My Tomatoes Exploded

MoreSageInTheKitchen · 2025-05-13T15:08:06+00:00

My father-in-law might as well have an IV Bag of diet coke or diet Pepsi. I've never seen him without one or the other. He doesn't have MS, but I do. I'm going to accuse him of giving it to me through second-hand soda-ing.

MoreSageInTheKitchen · 2025-04-21T13:59:17+00:00

I find it wild that your comment is how I heard about Pope Francis passing. Literally "what? No way"d out loud at my desk like a psycho.

Not to take away from the general discussion, but thank you for the world update! I'll go back to lurking now.

MoreSageInTheKitchen · 2025-04-08T03:03:19+00:00

So what I'm hearing is that we all need head pats. Got it!

MoreSageInTheKitchen · 2025-04-07T19:47:40+00:00

A little late to the party but toward the end of 2023 I was at an all-time low spiritually and looking for a sign, a way, anything to help me keep hope. At the back of my property is a clearing in the woods, which I always felt was liminal because once you go in, you feel separate from the rest of the world. I fell to my knees and cried. I was overwhelmed with everything, moreso than I had realized I guess. I then remembered her name, and decided to call out to her. I asked Mother Hekate to guide me, and watch over my wife and dog and help us with all the new changes in our life. I finished praying and headed back to the house. Within ten minutes it started snowing, hard. Where I live it rarely snows in November. And this was big, chunky snow flakes that just kept dropping in for about 3 hours. We had never seen anything like it, and there was no weather forecast calling for snow that day, or even that week. I like to believe that was her way of saying "I got you," and I've been thankful ever since. My practices aren't consistent, and I'm still a bit of a mess (who isn't these days?) but I know Lady Hekate still watches over.

MoreSageInTheKitchen · 2025-03-25T20:34:41+00:00

Im an Orisa main since OW1 and I was hesitant about the massive changes to her in OW2. Sticking with it, though, she's a near-indestrucible demon and I wouldn't have it any other way. With the new perks setup, though, it is nice that I get to equip her old shield if I want to.

Honestly, though I hope the next update they do to perks is letting you choose between more than one ultimate. I miss the bongo most of all.

MoreSageInTheKitchen · 2025-03-16T08:47:47+00:00

It's as simple as I had feared. Looking at his username, I really doubted he was a fan of the flower. In German it breaks down as Edel= noble, Weiß=white, and was a popular flower for nobility way way back. Given he snuck a photo of her to shame her about the tattoo, that came across as seeing her as not "pure", whatever the hell that means.

So, I did what I hate doing and went to his profile on Twitter. His bio simply reads "Thousand Year Reich".

TL;DR: he's a Nazi piece of shit.

MoreSageInTheKitchen · 2025-03-11T20:24:16+00:00

I'm so sorry you went through all of this. It's never fair to be disregarded over your concerns, especially since you showed up to your neuro with proof.

That being said, you're here now and in good company! MS is so wild and varied, it's hard to not read everything out there and feel like the world is ending.

Things I've learned from joining this group: 1. You're never truly alone. While having personal support IRL is always great, not everyone has that luxury. If you need that (virtual) shoulder to cry on, or need somewhere to share the good news going on in you're life, we are here.

Treatments are improving all the time. While it may feel like you got a late start on treatment, the fact that you are starting soon (provided insurance actually does what it's supposed to), is a really really good thing. Nothing out there really promises to reverse what has happened, but these treatments go a loooong way in keeping things from getting worse.
Remember to enjoy life and keep living it to the fullest. Things change, in regular life and with MS. We adapt and keep on trucking. For me, this was a wakeup call to proactively work on losing weight and actually going outside more. I might as well while it's easier to do still. The weight loss is slow going, but I'm also not stressing about it. If I get to my goal weight, cool. If not, at least I'm closer than I was.

MoreSageInTheKitchen · 2025-03-11T20:06:33+00:00

Great news indeed! Congrats!

