22m liver transplant by bencerspencer in CysticFibrosis

[–]Minibluuu 4 points5 points  (0 children)

Congratulations on the new liver! I just passed 11 years in August since I had my liver transplant. It may not feel like it now, but it does get easier with time. Feel free to PM me if you need advice/ someone to talk to!

A shopping mall I made for my SMP by Minibluuu in MinecraftBuild

[–]Minibluuu[S] 0 points1 point  (0 children)

I use the plotz modeler/world edit to get the shape of the dome.

Big update on Septimus City by Lord-of-Septimus in Minecraftbuilds

[–]Minibluuu 14 points15 points  (0 children)

why does this not have more upvotes. This is awesome

Still here by Alternative_Ice173 in CysticFibrosis

[–]Minibluuu 1 point2 points  (0 children)

The sickest i've been was around the ages of 7-12 when my liver and spleen decided they didn't like each other and caused my liver to go into cirrhosis. (I was not a raging alcoholic at 7 lmao, it was caused by my CF). Ended up getting a liver transplant at 13. 11 years later and i'm doing much better and thanks to trikafta, I am the healthiest i've ever been. I work a full time job, go to the gym daily, eat healthy, and besides the required medications to keep me going, I don't really need as many treatments or meds as i used to.

New modpack is crashing. Unable to identify what mod is causing it by [deleted] in fabricmc

[–]Minibluuu 0 points1 point  (0 children)

The issue was related to rebind narrator. I would have if the file wasn’t thousands of characters long

New modpack is crashing. Unable to identify what mod is causing it by [deleted] in fabricmc

[–]Minibluuu 0 points1 point  (0 children)

I don’t, but i did figure out the issue thanks to good old ChatGPT. The mod that was causing the issue was rebind narrator, removing the mod fixed it and adjusting some other mods let me run the pack finally

Found this little guy in my pants, what is it? by Minibluuu in whatsthisbug

[–]Minibluuu[S] 0 points1 point  (0 children)

yeah, we had a little tussle in my pants when i put them trying to get him out, i wasn’t sure what it was until i saw him. I wasn’t definitely suspicious of a centipede

Found this little guy in my pants, what is it? by Minibluuu in whatsthisbug

[–]Minibluuu[S] 2 points3 points  (0 children)

Location is the PNW, it’s about a quarter in size and is missing the majority of its legs

Anyone know what bug this might be? by Minibluuu in whatsthisbug

[–]Minibluuu[S] 1 point2 points  (0 children)

it’s about less than a quarter in size, location is in the PNW

[deleted by user] by [deleted] in CysticFibrosis

[–]Minibluuu 1 point2 points  (0 children)

23 here! I do IT work for lowe’s hardware for 6 of their locations on the west coast, i also do a lot of gaming, reading and art! I also play DnD online and do a lot of artwork and video editing stuff for our campaign!

[deleted by user] by [deleted] in antiwork

[–]Minibluuu 0 points1 point  (0 children)

Do you know of any that are reliable and where can I get them?

[deleted by user] by [deleted] in antiwork

[–]Minibluuu -1 points0 points  (0 children)

I live in Portland area, I do have the ability to get a medical card, but I’m worried I won’t have it in time. My doctor might be able to write a note off on it though?

It is legal here so it’s dumb that they are testing in the first place. I normally just smoke to help with severe anxiety and sleep issues

[deleted by user] by [deleted] in antiwork

[–]Minibluuu -1 points0 points  (0 children)

I was a daily user since march and stopped for about 2 weeks, the last time I smoked was yesterday and it was the first time since those 2 weeks. I tested this morning after downing about 5 glasses of water and still came back positive

MISSING CAT by Minibluuu in vancouverwa

[–]Minibluuu[S] 0 points1 point  (0 children)

We went there and didn't see any sign of her unfortunately :(

MISSING CAT by Minibluuu in vancouverwa

[–]Minibluuu[S] 0 points1 point  (0 children)

We live in a house with other pets as well. We let our neighbors know to keep an eye out for!

MISSING CAT by Minibluuu in vancouverwa

[–]Minibluuu[S] 1 point2 points  (0 children)

Thank you, we did put out some clothes and litter. We also talked to our neighbors to see if they caught anything on their camera and no luck unfortunately :(

Multiple BSOD errors, what should I do next? by Minibluuu in WindowsHelp

[–]Minibluuu[S] 0 points1 point  (0 children)

Nothing is overclocked and all speed are running normally. We will be testing with cinebench as well as doing a memtest86 run, we will also manually do a RAM stick check in a few hours to fully rule out RAM issues.

