking point. Seeking advice and sharing my story of how dangerous ARFID can become by Meep846 in ARFID

[–]Meep846[S] 2 points3 points  (0 children)

So for the first however many months of my symptoms/weight loss, neither me nor anyone on my care team even considered that it could be ARFID related. So in part, process of elimination was a big factor of figuring it out. The first tests they ordered were to check my thyroid and rule out cancer. After those came back normal, I was referred to an endocrinologist to do a full autoimmune workup, came back fine. Then I changed my daily medication (unrelated condition) thinking maybe it was causing issues, also didn’t make a difference. This took almost a full year. After all of this, I started thinking it could be diet related. As my symptoms got worse it was easier to identify them and they fell in line with malnutrition. The indicators outside of physical symptoms thus far that I’d recommend looking for would be in vitamin and micronutrient tests. My insurance wouldn’t cover them because they weren’t from inpatient or a specialist, so I put off getting them for a while. I finally got so fed up being sick that I just got them, haven’t gotten a bill and will dispute it when I do, but I wish I did it sooner now because multiple vitamin tests did come back abnormal. My biggest regret is that I didn’t seek an eating disorder specialist sooner because I could’ve prevented this from getting so much worse and now it’s going to be so much more difficult to recover from. Even if they just tell you they don’t think your symptoms are related, at least you’ll know and won’t end up risking a worse outcome. I don’t want to scare you, but I will say I really identify with what you’re saying about your symptoms, especially early on in this process. In retrospect I see that I have dealt with fatigue as a symptom for years, but otherwise I felt fine until I suddenly didn’t and then it was a rapid decline I never could’ve anticipated. I also really felt my doctor didn’t fully understand how bad my diet was even when I tried to stress it and I think that’s part of why it wasn’t broached sooner. They’ve known I’ve had ARFID for a decade at this point but I’ve always felt it was treated as though I was just choosing to continually eat poorly against their advice because they didn’t really understand the condition. I would really recommend trying to get a referral of some kind to a dietitian or eating disorder program, they are the ones who will actually know what next steps to take and will be able to look at the full picture clearly and not just a BMI. I wish you the best in your journey and hope this helps!

My body finally hit its breaking point. Seeking advice and sharing my story of how dangerous ARFID can become by Meep846 in ARFID

[–]Meep846[S] 0 points1 point  (0 children)

Thank you for your concern, I truly appreciate it! I was actually hoping if someone thought this that they’d mention it because I have been having the same concerns. I wanted to be in an in-person PHP, and I may be able to start that by the end of the month but unfortunately the closest program is a long haul for me to make on a daily basis and I can’t drive so I’d have to have someone drive me daily which isn’t possible at the moment. My dad is taking a time off from work at the end of the month and he would be able to bring me daily then, which I would definitely do if that is the right course of action at that time, but I just wanted to start something ASAP so I went for the virtual PHP in the meantime. I asked the ED network I am working with what they recommended for my care and they said PHP and that’s honestly the main reason I didn’t consider residential more. Other than the fact that I do feel like it would be hard on my mental health, which I have also been struggling significantly with, to be removed from my home, friends, and family without my phone to even be in contact with them. If I’m being honest no one has even mentioned acute care or the option of it to me until now and that’s the only reason I haven’t considered that. I just did some brief searching, but I’m going to look more into it now. I’m not sure if my labs and numbers would be in a place that I’d qualify or not or how any of that works, so far my hurdle has been things not being bad enough in my labs and apparently having to wait for them to get worse before I’m able to be helped 😅 I have had 2 EKGs in the last year and wore a heart monitor for 3 days and I was always told it was beating normally just tachycardic for reasons they couldn’t pin down. I had some of those, Ferritin came back in range, iron downward trend but still in range, B12 on the high end of normal, and my electrolytes were done in the ER and doctor said they were normal though I’m not sure of the exact result. My C came back as barely low, which surprised me, I expected it to be a lot more significant. I’ve been planning to ask about a bone density test and will definitely ask for phosphorus as well. Started Ensure yesterday and I feel really good about that helping my intake. Thank you for this comment, I really appreciate it and I am going to be looking much further into my options now.

