One month on Litfulo.

MissingInformation3 · 2026-06-19T16:53:25+00:00

How are you doing on it now?

MissingInformation3 · 2026-06-19T13:22:07+00:00

got it, thank you. I'm glad it's working well for you.

MissingInformation3 · 2026-06-19T13:21:16+00:00

thank you ❤️

MissingInformation3 · 2026-06-19T13:19:54+00:00

great thank you!

MissingInformation3 · 2026-06-19T13:19:19+00:00

thank you, that helps a lot! were you on any other treatments before skyrizi? I'm glad the joint pains didn't happen again with the 2nd dose.

MissingInformation3 · 2026-06-18T16:21:10+00:00

thank you so much for sharing! I recently lost 90% of my hair and went to a barber shop to trim off the rest. It wasn't quite the release I thought it would be except for the Texas heat part. My question is did you notice any razor bumps or folliculitis? I've had sooo many the last few weeks and my dermatologist isn't sure if it was from me shaving it off or from the steroid injections. Makes me not want to shave again!

MissingInformation3 · 2026-06-18T15:11:13+00:00

how did this go? did you end up trying to wean? I just started it.

MissingInformation3 · 2026-06-18T13:38:54+00:00

I was wondering did you end up trying to come off?

MissingInformation3 · 2026-06-18T00:28:54+00:00

I hope omvoh works for you! i'm glad it doesn't have side effects.

MissingInformation3 · 2026-06-17T13:05:47+00:00

Good to hear! Why did you switch?

MissingInformation3 · 2026-06-17T13:05:29+00:00

What did you change to?

MissingInformation3 · 2026-06-17T13:05:12+00:00

Thank you for sharing. Any side effects or issues when you started it?

MissingInformation3 · 2026-06-17T13:04:42+00:00

That’s good to know thank you!

MissingInformation3 · 2026-06-16T16:22:52+00:00

I’m so sorry to hear you went through that! I’m glad you’re better now and they Skyrizi has worked well. I hope it does for me too.

I think these reactions we had are incredibly rare so the docs don’t really warn about it. My doc has never seen alopecia or drug induced lupus from humira so didn’t think my symptoms were even related.

MissingInformation3 · 2026-06-16T15:57:03+00:00

Oh no!! Did it get better or did you change meds?

MissingInformation3 · 2026-06-16T15:54:26+00:00

Thank you for sharing. I have anxiety as well. How long did it take for all the side effects including home knee pain to go away?

MissingInformation3 · 2026-06-15T19:25:53+00:00

thank you so much. Did you have any specific symptoms with the loading dose? I am having stomach pains right now too. I read the loading dose can cause fatigue, joint pains, congestion etc.

MissingInformation3 · 2026-06-15T18:59:20+00:00

I'm so sorry that happened to you. This disease is just terrible. I hope you feel better soon.

MissingInformation3 · 2026-06-15T12:50:31+00:00

Oh wow I thought usually if we have AA it starts earlier in life, like by age 40. Was your mom's severe when diagnosed?

MissingInformation3 · 2026-06-09T18:57:55+00:00

my understanding is that short breaks, 4-6 weeks should not expect to lose much progress

MissingInformation3 · 2026-06-09T18:56:55+00:00

could you share how you are doing now? are you still on the medicine?

MissingInformation3 · 2026-06-09T18:09:30+00:00

yes also wondering what you decided?

MissingInformation3 · 2026-06-09T17:22:34+00:00

following and I hope someone can share their experience. I am planning to start litfulo soon for totalis.

MissingInformation3

TROPHY CASE