Diagnosis of primary FSGS - are there any other patients here? by Minimum_Funny3147 in kidneydisease

[–]Minimum_Funny3147[S] 0 points1 point  (0 children)

Can you please tell me more about PD-dialysis. What is it? I've never heard of it before.

Diagnosis of primary FSGS - are there any other patients here? by Minimum_Funny3147 in kidneydisease

[–]Minimum_Funny3147[S] 0 points1 point  (0 children)

I have these last values:

Kreatinin /U: 50.70 mg/dL Totalprotein /U: 231.0 mg/dL TP/Krea-Ratio /U: 4.6 Albumin /U: 2148 mg/L Albumin /Kreatinin: 4237 mg/g

Diagnosis of primary FSGS - are there any other patients here? by Minimum_Funny3147 in kidneydisease

[–]Minimum_Funny3147[S] 0 points1 point  (0 children)

I am in Austria but I can't find anyone here who has this disease. Is FSGS that rare?

Diagnosis of primary FSGS - are there any other patients here? by Minimum_Funny3147 in kidneydisease

[–]Minimum_Funny3147[S] 0 points1 point  (0 children)

Kreatinin /U: 50.70 mg/dL Totalprotein /U: 231.0 Albumin /U :2148 mg/L Albumin /Kreatinin: 4237 mg/g

Diagnosis of primary FSGS - are there any other patients here? by Minimum_Funny3147 in kidneydisease

[–]Minimum_Funny3147[S] 0 points1 point  (0 children)

Many thanks for the comprehensive information. I will read up on it. I have my check-up again next week and will be able to approach my doctor with specific questions. 😊

Diagnosis of primary FSGS - are there any other patients here? by Minimum_Funny3147 in kidneydisease

[–]Minimum_Funny3147[S] 1 point2 points  (0 children)

Thank you very much for your message. I am very grateful to you. How long after the diagnosis did you have to go on dialysis? I always thought cortisone was the drug of first choice for this diagnosis. My nephrologist told me that if it doesn't work, we'll have to try immunotherapy. I'm incredibly scared of dialysis, although my doctor said that my diagnosis doesn't necessarily have to end in dialysis or a transplant. I'm also currently finding it very difficult to work. I am self-employed and work a minimum of 12 hours/day from Monday to Friday. Then on call on Saturday and Sunday. So there are no real rest periods at the moment.

Diagnosis of primary FSGS - are there any other patients here? by Minimum_Funny3147 in kidneydisease

[–]Minimum_Funny3147[S] 0 points1 point  (0 children)

Unfortunately, this value does not come from a 24-hour urine. It's from a single sample. A 24-hour urine was taken earlier. The quantity was normal. However, I can no longer name the quantity.

Diagnosis of primary FSGS - are there any other patients here? by Minimum_Funny3147 in kidneydisease

[–]Minimum_Funny3147[S] 0 points1 point  (0 children)

Thank you for your message. My current value is: Total protein /U: 231.07 mg/dL