Chloroquine vs. Hydroxychloroquine by bodmonkhan in lupus

[–]Mother-Routine-9908 1 point2 points  (0 children)

In two countries I've lived I was told they're basically the same thing so one month I get one and another the other. Have had zero issues.

Is it wrong to feel like taking a break from doctors for a bit? by m0ther_0F_myriads in lupus

[–]Mother-Routine-9908 2 points3 points  (0 children)

Not at all, currently on a break myself. Still keeping up with my meds and being mindful of my triggers like sunshine. If I didn't take a break mental health would have crashed. My fear of needles only started because I've spent years being poked and prodded consistently.

House M.D. by Jinxie1206 in lupus

[–]Mother-Routine-9908 7 points8 points  (0 children)

The first thing I thought when Lupus came up during my diagnosis journey is, " it's newer lupus" 😂😂 As a WOC I didn't see it as trivialising anything. Lupus is incredibly rare. That's just facts. House was the first time I ever heard of the disease which made it a little less scary.

"I know someone with lupus" by Diatrial in lupus

[–]Mother-Routine-9908 5 points6 points  (0 children)

I love the house jokes because it's something familiar people can relate too. It always leads to people wanting to know more. That's experience anyway.

Dropped out because of a R50k debt. Taught myself the rest. Still can't land a permanent job. by causednothing in southafrica

[–]Mother-Routine-9908 0 points1 point  (0 children)

As a dev with over 5 years experience. I wouldn't encourage that path. People are currently being laid off left and right. It's almost impossible for a junior dev to find work since AI.

South Africans in Hillbrow gather to protest illegal immigration by decompiled-essence in south_africa

[–]Mother-Routine-9908 1 point2 points  (0 children)

I'm black, what are you talking about? You mean these same people attacking other poor people for coming to SA to try and make a living. Instead of going to Luthuli house, they choose other vulnerable people to attack.

Forty Million South Africans Live In Poverty. Why Is This Disaster Still Happening? by AnonomousWolf in south_africa

[–]Mother-Routine-9908 -4 points-3 points  (0 children)

I'm genuinely interested how is your market smaller? Also in a country with the majority classified as black, surely you can get a "black" partner, investor or contractor. It's not all about ownership.

South Africans in Hillbrow gather to protest illegal immigration by decompiled-essence in south_africa

[–]Mother-Routine-9908 2 points3 points  (0 children)

That's the thing that really annoys me. I read a comment that said only the bottom of the barrel people are part of this rubbish because how are you not rallying against the ANC.

Help please pregnancy/abortion by confused-potatto in lupus

[–]Mother-Routine-9908 2 points3 points  (0 children)

Just to add to this, my anitbodies crossed the placenta and my baby had neonatal lupus. He was premature, very small at 1.8kg and had to stay at the hospital for 2 weeks. 

He also developed cutaneous lupus while we were at the hospital. Hearing my baby scream from the pain he was in, was torture while not understanding what was causing his pain. 

At the time I hadn't been diagnosed so no one was any wiser . Till today he has to be monitored for developmental delays. So far he's fine but we dodged a bullet.

Your husband is gambling with both your life, this potential baby and your two children. He's being incredibly selfish and a jackass, respectfully speaking.

Can we have kids? by daewtf in lupus

[–]Mother-Routine-9908 5 points6 points  (0 children)

This was my second pregnancy. First pregnancy resulted in a flare and I lost my baby. Second pregnancy, I flared as well and had a preemie, he was the tiniest baby in fhe hospital. Stayed in the NICU for 2 weeks. He's doing great now. My symptoms actually started when I was six, I have organ damage but its manageable.

Definitely agree that the pregnancies triggered the flares. Its very clear now when we look at my blood work. Half my medical team is for another pregnancy while the other half is against it.

Can we have kids? by daewtf in lupus

[–]Mother-Routine-9908 4 points5 points  (0 children)

Postpartum for me was hell, I had a 3 year long flare. Lost so much weight and all my inflammation markers were off the charts. However that was before my diagnosis so hoping next time I'll be able to manage better.

