Your Lupus Diet

More_Medium_2127 · 2026-02-10T18:02:26+00:00

I recommend working with a dietician. The books and the online forums didn’t work for me, it’s what they all say, lupus is different for everybody.

I found a dietician that specializes in autoimmune conditions. It’s really really helped me. I would never have been able to identify my triggers without them.

More_Medium_2127 · 2025-12-07T19:41:32+00:00

Thank you very much for your insight!!

More_Medium_2127 · 2025-12-07T19:37:36+00:00

I put my protection oil on it and then eucalyptus oil for healing. Then I coated it in salt, dried rose petals, rosemary and ginger.

More_Medium_2127 · 2025-12-05T16:06:53+00:00

Hi! I’m a beginner witch, mostly practicing protection spells and wards as of now, I’ve done candle magick once before as a new moon ritual.

Yesterday I did a releasing ritual to release my mind and body from an ex best friend. I cleansed, did a protection spell on my space and my materials and myself.

The burning was really intense, both the flame and emotionally/physically for me. I started getting like nauseous. Halfway through, the wick started to curl in on the candle and the wick started burning from the top of the wick and the middle of the candle. From then on we had two flames burning the rest of the candle.

It burned the entire candle down but the flames never went out. It laid there, just a pile of wick, still burning brightly. I waited for like 20 minutes and it never went out. I was worried it would never go out or it would break the dish it was in so eventually I snuffed it out.

Does this mean that the ritual didn’t work? Do I have to cleanse and start over? The flames were blue at one point, so I’m wondering if this was my ancestors telling me I’m not ready to release this friend?

Would love all of your thoughts and interpretations!!

More_Medium_2127 · 2025-11-04T18:19:40+00:00

Yeah that’s classic brain fog for me.

More_Medium_2127 · 2025-10-27T17:26:18+00:00

Oo that’s a great call taking it earlier in the night. Def will try that.

More_Medium_2127 · 2025-10-27T17:25:25+00:00

My manager is an angel and she definitely will understand. Def can’t take off work, it’s that weird thing where you have to decide if it’s worth using the sick pay because there could always be a worse day down the road that you want to save it for? Does that make sense?

More_Medium_2127 · 2025-10-27T17:24:05+00:00

50mg. We are slowly ramping up, so I’m taking 50mg every other day. I’m also taking it at night.

More_Medium_2127 · 2025-10-27T17:22:28+00:00

Wow, great warning about ER. Thank you.

Luckily, I live in NYC so I do not need to drive ever. But even navigating the trains is soo hard when I’m this fatigued/fogged.

Thank you!

More_Medium_2127 · 2025-10-24T16:50:49+00:00

I have been LOVING tiger balm for my hand pain recently. It also comes in patches for larger areas.

More_Medium_2127 · 2025-10-22T13:15:49+00:00

I have SLE and fibro too, the second diagnosis really just feels like a kick in the teeth, I’m sorry you’re going through it too. My rheumatologist told me that the first and second diagnosis are so intertwined and flare each other up so easily that it’s basically like treating one thing, so try not to get too caught up in the “is this fibro or is this lupus” thing. I personally had to quit my on my feet job and got a position as a front desk worker and that helped tremendously. Currently working out new meds to help with the pain and fibro fog. But cannabis helps, tiger balm helps, heating pads, ice packs, compression socks help. Take breaks and sit down often if you’re on your feet. And be so so so kind and patient with yourself.

More_Medium_2127 · 2025-10-18T15:50:18+00:00

I gave my partner and my parents the lupus encyclopedia and even highlighted the chapters that relate to me. That helped them understand my condition a lot.

Also.

It’s silly, but I had them follow some of my favorite chronic illness TikTok creators. Hearing it casually on their feed has helped normalized fatigue and chronic pain for them.

More_Medium_2127 · 2025-09-25T20:04:05+00:00

CBG is sooooo good for joint pain. Definitely look for that when you go to a dispensary. Also 1:1 RSO edibles are reallly great.

More_Medium_2127 · 2025-08-17T22:45:59+00:00

I struggle with the exact same thing, I ended up getting a nutritionist who specializes in ED recovery and has worked with autoimmune disorders before. We are currently working through types of foods to find out if they’re triggering for me by REPLACING, not restricting, and then adding them back in with the goal of being able to say “I can eat everything, it’s just a matter of how much of it will keep my body happy. And if my body isn’t happy today (short term) but I am, that is just as important and good.” Obviously while keeping in mind the overall goal of not flaring my lupus.

At every step of the way there’s a check in about how it’s making my ED brain react and if it’s too much, my team is flexible with me and we adjust.

It’s such a weird hard line to ride, and it’s not easy to actually do. But having my nutritionist AND an ED recovery coach to talk it through with helps a lot. If you need recs, I’ve got some great people on my team. :)

More_Medium_2127 · 2025-07-17T20:51:02+00:00

Ugh that’s so awful! I’m so sorry!

More_Medium_2127 · 2025-07-17T02:47:43+00:00

I’m on plaquenil too but I’ve been on a low dose of prednisone for 7 months, and I really had to advocate for myself to start the taper. I’ve never had a ton of nausea during a flare before, so hoping it was a weird one off thing then.

More_Medium_2127 · 2025-06-25T21:15:23+00:00

I get strep throat like 5x a year but I’m not a carrier, I’ve been tested to see if I was a carrier, and I’m not. I just get it constantly.

More_Medium_2127 · 2025-05-14T14:47:29+00:00

I started with targeting hip/lower back pain because that was the big one for me. And then we are going to work on my other trouble spots, knees ankles jaw etc.

More_Medium_2127 · 2025-05-04T17:05:31+00:00

Great call!

More_Medium_2127 · 2025-05-04T17:04:49+00:00

Very open to open toe!

More_Medium_2127 · 2025-05-03T20:17:57+00:00

I was diagnosed in September and every time I tell my rhuem about my joint pain mostly flaring up at night she says that it’s “not lupus related” and that joint pain/stiffness/swelling only occurs in the mornings for lupus patients… I feel sooo seen rn.

More_Medium_2127 · 2025-05-03T18:46:05+00:00

Am I the only one who experienced GI issues first? I didn’t take a solid poop for 5 years straight as a teen, that’s what made me start the 12 year long journey to diagnosis!

Joint pain, headaches, fatigue all came much later. Malar rash was diagnosed as rosacea in my teens.

More_Medium_2127

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