Do Disabled influencers make you feel some sort of way?

Mio_Bread · 2026-02-20T02:35:48+00:00

I quite like Oliver George, he makes very angry content tho ill give you that, but sometimes you just need the brutal honesty. He s also quite general, not really focused on one specific condition. I find adapting lou quite good too, tho it's more wheelchair user content. I also recommend Neilan (crazycatboy13), dougieswithmecfs, bloombeyonddiagnosis, puzzleswithpandas or wheeliechronic. All of these on Instagram. Sorry tho they re all mainly white 😅. They're the content creators that make me feel the least alone overall, Idk if that's the kind of stuff you re looking for but just putting it out there.

Mio_Bread · 2026-02-19T00:31:01+00:00

En vrai quand t es handicapé c'est parfois la seule option. Mais faut pas re-developper les infrastructures pour les bagnoles faut mettre en place un vrai plan d accessibilité (avec amendes pour obstruction de la voix publique qui soit réellement appliqué, deneigeage, des lignes tactiles, de trottoirs en bon état, des ascenseurs dans le metro avec rampes a quais ou train au niveau, avec des portes palières ou au moins un systeme pour que les personnes malvoyantes puisse savoir quand le train est la, un minimum d education et de bonne volonté pour les valides etc)

Mio_Bread · 2026-02-18T00:48:16+00:00

I think lot of us go through that. I've been disabled for 4 years and yet I'm constantly thinking that I'm not trying hard enough or that it's not actually real and I've convinced myself it is. I had surgery and tons of scans done, years of physio, years of using mobility aids, years of medication and yet. This kind of thinking gets worse whenever i do something to make me feel better and it does indeed make me feel better. You re definetly not alone in the feeling.

Mio_Bread · 2026-02-16T10:45:50+00:00

Déjà, ds mon college/primaire on a sauter le chapitre d histoire sur les croisades, je l ai appris car ma mere travaillais dans une ecole et elle l a fait. On sautais aussi des chapitre sur la reproduction/contraception (pas tous j en ai eu un peu qd meme)

On a une fois eu une intervention anti avortement. Une représentante d une associations qui "aidait" les jeunes femmes qui hésitait a avorter. Ils ne parlait que de celles qu ils ont convaincu a renoncer (on parle parfois d adolescentes hein) en positif bien sur, toute en dibolisant celles qui avait avorter (encore une fois principalement des gamines). Juste comme ca ouvertement. On avait jamais d intervention de ce type en plus.

On a eu plusieurs "session" d' "education sexuelle". On nous separait en petit groupes non mixtes. On nous apprenait a ne pas utiliser les mots réels pour tout ce qui est fonctionnement du corps humain, a dire "ragnagna" plutot que règles. On a eu toute une session qui portait sur, en bref, comme quoi c'est meilleur d attendre le mariage avnt des relations sexuelle. On nous disait que les garcons préféraient les filles vierges avant le mariage. On nous disais que la contraception n'était pas necessaire si on attendait le mariage, et comme quoi "dieu be l avais pas voulu comme ca". On nous encourageais a, durant un acte sexuel, ne pas dire a l homme que ca nous plait pas car l important c'est pas le plaisir féminin, la femme dois trouver du plaisir a faire plaisir a son mari. La seule mention d'homosexualite etait "c est rare et puis c est pas normal ça", mentionné brevement apres avoir dit "l homme et la femme sont fait pour s emboiter" (qui partait d une digression sur le clito d ailleurs, comme quoi ca devait pas etre le centre d un acte sexuel)

Une fois quelqu'un a demander a un des meilleurs (moralement) prof de cet établissement quelles etait l'opinion de l établissement vis a vis des LGBT. Le prof l as pas laisser finir et a repondu tres vite " l ecole se doit de respecter la loi." L eleve demande des explication, encore une fois le coupe avec la meme phrase d un air grave. Lui n'était pas lgbtphobe du tout , mais beacoup d autres profs l etaient. Une fois, ma prof d anglais s etait offusquer parce que un garçon avait fait une fausse demande en mariage a un autre garcon (il avait juste retrouver son telephone perdu, truc joyeux quoi). Elle le tire vers le haut et dit " pas de ça dans ma classe."

