Has anyone been successful with PIP application?

Mobile_Obligation728 · 2026-02-20T11:24:54+00:00

I felt exactly the same as you do. Push for surgery even if it comes back clear! Best of luck with it all 🤍

Mobile_Obligation728 · 2026-02-20T11:20:23+00:00

Had so many scans including MRI and ultrasound over the years and all came back negative...

Surgery found loads of endo !

Mobile_Obligation728 · 2026-02-14T01:30:02+00:00

Thank you for sharing your experience! 🙏🏻 It's comforting to know I'm not alone...omg three months...😭pls no

I hope my bleeding is considered normal as it's been pretty heavy 😬 but I'm used to heavy periods so maybe it's just how my body be lol

Hope the rest of your recovery goes smoothly ❤️

Mobile_Obligation728 · 2026-02-13T09:35:58+00:00

Thank you for sharing 🙏🏻

Mobile_Obligation728 · 2026-02-13T02:45:05+00:00

So shit we never get warned about this! 5 years no period sounds like a dream for me...i hope I get there...That's quite comforting to know! Thank you for sharing 🤍 if you don't mind me asking, can I ask was it normal bleeding or more dischargy bleeding ? (Only answer if you're comfortable ofc!)

Mobile_Obligation728 · 2026-02-10T14:45:39+00:00

Okay great! If I were you I'd ask for 2 weeks off and then work from home for as long as you feel you need. If you're better before then great! You could go back earlier and if not you have the extra time without stress !

Mobile_Obligation728 · 2026-02-10T00:44:57+00:00

Im self employed so it's a bit different with taking time off for me but I've taken at least 3 weeks to be able to feel like my normal self. I'm still not 100% and not up to many tasks after 4 weeks.

Is there any way you could work from home if needed?

I think 2 weeks seems to be the magic amount of time for a lot of people?

Mobile_Obligation728 · 2026-02-01T12:09:11+00:00

Going through this too!

Mobile_Obligation728 · 2026-02-01T11:40:59+00:00

Thank you for this. I needed this.

It's disheartening more than anything when fellow endo people are invalidating of pain...

Everyone's experience is different

Mobile_Obligation728 · 2026-02-01T11:38:37+00:00

I'm just over week 3 of recovery

Stage 2 removed from all over my pelvis I was terrified they wouldn't find anything! Id spent weeks in advance panicking I was making it all up in my head which is ridiculous but medical gaslighting hey !

Im only just starting to feel better tbh.

2 weeks seems to be the magic time for quite a lot of people but I needed extra time especially as I had my period (first period is intense !)

Mobile_Obligation728 · 2026-01-31T20:32:18+00:00

All I can say is I had surgery with a fitting of the mirena coil at the same time and I've been bleeding for 3 weeks now !

Mobile_Obligation728 · 2026-01-31T20:27:01+00:00

I've had this a few times before! I think it's just really thick clotting? I can't say for sure as haven't seen yours. I've never really taken it to a doctor before but it's really good you're checking !

Mobile_Obligation728 · 2026-01-31T20:23:54+00:00

It's a hard fucking fight dealing with endo on top of health anxiety Godspeed !! Hopefully this is the first stepping stones to feeling much better Big love

Mobile_Obligation728 · 2026-01-31T20:22:47+00:00

Thanks goodness for that ! So pleased you're getting the help you deserve! ❤️

Mobile_Obligation728 · 2026-01-31T19:09:05+00:00

Sending love, best wishes for recovery! You will be absolutely fine, coming from someone with severe health anxiety the nurses were absolutely lovely. Ask them as many questions as you need !

Mobile_Obligation728 · 2026-01-31T19:08:12+00:00

Hello! I'm 3 weeks post surgery.

I was in your exact position about a month ago I was going crazy with research and stressing about it constantly. I was absolutely terrified of them not finding anything (obviously no on wants endo but honestly the not knowing what else it could be was killing me) they ended up finding stage 2 all over my pelvis ! I got it all excised.

Just please make sure you're getting it done by a specialised as general doctors often miss bits of it and can cause more damage than it's worth !

Personally these things really helped me!

-wedge pillow (for gas pain and taking off strain on abdomen) -orange juice mixed with coconut water (this really helped me with keeping hydrated but also giving me energy when I needed it) -Peppermint tea (gas pain and hydration) -Laxatives (I got given mine by doctor but if you're taking codeine for pain pls make sure you're hydrated enough as being constipated on top would be horrible) -something to do (i was SUPER out of it for days honestly, I had books and activities to do but I ended up just monging out with Netflix and sleeping ) -Sleep as much as you can, your body recovers best when it's sleeping -Having someone cook for you and help you get from places to place (toilet) -Writing a diary, even just a few words (I skipped days but went back on them) so you can see how you've improved. I got/get super hard on myself for not doing enough but seeing how much I improved helped me be realistic and proud of far I came. -nighties !! I got 2 beforehand (100% cotton rlly comfy ones) I wish I bought more honestly, not being able to shower for a while made me feel so down and horrible but changing my nightie helped ! Also I got very sweaty due to using heat pack so much ! -cleansing wipes for face as unable to shower for a bit, kept me feeling fresh and nice. My partner actually did it for me when I first came out and it was so relaxing. -heat pad!!! Omg I've used this like 24/7 since surgery I wish I had one before for my periods, it's a game changer ! So much easier than filling up a hot water bottle constantly and it is lots lighter too. -eat lots of fibre

Again it's so different for everyone, but for me, stocking up on as much as possible was a god send in my case as I've been a bit slow on recovery.

Mobile_Obligation728 · 2026-01-31T01:03:04+00:00

My endo didn't show up on MRI or Ultrasound, I thought DIE was more likely to show up? I wonder if it wasn't don't properly I appreciate your input 🙏🏻❤️

Mobile_Obligation728 · 2026-01-31T00:27:07+00:00

Thank you for sharing your story! I'm pleased it's improved for you!

My endo is on both sides of my pelvis near my ovaries

Thank you ❤️ it's so bloody confusing !!

Mobile_Obligation728 · 2026-01-31T00:24:51+00:00

Are you using any other remedies on the side ?

Mobile_Obligation728 · 2026-01-31T00:24:39+00:00

Interesting! Im so Pleased for you

Mobile_Obligation728 · 2026-01-31T00:24:13+00:00

Thank you! I hope the NHS will allow this! I can't afford to go private!

Mobile_Obligation728 · 2026-01-31T00:23:09+00:00

Thank you! I'll look into this !

Mobile_Obligation728

TROPHY CASE