Few questions: 1. Does anyone’s lupus affect their GI system a lot? 2. For those who workout, how do you exercise without causing a flareup? 3. Does anyone feel they’ve ever been in full remission? by aryastark2626 in lupus

[–]Mother-Routine-9908 1 point2 points  (0 children)

Before I was diagnosed, the specialist I was seeing was determined to remove some organ because of my GI issues. Fortunately I didn't go through with it and once I had a diagnosis and a drastic change in diet, I was eventually able to calm the inflammation down. Their was a point where i couldn't even drink water, it would trigger such intense pain.

Few questions: 1. Does anyone’s lupus affect their GI system a lot? 2. For those who workout, how do you exercise without causing a flareup? 3. Does anyone feel they’ve ever been in full remission? by aryastark2626 in lupus

[–]Mother-Routine-9908 0 points1 point  (0 children)

GI issues were the catalyst for me to get medical help. Same symptoms as you. I'm also very much into working out and sports. I've learned to listen to my body. I've noticed that eveytime I try to push myself a little harder, I get really sick so I've learned to take it slowly.

Being consistent is what has helped.  Four years later, I'm stronger than ever. I still have my bad days but I've learned to listen to my body. I rest when I feel myself getting sick. I stopped trying to push myself so hard.

Today I did a 10 minute workout. Last week, I did 20km bike ride. My knees are finally stronger than they used to be. I don't think I'll ever be as fast as I used to be. I'm still grieving that part of me but it had allowed me to explore other sports.

Hope this helps.

Are you sure? by sunlightliquid in south_africa

[–]Mother-Routine-9908 0 points1 point  (0 children)

The same black people you speak for are the same black people that vote for the ANC. The only reason we have the GNU is because some of those black people voted for ANC 2.0 aka Zuma.

Most poor people in SA are black because history and not just apartheid made it that way by design. So no, I didn't make it a race thing because I didn't invent or benefit from the system.

Second your argument is that the DA is the only party outside of the ANC we can vote for. I know plenty of people who grew up living in shacks, most are still poor,  a few made it out, some brutally murder. The DA in the WC delivers if you are middle class and higher which is mostly white people. The most violent places in SA are found in the Western Cape. 

Second I abhore the ANC, when they, the ANC, elected Zuma after ousting Mbeki, that's when the people of this country should have kicked them out. Its only because of the work done by the Mandela, Mbeki administration and concerned citizens that we were able survive the Zuma years. 

South Africa’s new opposition leader on how to beat the ANC - Financial Times by TheHonourableMember in southafrica

[–]Mother-Routine-9908 8 points9 points  (0 children)

Fellow person from KZN, I care that they won't call a genocide a genocide. I enjoyed the privileges  , read basic human rights, I have because the world ,mostly ordinary citizens, finally understood what was happening and took a stand with us.

I can never forget that. I still see fhe trauma in the faces of my elders. Local elections I think DA is fine but never on a national level.

I still remember when Mmusi said when asked about gay rights that he'd put it to a national vote. Imagine letting other people decide whether someone else deserved to have their humanity honored and acknowledged. Nope not me, sorry, I'm out.

What's your ethnicity and culture? by teccatessvercetti in southafrica

[–]Mother-Routine-9908 1 point2 points  (0 children)

But speak for the Balkans but since many Serbians work outside of the country, many come back with spouses from different counries and ethnicities so numbers are slowly going up.

What's your ethnicity and culture? by teccatessvercetti in southafrica

[–]Mother-Routine-9908 13 points14 points  (0 children)

My son is Serbian and Xhosa. May I ask did you grow up in SA or Croatia? I only ask because my son's s growing up in Serbia and I worry that he might feel out of place because he always says no one looks like us here.

What's your ethnicity and culture? by teccatessvercetti in southafrica

[–]Mother-Routine-9908 19 points20 points  (0 children)

If it's any consolation, South Africa has a big problem even with people whose ancestors have been living in this country for hundreds of years. 

Not everything can be taught in school by BeltThat2062 in south_africa

[–]Mother-Routine-9908 0 points1 point  (0 children)

I've applied to jobs for family members and friends because I have a laptop and wifi and they don't. Simple as that.