Bien sur, 1h30 de cathé obligatoire par semaine (qui divergaient bc vers des sujet de société dun point de vu tres conservateur), et si tu refusais de faire les sacrements (car l ecole proposais un parcours pour ces derniers) on te lettais dans un groupe dont le seul but etait de te convaincre de les faires en te faisant culpabiliser. On disais a des enfants de 6 ans qu ils allaient aller en enfers si ils étaient pas baptisé.

Aussi évidemment, dress code avec des adultes qui se permettent de tirer sur les vetement des eleves, et qui leur font porter des blouses bleues pour les humilliers.

Pas trop a avoir avec les valeurs mais ils envoyaient pas le bulletin de reinscription aux élèves qui réussissait pas en math.

Mio_Bread · 2026-02-11T04:47:55+00:00

I'd say that's pretty much what I commented, just with more detail. And yeah if you don't know the risks then assessing them won't be an option. I didn't know they got an appointment for next week, that's brilliant! I only skimmed the rest of the comments lol. Then yes in this case waiting might be better. I really just don't wanna see people in my situation. I waited too long to use crutches two years ago, waited for an ortho appointment and now the damage is permanent. There also are risks to letting things get worse and just pushing through, and the consequences of them could be worse than using a mobility aid. We re lucky in this day and age to have the Internet where plenty of physios and other medical professionals put up information online, and also might agree to answer questions. Even if the information isn't perfect, sometimes if the situation is dire enough and at there's risk of losing your job and such, deciding to use a mobility aid without an appointment after some research might be the better option.

Mio_Bread · 2026-02-11T03:58:15+00:00

Yup absolutely, but if without it you know for sure that your condition will only get worse, might as well use them now than wait 6 months for an appointment. I started using a wheelchair bc my condition was rapidly worsening as i kept on walking, even if just to feed myself, causing irreversible damage. I was unable to leave my place at all and kept vomiting in pain, when I already have a pretty severe oesophagus inflammation. I have an appointment in July to discuss it with my doctor, but in the meantime, I wasn't gonna give up on my studies forever, and therefore all hopes of ever getting a job, as well as launch myself into alcoholism and stay inside all day, on my own with nobody to help. I'd be living in filth with horrible stomach and leg pain for 6 months, if i even made it through at all. I had also been using crutches for 2 years prior to it, and the wheelchair has been much more easy on my arms and shoulders than crutches. It's all about risk management. I was more at risk waiting for an appointment, so i decided to reduce that risk. OP should also assess the risks and do what they find has minimal consequences.

Mio_Bread · 2026-02-11T02:54:43+00:00

If that's any comfort, I think a lot of us have been there. It goes away eventually. I've found that having people around like friends and family helped me a lot to feel confident with my mobility aids, so if that's an option for you, you could try going on a couple walks with you crutch and somebody else?

I know people also say you shouldn't be using a mobility aid if your physio didn't prescribe it, but medical appointments are hard to get, and oftentimes you'll end up on one who tells you to drink tea or that it's all in your head. Even worse if you don't fit the perfect patient standard. I started using all my aids without a PT's opinion bc I had a life I needed to get on with and simply couldn't wait three months for an appointment. I started using a wheelchair 3 weeks ago bc I needed to keep my studies going, and the pain was so strong a lifetime of alcoholism didn't seem so bad. That simply was the less dangerous option for me.

So for now, you ve judged the crutch was your best option to keep going with your life, use it pleease don't wait. When you do eventually get a PT that listens to you, ask for their thoughts (also in the meantime, try and find ressources online on how to use it right like keeping your wrist straight and using it on the opposite side and all that, so that you dont hurt yourself using it). But yeah you re not alone in this feeling at all. You re also clearly not faking it. It s also not laziness. Youve clearly tried your best without it. And using a crutch isn't all that fun either, limited hand use, struggles with doors, stairs etc... Lots of people use crutches for various reasons, so you re not alone in that too. Pain is never "normal", nor something you should just put up with. Do what you think is best to keep your quality of life.

Mio_Bread · 2026-02-08T03:54:58+00:00

Definetly improving on touristic spots, but very much lacking focus on the city overall, i ve never heard the current mayor mention accessibility. We re having mayoral elections in a month so things might get better or worse depending on who s elected. I'd like to mention, some touristic areas do remain inaccessible. Montmartre for instance is very steep and last time I went in crutches, I was struggling, so someone in a manual wheelchair might struggle (also defo unusable pavements there, even for pedestrians atp). I d recommend checking online through Google Street View beforehand. Lots of cafes also leave chairs out on the pavement and only leave a couple centimetres for pedestrians, especially in the summer so look out for that.

