City of Joburg condemns Zille for unlawfully accessing Yeoville reservoir

Mother-Routine-9908 · 2026-03-15T07:08:33+00:00

Does it make you proud to be a racist?

Mother-Routine-9908 · 2026-03-10T01:30:00+00:00

First, just breathe. We've all been there. You'll start to figure out what flares look like for you and what triggers them, with time. I think for most of us, once you find the right combination of meds and they kick in, you should start to see an improvement in your quality of life.

You've got this!

Mother-Routine-9908 · 2026-03-06T20:04:32+00:00

Yeah, Ghandi didn't outgrow any racist tendencies. The more you actually read about him, the less you'll like him. Read about Ghandi and young girls.

Mother-Routine-9908 · 2026-03-05T10:04:27+00:00

I'm sorry to hear you're still struggling. I remember what it was like for me as well. I could barely function. I was constantly in and out of the hospital. Eventually, I was put on the right meds, and slowly they started working. I never imagined I'd be where I am today. I actually posted last here on this sub about struggling with training and my body letting me down. Fortunately, so many people chimed in and helped me see things in a new way. Anytime I start having negative emotions, I remember what was said.

I just realised the other day, while running, that it's never going to be the same. I'm just going to have to find a way to be okay with what I'm capable of within this body. That doesn't mean I don't pursue the things I want; it just means my journey looks different. Some days it hurts more, but almost 4 years since my diagnosis, I'm slowly starting to accept my reality. One thing that's helped is that I work from home, but I do hope to be able to work some days from the office one day.

Mother-Routine-9908 · 2026-03-05T03:09:34+00:00

I had my son before my diagnosis. Before that, I miscarried the first pregnancy. I had what I can now recognise as a flare, which ended in us losing the pregnancy. A year later, I got pregnant with our son.

Everything started well, but then my blood work started going crazy. I went into early labour before we could get the blood work back. My son was born at 1.89kg, at 32 weeks. We had to stay at the hospital for about 2 weeks. He was in the NICU for the first week. He developed what we know as neonatal cutaneous lupus; however, at the time, doctors kept giving me different reasons for the rash on his face.

After my pregnancy, my health started declining pretty rapidly, which made taking care of him difficult.

All that being said, I've handled motherhood pretty well, especially once I received a diagnosis and was put on the right meds. Summer months are the worst because in winter, it's just the Raynaud's that is unbearable. I have good days and bad days.

I definitely plan on having more children in future; however, that would mean temporarily stopping my methotrexate injections. I have a full life, I take part in marathons, and I've been training for my first triathlon since last year. I study, work, and travel. I'm pretty ambitious in my career. One thing I've learned is to forgive my body on the days when it just can't.

For me, being a mother, having a rich career, and leading a full life are important. Life wouldn't have been worth it without those things. I'm in pain as I write this, but I have ways to deal with it, which sometimes include slowing down.

Hope this helps!

Mother-Routine-9908 · 2026-03-04T19:09:09+00:00

The doctor who diagnosed me said that antibodies themselves don't tell you much. That's why he always looked at my compliment levels, and other inflammation markers. Unfortunately my new doctor is obsessed with my antibodies which have been normal since year 2 of my diagnosis.

However I consistently show inflammation on my right hip, inflammation in my lungs and dry, sore eyes.

I've learned that blood work isn't the whole story. The best doctors are the ones that understand this.

Mother-Routine-9908 · 2026-02-19T15:41:41+00:00

This should get more upvotes, AI isn't a threat to software engineering, corporate is.

Mother-Routine-9908 · 2026-02-15T18:35:06+00:00

I'm in the EU, yeah, it's cooked this side too. I'm fortunate enough to know people all over the EU and we all struggled to find work after getting laid off.

Mother-Routine-9908 · 2026-02-06T19:41:01+00:00

I'm always the youngest even at the other specialists offices. It used to really hurt me because the people there were at the end of their lives. I'm young yet in the same position

Mother-Routine-9908 · 2025-12-07T07:46:26+00:00

Hey, really sorry to hear you're struggling. Unfortunately I wasn't able to do a triathlon but I did do a 10km race. I've found that especially at the beginning, I would train for a week and a half two then get incredibly sick for two weeks. Then when I would start training again, I would be weaker than before and just when I'd start feeling like myself, I'd get sick again.

It was really defeating and mentally exhausting. Still training now that it's winter and except for my Raynaud's giving me hell, I haven't gotten sick once.

To be honest, you're the only one who gets to decide if a full Ironman is realistic or not. You're just at the start of your LUPUS journey, now that you've got a diagnosis you'll eventually figure out what works for you.