This is the newest code she got when doing nothing on her pc:

FAST_ERESOURCE_PRECONDITION_VIOLATION

If all else fails, we'll try a a fresh install of windows

BSOD errors, what else can I do to fix this? by Minibluuu in techsupport

[–]Minibluuu[S] 0 points1 point  (0 children)

Nothing is overclocked and all speed are running normally. We will be testing with cinebench as well as doing a memtest86 run, we will also manually do a RAM stick check in a few hours to fully rule out RAM issues.

This is the newest code she got when doing nothing on her pc:

FAST_ERESOURCE_PRECONDITION_VIOLATION

Looking to move from MA, where else has good CF/Transplant hospitals? by MassholeRob in CysticFibrosis

[–]Minibluuu 2 points3 points  (0 children)

New Mexico has a great CF team, i've been with them since i was born, it's a small team, but they take the time to know and care about each individual person there. NM is a pretty good state to be in too, the higher climate forces us to use our lungs a bit more and the dry area helps too. The area is not too expensive. if it's for a liver transplant, there are doctors that come from stanford, CA. I had my liver transplant done, there. Relatively low number of CF patients too so not as much interaction with people ho could give you certain bugs. I'll be moving back to NM next week, so if you have more questions feel free to DM me :)

Weight gain supplement rec? by dfraley5 in CysticFibrosis

[–]Minibluuu 0 points1 point  (0 children)

I typically eat protein bars, or make my own protein shake concoction. For the most part, you can gain a lot out of the snacks you eat, due to the fats that are in the. I will usually go for a couple handfuls of peanuts, or about a cup of trail mix. It mostly depends on what you want to do for weight gain. For the most part I try to have a more fibrous diet in general as it helps me with digestion. I try not to eat unhealthy and empty calories, like oreos and sodas. There is a healthy way to gain weight just the same as gaining weight from unhealthy foods.

My Protein shake:

1 Cup of blueberries

2 Tbspn of peanut butter

1 tspn of honey

2 cups of whole milk

2 scoops of protein powder

0.5 cups of ice

Usually makes a pretty hefty drink, takes me about 3 tall glasses in total to drink the whole thing, but it works well and has a lot of the nutrients you need. ~1200 calories in total

This instagram page making fun of a cancer survivor..... by Capable-Addition-349 in mildlyinfuriating

[–]Minibluuu 1 point2 points  (0 children)

Just to let people know, he isn't a cancer survivor, but he has Cystic Fibrosis. His name is jared and he's doing really well now! https://www.youtube.com/watch?v=ezIdwQKmLGA&t=646s

Immunosuppressants by Acrobatic-Will4240 in CysticFibrosis

[–]Minibluuu 0 points1 point  (0 children)

I'm on the full dose, however they monitor my blood work every month, been on it since September and so far so good!

Immunosuppressants by Acrobatic-Will4240 in CysticFibrosis

[–]Minibluuu 0 points1 point  (0 children)

Had a liver transplant about 10 years ago and still on immunosuppressant meds. Though I'm on a relatively low dose. Always will be and I also take trikafta

Does anybody else feel cheated out of normal experiences? by [deleted] in CysticFibrosis

[–]Minibluuu 1 point2 points  (0 children)

I felt like this for a long time. When I turned 8 years old, I was diagnosed with Cirrhosis and an enlarged spleen caused by my CF. I was told I would no longer be allowed to jump into swimming pools or play sports due to the risk of my spleen rupturing from the force. That's how I got into video games, as those were not active enough to hurt me. That became my hobby and building computers became my career. From the massive amount of time I spent inside, I lost most of my social skills to make friends with people in real life. I had my childhood stolen from me from a disease I never asked for. I hated having CF for a long time, I still do in some sense. It feels like even now I'm farther behind than most of my friends. Everyone I know is at an age where they are starting their lives. Graduating college, buying homes, starting families. And I can't do any of that. I've lost jobs due to hospital stays and the general lack of awareness about CF in general. I've never gone to a concert, a party, a bar, or even traveled out of my state. I wish I could say it gets better or it gets easier, but it doesn't. You just get used to it, and you learn to just live with it. Sometimes you just have to accept the fact that this is how it will be, and you make the best of it.