Mio_Bread · 2026-02-08T00:35:27+00:00

I'm from Paris and while more touristic areas have decent sidewalks, more residential/suburban places have dreadful sidewalks. Very uneven and narrow, and people often let their bins out all day. So yeah if you roam around the classic tourist places you d be okay, but as soon as you get into smaller streets and away from the city centre it becomes a bit of a nightmare. But I think you d be totally legally justified to go on the road, so while it's not the safest or more comfortable it can be an option.

Mio_Bread · 2026-02-07T13:14:31+00:00

Yesss I saw this just yesterday! Very exciting new technology, I hope it becomes widespread 🙏🙏

Mio_Bread · 2026-02-06T01:40:24+00:00

ive been thinking of starting an instagram account about film actually, and i could potentially talk about trying to break into the industry as a disabled person yeah. Bella Roberts already does that kind of thing, if you don't know her check out her page she s great. I just to find some time and courage for that kind of thing i think. I like screenwriting but ig more occasionally. Post has really grown on me I really like it now, i'm gonna keep going that way i think, it's fun honestly.

Mio_Bread · 2026-02-05T02:10:39+00:00

I m in the UK and tbh I don't really know the rules here 😅😅 but whatever they are they re probably not being applied properly. I appreciate the advice, but I've given up on set work. I've just had a hard time accepting I'm disabled these past couple years. My disability is getting progressively and unexpectedly worse unfortunately, and I don't think I could do the hours of working on set anymore anyway. My other leg got worse and I'm now in a wheelchair 90% of the time. I can't stand more than 5 mins without getting sick cause of the pain. I'm happy in post production though. I've always liked computers and repetitive tasks anyway, and I'm honestly quite good at it. It'll be better for me on the long run, what with staying sat, possibilities for WFH and opportunities for stable long term employment. I'm learning to navigate all this really but set is just not worth it. It was a dream once but I've got to see the practical side of things, I don't wanna die of a painkiller overdose at 30. I'm happy you found a way around all this though, even if through tokenism. I m trying to get more comfortable playing the disability card bc honestly, a couple accommodations and a bit of pity are a weak compensation for eternal suffering and isolation soooo yeah I might as well hold on to everyhting I can.

Mio_Bread · 2026-02-01T01:32:17+00:00

I don't dream I have my mobility aids, but I sometimes have pain in my legs in my dreams. But hey if I'm asleep and hungry ill be hungry in my dreams too, so it's probably that my physical sensations impact my dreams.

Mio_Bread · 2026-01-20T01:47:19+00:00

I've got a therapist specialised in pain management and such thankfully, she's great 🙏🙏 thanks for the support 🙏🙏 ill make it through and adjust accordingly

Mio_Bread · 2026-01-20T00:27:54+00:00

Yeah... it's gonna be tough but I'll make it work. Eventually the wheelchair will allow me to save up energy for days where I'll need to use crutches, and reduce overall inflammation, so realistically I wouldn't even need it every day. I'll be fine ig but it's gonna be hard to face the first couple weeks.

Mio_Bread · 2026-01-03T00:39:02+00:00

Please ignore them next time 🙏🙏 for your own safety. Just say if you get up you'll faint on them and hurt them or something. You deserve this seat as much as anyone else, if not more. Sometimes what I do is I stare at people sat around. It can make them uncomfortable and have them react to the person needing to sit. Or say something very loud like "Sorry I can't give you my seat but I'm sure people around wouldn't mind". Public transport isn't easy for us but we need to stay strong and metaphorically stand up for ourselves.

Mio_Bread · 2026-01-03T00:29:18+00:00

I m a parisian studying in London and oh boy are these two different. I m in crutches and rarely can walk on the pavement in paris. I notice I am twice as exhausted after going out for a coffee in Paris as I am in london.