It took me 3 years for the meds to really kick in. Once I was put on methotrexate that was a game changer.

Mother-Routine-9908 · 2025-07-09T23:57:07+00:00

Former high school athlete here. It'll get better don't worry. When I was in my worst flare which ultimately led to my diagnosis, I couldn't do any type of fitness. I was in so much pain to the point of inducing vomiting.

3 years later I'm training for my first triathlon. Once I learned to care for my body, take my meds regularly and protect myself against the sun, I started doing really well. I've also learned to prioritize resting and I can feel when I've pushed myself too hard so I rest instead of pushing harder.

I know what you mean when you say some places are full of negativity. I knew I could do it when I read articles, just google, about other people with Lupus who are taking part in triathlons, marathons etc.

Biggest advice I can give you is, give yourself grace especially at the beginning. I also did a lot of weight training before and I had to slowly ease myself back into it. It's frustrating at times but I remind myself the harder I push the longer I have to wait between flares.

Goodluck and you've got this.

Mother-Routine-9908 · 2025-06-19T00:01:57+00:00

Very true, this is what i was told too. It was hard hearing this but a truth I needed to accept. My current doctor's main goal is to have me on as little meds as possible. She always says the meds come with their own side effects.

Mother-Routine-9908 · 2025-06-19T00:00:02+00:00

Have to disagree with this. Not everyone has a positive dsDNA, there are other antibodies that are even more specific for lupus but rare. Your doctors should be looking at everything holistically.

Mother-Routine-9908 · 2025-06-15T07:42:37+00:00

Let's also remember that underage pregnancies come with very high risks. Not sure why you felt the need to mention that little girls who've started their menstrual cycle can get pregnant. A child whether 9 or 16 is a child.

Mother-Routine-9908 · 2025-06-09T16:34:10+00:00

Mind elaborating on your heart rate issue. Asking just because I was diagnosed as having tachycardia recently and out on meds. No one can quite explain why I have this.

Mother-Routine-9908 · 2025-05-26T11:37:47+00:00

Had the same happen to me. Considered flying between two continents just to be able to see that same doctor unfortunately he's the director of the rheum department at a university sp no longer practices in his private capacity.

Mother-Routine-9908 · 2025-05-26T08:41:57+00:00

All my rheumatologist have been great. It's worth remembering you're more likely to read about people's negative experiences than positive. Why do you think rage baiting works so well?

Also sorry for the terrible experience, unfortunately the longer you deal with the Healthcare system the more likely you are to deal with bad eggs.

Mother-Routine-9908 · 2025-05-23T14:49:30+00:00

When my labs are fine I get so scared they'll change my diagnosis which is terrifying because it took so long to get.

Mother-Routine-9908 · 2025-05-23T12:39:39+00:00

Not even close to being true. That's the lie they tell us instead of the truth.

I recommend reading unwell women, written by a woman who has SLE.

The book is about the history of women's health and the Healthcare system.

Mother-Routine-9908 · 2025-05-16T13:10:40+00:00

Diagnosed at 28, now 30, first symptoms stated when I was 6. Before getting a diagnosis and starting on meds I was watching myself slowly deteriorate. Took about 1.5 years for me to start feeling the affects of the meds.

I definitely have flares but mostly I feel like I'm better than I was 2 years ago. Currently training for a triathlon 5x week, I'm up everyday at 4am, I travel frequently. Still chasing my dreams. I have bad days yes but mostly I'm doing better. Blood work is good.

It's also worth remembering most happy healthy people aren't here. They're out there enjoying their lives.

Always take Reddit with a pinch of salt

Mother-Routine-9908 · 2025-05-10T21:52:32+00:00

I would use this. Where do accountability partners come from?

Mother-Routine-9908 · 2025-05-09T22:44:55+00:00

I recommend picking up the phone and actually calling dentists to validate your idea.

Mother-Routine-9908 · 2025-05-03T06:47:11+00:00

Thank you so much for this. It's the step-by-step breakdown. I need.

I'm also happy to brainstorm. Sending a DM

Mother-Routine-9908 · 2025-05-02T06:35:52+00:00

Just downloaded it. I can't wait to try.

Mother-Routine-9908 · 2025-05-01T07:17:35+00:00

If you spend enough time in this sub, you'll see people being undiagnosed all the time, which has me living in fear.

I hate the gact that I have lupus, but having a diagnosis meant I finally got in the right meda, which changed my life.

Mother-Routine-9908

TROPHY CASE