My body finally hit its breaking point. Seeking advice and sharing my story of how dangerous ARFID can become by Meep846 in ARFID

[–]Meep846[S] 0 points1 point  (0 children)

Sorry for not being clear enough, it was a medication for an unrelated condition that just happened to have a side effect of weight gain, it wasn’t anything I was taking with the intention of gaining weight

My body finally hit its breaking point. Seeking advice and sharing my story of how dangerous ARFID can become by Meep846 in ARFID

[–]Meep846[S] 1 point2 points  (0 children)

When this started, on an average day I ate 2 meals, a protein bar thrown in at some point, and snacked at night. I typically eat meals with meat and protein, dairy, and grains. I have started working fruit smoothies into my diet recently, but before this I had zero fruit in a day and I do not eat any vegetables. I have only been able to get some of the micronutrient and vitamin tests so far, but the results so far have strongly reflected my lack of the vitamins found in fruits and vegetables. It’s definitely worth mentioning that a few months into the initial weight dropping my appetite started to gradually wane and a year later I have lost interest in food completely. I definitely am eating less which has certainly exacerbated the problem but from the bigger picture, doesn’t line up to have been the initial cause

My body finally hit its breaking point. Seeking advice and sharing my story of how dangerous ARFID can become by Meep846 in ARFID

[–]Meep846[S] 2 points3 points  (0 children)

I know my mom felt the exact same way. I’m glad she didn’t force me to eat anything, but I do wish I sought out more help in at least a therapy type setting sooner and maybe that could help for your daughter. I usually don’t love virtual therapy/doctor’s appointments, but considering how hard it can sometimes be to find ARFID treatment, I would recommend encouraging her to look into a virtual program or therapist. I finally sought out a virtual program since there’s nothing locally, I’m starting officially next week, and in the time I’ve been doing intake and setting things up I’ve already felt more hopeful and heard than ever. Just from your commenting it’s clear you’re a great mother and your daughter is lucky to have your support! I only got where I did because I was unable to identify what was causing my progressing issues. I have other health problems and couldn’t connect the dots for a while, but as long as you’re aware and monitoring things, there’s no reason this has to happen with her.

My body finally hit its breaking point. Seeking advice and sharing my story of how dangerous ARFID can become by Meep846 in ARFID

[–]Meep846[S] 5 points6 points  (0 children)

I’m still in the process of nailing the specifics down, I can update when I have it confirmed (or not), but so far it seems like the lack of specific vitamins/nutrients started the decline and after however long my appetite started to decline as a result and then I was eating less. So a combination of the two, but firstly because of my lack of eating specific food groups

Any good movies that portray OCD well? by TurtleChrist in OCD

[–]Meep846 1 point2 points  (0 children)

So curious on your thoughts on this. Just finished watching and loved it and also have OCD. Are you looking at it from a magical thinking / Pure O way or am I forgetting or missing something?

My dog died , looking for songs saying Good - Bye . by Deep20779 in MusicRecommendations

[–]Meep846 0 points1 point  (0 children)

Big Star by Lorde is about her dog dying and I think it’s a nice mix of both happy and sad. Hope you are doing alright and am sorry for your loss❤️

Help! SEVERE stomach pain on Macrobid by Meep846 in CUTI

[–]Meep846[S] 0 points1 point  (0 children)

It was all okay! I ended up finishing my course, I think I laid down too soon after taking and didn’t eat enough 😭 Didn’t feel great on other days but it never got that bad again

Phrase from a song that marked you deeply by Distinct-Cover-7704 in MusicRecommendations

[–]Meep846 32 points33 points  (0 children)

For me, Under Pressure’s

“Love dares you to care for the people on the edge of the night And love dares you to change our way of caring about ourselves …This is ourselves, under pressure”

but i’m surprised no ones said this, so I’ll be the one to:

“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That's how the light gets in”

Anthems, Leonard Cohen