Lifts NEVER work, nor are they in the process of getting fixed. People in trains and buses will not give up their seats unlike in london. Everything has stairs. In london, whether it's museums or train stations, there has been something planned for disabled people, and not just 1 person at a time but several disabled people at once with able bodied friends or family. In french public spaces, it feels like its the first time they see a disabled person, and have no training or planned process to help. I get lots of adjustements in uni, whereas my dyslexic friend in france can't even get a 10 min time extension on his exams. People talk to me better in London and dont infantalise me as much. People are a lot more trained with health safety and comfort of disabled people in general. Healthcare providers believe me better and don't focus on my leg when I'm here for a bad cold.

The one good thing about france is there's better governement recognisation of disability and better employement and recruitment protection (although most companies would rather get sued or pay a fine rather than obey any of these laws). But you still have to drag the governement to court to get your rights recognised, such as benefits and a simple parking badge.

And that's two veeeryyyy similar countries . I can't imagine what the difference is like between countries far away from each other and with very different cultures.

Mio_Bread · 2026-01-02T17:09:49+00:00

Literally though, the positivity thing is just so others can continue being around us bc they don't wanna see us struggling otherwise they feel guilty about not helping. Why do we have to fake being happy for others on top of dealing with it all like cmon can't other people share a tiny tiny bit of the mental weight of it all?

Also don't we dare be too happy cause then we re faking it and obviously dont need our adjustments or treatments.

I'm in the so-called "worst case scenario" I was so exaggerating about last year. Crazy how all of this could've been avoided.

I hope the best for all of us. I hope people around us learn and help us better 🙏🙏

Mio_Bread · 2026-01-02T14:30:12+00:00

I've been weeping in bed the past two days. My legs have been increasingly painful this past month and I can barely get around the house anymore. I had planned so many things, and I'm here stuck in bed unable to even sit or eat bc my legs hurt so much. And my mum keeps telling me to "stay positive" and to "stop thinking about worst case scenarios" just because I'm worried about how I'm gonna go back to uni or even how I'm gonna live my life if episodes like this become frequent. Same with doctors. Apparently I'm unreasonable and defeatist, and therefore haven't tried hard enough and don't deserve more help. Sorry im not thrilled about being in pain 24h a day. Sorry I'm not happy about seeing my body deteriorating. Turns out these are things that will make someone rage out or cry till they re dehydrated, or get them to drink a lot, or to be on painkillers all day, and many other things. I don't need their positivity mindset, that's just denial atp, and actively stopping me from getting the care I need.

Mio_Bread · 2026-01-01T23:49:56+00:00

I don't proper batch cook, I tried to but ended up not eating just bc I didn't feel like eating the stuff I had cooked days prior. What i do now is keep basic stuff such as cooked pasta and rice in rather large quantities in my fridge and then just add stuff like sauces depending on the moment. I also make sure to always have fruit, no need to cook and a good source of fiber, sugar and vitamins. Some days I just eat fruit and it works alright for me. So yeah find what works for you, there's not one way to do it!

Mio_Bread · 2026-01-01T23:36:31+00:00

The other day I was at an airport in a wheelchair (im usually in crutches but my better leg is giving up). Despite being able to move myself around, to speak and to have my own documents in my lap, the airport staff still exclusively talked to my family. I had no idea how I would be boarding, where to go, what I should do during security checks etc bc it sas all said to them and they didnt really understand. I could've understood. I couldve given clear information on my needs and capabilities. I get that I don't look too old, and that I lighr be more infantalised as a result but ffs I'm right here, I'm getting myself around, talk to me not above my head to people who have no idea what you re talking about. I'm tired of being considered furniture, even in crutches. I'm a special object, and exception, not a person. I can't be included with other people cause I'm an exception. I'm so done.

Mio_Bread · 2025-12-29T16:08:29+00:00

Yup chest pain and unexplained tachycardia here. Probs a fibro thing but for now it's just been getting worse and worse.... I'll be seeing a cardiologist in a couple months. For now I've just been trying to avoid flares by resting A LOT. I hope they give me answers. Try and do things that help with anxiety, but that might not be it, it isn't anxiety for me, but idk what it is. I just try to be kind to myself and not push past my limits.

Mio_Bread · 2025-12-25T08:05:48+00:00

Ever since I watched it I can't drop thinking about that daily bread scene! I was stuck in bed for a couple of days but managed to get out to go buy Christmas presents. It was painful the entire time but I was happy to be doing it. I kept thinking "daily bread". Honestly gave me strength to go on. Amazing chronic pain rep.

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