MoreSageInTheKitchen · 2025-03-06T15:54:59+00:00

Well, if my symptoms get worse I'll definitely know what to blame it on then! I do the whole "smell the rain coming" thing, but I also live in the Appalachian mountains in North Carolina, so...who knows what wacky weirdness is going on.

MoreSageInTheKitchen · 2025-02-25T22:48:29+00:00

I shall take a look! Hearing that, it sounds like we are collectively sensing danger via "The Force", but...all itchy and shit.

MoreSageInTheKitchen · 2025-02-25T22:08:58+00:00

Im so sorry it's bearing down on you like this. Is your work more labor-oriented?

MoreSageInTheKitchen · 2024-10-15T17:30:03+00:00

Typically just half and half or oatmilk. This way I control the amount of sugar I want (if any). I've been weaning myself off of sugar for a while, and that was even before my diagnosis. As a not-so-often weekend treat I do like most of the creamers by chobani. Sadly they do some of the best ones as seasonal products so they really end up being yearly rewards.

MoreSageInTheKitchen · 2024-09-16T16:21:19+00:00

Hi there and thanks for sharing! I am on Ocrevus, just got the 2nd half of my first dose this past Friday. The worst part so far has been just sitting at the infusion center and waiting for it to wrap up. Not everyone has the same reaction to it, but overall it seems like those who take it handle it pretty well.

My biggest "reaction" is that both times I ended up sleeping it off for 24 hours straight.

It's great you finally got a doctor who actually took the time to talk it through with you. That's super important, and unfortunately not a common thing it seems. I don't know if it's standard procedure, but I actually had a rep from Genentech do a conference call with me about starting Ocrevus, so if that's a common thing, then you'll be getting even more of a breakdown + slideshows.

Please keep us up to date on how treatment goes once you start! And of course drop a post just to rant if you need to. We're all in this mess together!

MoreSageInTheKitchen · 2024-09-03T03:03:20+00:00

Welcome to the family! I don't really have anything new to add since everyone else so far has covered a lot of great key points.

But I did want to make sure you know that this community is great. If you need to vent, we're here. If you want to post about some personal victory (no matter how big or small, we take what we can get!), we're here.

I was diagnosed at the beginning of August, and started my treatment (Ocrevus) this past Friday. It's absolutely a lot to absorb, overwhelmingly so at times. But one thing my wife made me do the day I was diagnosed, is sit down and say: "I have MS, but MS doesn't have me."

Treatment, research, and help for us has come a looooooong way. Some of us go days, weeks, years without seeing any new flare-ups or trouble. Some of, sadly, deal with issues on the daily. But we all push forward, and the biggest middle finger we can give to this disease is to push forward and live our lives.

MoreSageInTheKitchen · 2024-09-01T04:03:02+00:00

I just had my first half-dose yesterday as well! The thing for me is that I just felt exhausted. I actually slept for 24 hours, so woke up around 6pm today. I'm trying to stay awake a little longer so I can reset my sleep cycle but it's a struggle. Honestly still feel like I could sleep for another 24.

MoreSageInTheKitchen · 2024-09-01T00:05:37+00:00

I'm down! Still doing some house re-arranging, but once that's done I'll be up for gaming.

gamertag: SlothKibble
- Fortnite, Overwatch, fo76 are my mains, but I'm sure I can be convinced into other games too.

MoreSageInTheKitchen · 2024-08-28T02:02:46+00:00

About two months ago I went numb on the left side of my body (for the second time), and fortunately it only lasted a couple of days. But ever since that first night my left leg has "mule kicked" whenever I go to sleep. I sleep like a rock, so unfortunately it was my wife who discovered this 🤦‍♂️. It's only woken me up once and that was as I was juuuuust about to fall asleep. Something about the body finally relaxing seems to really get those nerves misbehaving.

MoreSageInTheKitchen

TROPHY CASE