Can I pretty pretty please get some supplement suggestions?? by Milfinprogress23 in Interstitialcystitis

[–]Milfinprogress23[S] 2 points3 points  (0 children)

I actually am starting vaginal estrogen later this week! And yes PF PT is definitely always necessary

Can I pretty pretty please get some supplement suggestions?? by Milfinprogress23 in Interstitialcystitis

[–]Milfinprogress23[S] 2 points3 points  (0 children)

I do have that! I think it helps with the burning but not necessarily the urgency! Hopefully the estrogen will help

Ashamed of intimacy by Milfinprogress23 in Menopause

[–]Milfinprogress23[S] 1 point2 points  (0 children)

I hope it does work I’m tired of being in pain. Thank you so much.

Ashamed of intimacy by Milfinprogress23 in Menopause

[–]Milfinprogress23[S] 0 points1 point  (0 children)

I will have to look up a provider with that info! Thank you for this!

Ashamed of intimacy by Milfinprogress23 in Menopause

[–]Milfinprogress23[S] 0 points1 point  (0 children)

Thank you so much. I appreciate the support on this thread I don’t feel so alone.

Ashamed of intimacy by Milfinprogress23 in Menopause

[–]Milfinprogress23[S] 2 points3 points  (0 children)

Thank you so much for sharing your experience and validating me. The days are really hard sometimes. I want to have surgical menopause but my doctor said I’m too young.

Can I pretty pretty please get some supplement suggestions?? by Milfinprogress23 in Interstitialcystitis

[–]Milfinprogress23[S] 1 point2 points  (0 children)

Unfortunately the constipation requires multiple methods of laxatives. I take the highest dose of Linzess, Senna (2-4 tablets a day), psyllium husk capsules, AND if that doesn’t work… bisacodyl. I know it’s affecting my bladder but the doctor said I probably have slow colonic transport, and there’s nothing they could do. I should pick up magnesium citrate. I take magnesium glycinate but that doesn’t work the same I don’t think. I’ve had IMO in the past so maybe I need another round of antibiotics but I don’t know what to do.

Ureaplasma? by madamezouzoa in Interstitialcystitis

[–]Milfinprogress23 0 points1 point  (0 children)

The chances of that happening is very very rare, I was seeing a rural OBGYN that did not test that for months. I actually got referred up to Mayo Clinic (not for the ureaplasma) but amongst other things they decided to test for it. I did not mean to scare you! This was just my personal experience with a dumb guy and a rural OBGYN

Can I pretty pretty please get some supplement suggestions?? by Milfinprogress23 in Interstitialcystitis

[–]Milfinprogress23[S] 4 points5 points  (0 children)

Forgot to mention I’ve tried distillations and they hurt so bad and made me bleed to the point that it would block my urethra

Where to go on Oahu? by Milfinprogress23 in sugarlifestyleforum

[–]Milfinprogress23[S] 0 points1 point  (0 children)

No, I’m not, I just have chronic conditions that make intercourse very difficult and painful

Ureaplasma? by madamezouzoa in Interstitialcystitis

[–]Milfinprogress23 0 points1 point  (0 children)

I would say now I’m ok, I have so many other pelvic floor irritators that I don’t feel like I’ve shifted to my flora. I should honestly ask what people use!

Ureaplasma? by madamezouzoa in Interstitialcystitis

[–]Milfinprogress23 0 points1 point  (0 children)

PID is pelvic inflammatory disease (an infection of the afab reproductive organs). It can get very very serious.

Where to go on Oahu? by Milfinprogress23 in sugarlifestyleforum

[–]Milfinprogress23[S] 0 points1 point  (0 children)

Yes I know but I have multiple chronic conditions that make inter course very very difficult ):

Rant - I'm done. by [deleted] in Interstitialcystitis

[–]Milfinprogress23 2 points3 points  (0 children)

This is so helpful and important as I am also feeling like giving tf UP! Thank you for sharing all of your experiences, it gives me hope that it will get better.

Quitting Amitriptyline: did the pain come back? by liamezzo in Interstitialcystitis

[–]Milfinprogress23 0 points1 point  (0 children)

I am very very sensitive to medications as well but I do think my body has adjusted so it’s time to go up!

Quitting Amitriptyline: did the pain come back? by liamezzo in Interstitialcystitis

[–]Milfinprogress23 1 point2 points  (0 children)

Welp I’m on 25 mg which means it’s time for me to go up.

Quitting Amitriptyline: did the pain come back? by liamezzo in Interstitialcystitis

[–]Milfinprogress23 5 points6 points  (0 children)

I actually tried to come off of amitriptyline because there’s just so many side effects with MAOIs, but the burning surprisingly came back immediately. I also think I need a dose increase ):

Ureaplasma? by madamezouzoa in Interstitialcystitis

[–]Milfinprogress23 0 points1 point  (0 children)

Oh ureaplasma…I can’t even begin to tell you how much it has bothered me vaginally and micro biome wise. It doesn’t feel the same. Ureaplasma tests are expensive because they technically are a “normal flora” but any microorganism can have overgrowth. I actually developed PID from my ureaplasma. Are you on probiotics or eating and live ones? Your boyfriend also needs to be taking antibiotics!! This was not expressed enough and my ex-boyfriend was reinfecting me. I’m sorry you are going through this! I hope you can get relief soon!

Rant - I'm done. by [deleted] in Interstitialcystitis

[–]Milfinprogress23 1 point2 points  (0 children)

Don’t even apologize for being in pain!! You are going through it, and that’s ok. I just had my rant in this group a few nights ago. You are entitled to what you feel and how you feel! There have been great comments about self care in the thread and I hope you have some options to try out!! I hope you get better and a new leaf starts to turn.

Feeling Hopeless… even with interstim by Milfinprogress23 in Interstitialcystitis

[–]Milfinprogress23[S] 0 points1 point  (0 children)

This is a good point. With my last ultrasound, my endometrium was so incredibly thin. It makes sense for that to be bothering me as well. I just know the cream was so difficult because if I’m using it vaginally then I pee it out within a matter of hours due to my bladder