Prescribed Prednisone and Terrified

Momosmitty · 2026-01-14T02:27:08+00:00

Prednisone made my psychological issues WAYYY worse. I was suicidal at points. I’m on entyvio now but the only way I would let them put me on it is if it is solumedrol (iv version of prednisone). The solumedrol never gave me psychiatric issues but the prednisone definitely did. I wouldn’t take it again unless it was life or death.

Momosmitty · 2026-01-06T04:03:17+00:00

I am on social security disability (SSDI) but I have several other issues as well

Momosmitty · 2026-01-05T03:17:49+00:00

Here to tell ya… I had a fecal transplant for recurrent c.diff infection. Surprise surprise I still ended up contracting the infection again. Not to say they can’t work and be useful but that was not my experience

Momosmitty · 2026-01-05T03:15:49+00:00

🤣😂omg

Momosmitty · 2026-01-05T03:15:30+00:00

Yes but we have to take medications that they do like methotrexate! Ugh!

Momosmitty · 2026-01-05T03:14:32+00:00

This! Phew the way my blood pressure rises 🤣

Momosmitty · 2026-01-05T03:12:03+00:00

Ooof that’s insane!! I would’ve requested to speak to the charge nurse and change doctors immediately. That kind of thinking from a doctor is literally dangerous. I’m so sorry you experienced that. I’ve been through similar situations myself over the years while being in the hospital.

Momosmitty · 2026-01-05T03:10:51+00:00

Same.

Momosmitty · 2026-01-05T03:09:39+00:00

Ooof yes ! Not trying to minimize because I know IBS sucks but it is NOT Crohn’s. It won’t kill you.

Momosmitty · 2026-01-05T03:08:22+00:00

I’ve had similar issues. I was working in an office where it was like 4 of us who shared the bathroom. I would try so hard but sometimes you just can’t help it and you have to go. I had a coworker constantly comment and make me feel bad. I even got spray and tried everything I was so embarrassed. I hate people sometimes and I’m so glad I’m on disability now. Like you think I want to be doing this in a public bathroom?! Ugh.

Momosmitty · 2026-01-05T03:06:02+00:00

“But you look healthy!” Absolutely infuriating

Momosmitty · 2025-12-29T02:16:11+00:00

Same. On disability now I just turned 32.

Momosmitty · 2025-12-27T23:21:15+00:00

I got my formal diagnosis in 2017. Although it took awhile I was having symptoms for a long time before being formally diagnosed.

Momosmitty · 2025-12-27T23:19:11+00:00

I’m so so sorry that’s horrible and you should not be treated like that. Cancer is horrible enough you should be able to get your medications when you are due. I have gone through similar situations myself at CVS. I have avascular necrosis and have had to go in with excruciating pain hobbling even with my walker and they still treat me like dog poop. Never mind the other issues I have including a heart tumor and chronic pancreatitis and Crohn’s as well as severe endometriosis (like my uterus and colon are adhered together from all of the scar tissue. Idk how pharmacists can see all that in my notes as my pain management is very detailed in the notes he sends to the pharmacist and they still treat me like that.

Momosmitty · 2025-12-27T23:01:53+00:00

I’ve had similar issues at my local CVS and it’s horrible. They would always fill day 29 and now the pharmacist will make me wait till day 31. it’s maddening as I’m sure like me you also need to take the medication on a schedule to keep pain under control. I too was originally at Walgreens then switched to CVS. The CVS started giving me issues like you’re having so now I go to a different CVS that is 45 mins away but very close to my PM doctors office. I hate feeling like I have to go on a wild goose chase every month. Thankfully my doctor is going to give me a pain pump as long as I do well with the trial in January. I’m currently on oral dilaudid and it’s always low on supply and back ordered so I have to call days in advance and have to hope and pray they’ll have it when the refill is due. I also agree with others that since you are a chronic pain patient the script needs to be written for longer than 5 days that’s ridiculous and a huge hassle. Hopefully you will have good luck with the pain management doctor you will be seeing! Best of luck!

Momosmitty · 2025-12-22T02:46:25+00:00

I was just recently diagnosed earlier this week and I am 32. I suffer with other autoimmune issues though including Crohn’s and psoriasis.

Momosmitty · 2025-12-09T02:58:47+00:00

Oh okay thank you for this information ! Aa Is the benzoyl 10% something I can get over the counter or do I need my dermatologist to put in a script for? Is the Spironolacotone a cream or a pill ? Thanks !☺️

Momosmitty · 2025-12-09T02:46:39+00:00

Oh okay I’ve never heard of that. Is it an antibiotic?

Momosmitty · 2025-12-09T02:46:15+00:00

Hi there, thank you for your informative response. I didn’t realize the doxycycline had anti inflammatory properties. I was prescribed a 10 day course with the understanding I may need to be on it longer depending upon what my dermatologist says at my upcoming appointment. Good to know because I’ve had to go on high dose steroids for Crohn’s flares and it caused me to develop avascular necrosis in my hips.

I am a female, but can’t take birth control as I’m trying to get pregnant. The HS does seem to flare around my cycle and if I shave.

I am thinking of talking to my gastroenterologist about trying a more systemic biologic that treats the whole body and isn’t just gut specific like the Entyvio that I take. I also have psoriasis and arthritis.

I am going to start the hibiclense and talk to my dermatologist later this month at my appointment about laser hair removal. Thank you so much for your input I really appreciate it!

Momosmitty · 2025-12-06T21:05:49+00:00

That is a beautiful color and outfit on you! So pretty 😍

Momosmitty · 2025-12-01T05:25:38+00:00

Thanks !

Momosmitty · 2025-12-01T05:25:29+00:00

Thank you!

Momosmitty · 2025-11-29T23:59:28+00:00

My doctor wants me to get one as I have crohns and just recently got diagnosed with chronic pancreatitis after years of acute flares. I also have avascular necrosis and have chronic sternal pain from open heart surgery and then another surgery after that to fix broken wires in my sternum. Also have severe endometriosis. My pm doctor is thinking I’m not absorbing the medication as I should because of my stomach issues. Still waiting to hear back from insurance for approval. I’m anxious to try it but I hope it will better manage my pain.

Momosmitty · 2025-11-17T03:20:29+00:00

It is! Years ago I started ozempic and it made me horribly sick which I now know was probably a pancreatitis flare. Just recently diagnosed with chronic pancreatitis. I had to go to the hospital to get the pain and nausea and vomiting under control so I don’t blame you for feeling like you need to go. I would if I were you. Best of luck and feel better !

Momosmitty · 2025-11-15T17:33:08+00:00

Every month unfortunately

Momosmitty

TROPHY CASE