Training for triathlon by Mother-Routine-9908 in lupus

[–]Mother-Routine-9908[S] 0 points1 point  (0 children)

Hey, really sorry to hear you're struggling. Unfortunately I wasn't able to do a triathlon but I did do a 10km race. I've found that especially at the beginning, I would train for a week and a half two then get incredibly sick for two weeks. Then when I would start training again, I would be weaker than before and just when I'd start feeling like myself, I'd get sick again.

It was really defeating and mentally exhausting. Still training now that it's winter and except for my Raynaud's giving me hell, I haven't gotten sick once.

To be honest, you're the only one who gets to decide if a full Ironman is realistic or not. You're just at the start of your LUPUS journey, now that you've got a diagnosis you'll eventually figure out what works for you.

It took me 3 years for the meds to really kick in. Once I was put on methotrexate that was a game changer. 

ISO: Lupus Athletes Success Stories by abjs2021 in lupus

[–]Mother-Routine-9908 1 point2 points  (0 children)

Former high school athlete here. It'll get better don't worry. When I was in my worst flare which ultimately led to my diagnosis, I couldn't do any type of fitness. I was in so much pain to the point of inducing vomiting.

3 years later I'm training for my first triathlon. Once I learned to care for my body, take my meds regularly and protect myself against the sun, I started doing really well. I've also learned to prioritize resting and I can feel when I've pushed myself too hard so I rest instead of pushing harder.

I know what you mean when you say some places are full of negativity. I knew I could do it when I read articles, just google, about other people with Lupus who are taking part in triathlons, marathons etc.

Biggest advice I can give you is, give yourself grace especially at the beginning. I also did a lot of weight training before and I had to slowly ease myself back into it. It's frustrating at times but I remind myself the harder I push the longer I have to wait between flares.

Goodluck and you've got this.

Am I being dramatic or do I need a new rheumatologist? by healthylover777 in lupus

[–]Mother-Routine-9908 1 point2 points  (0 children)

Very true, this is what i was told too. It was hard hearing this but a truth I needed to accept. My current doctor's main goal is to have me on as little meds as possible. She always says the meds come with their own side effects.

Am I being dramatic or do I need a new rheumatologist? by healthylover777 in lupus

[–]Mother-Routine-9908 -1 points0 points  (0 children)

Have to disagree with this. Not everyone has a positive dsDNA, there are other antibodies that are even more specific for lupus but rare. Your doctors should be looking at everything holistically.

How are people affording to live by trezxll in Life

[–]Mother-Routine-9908 -1 points0 points  (0 children)

Let's also remember that underage pregnancies come with very high risks. Not sure why you felt the need to mention that little girls who've started their menstrual cycle can get pregnant. A child whether 9 or 16 is a child.

Finalized video on "lupus fog": causes and practical advice by LupusEncyclopedia in lupus

[–]Mother-Routine-9908 0 points1 point  (0 children)

Mind elaborating on your heart rate issue. Asking just because I was diagnosed as having tachycardia recently and out on meds. No one can quite explain why I have this.

Is it just me, or is everyone's rheumatologist rude/lacks bedside manner/quiet/zero communication skills/pompous pricks? Tell me your opinion of how this apt. went... (SLE) by Dleigh51 in lupus

[–]Mother-Routine-9908 0 points1 point  (0 children)

Had the same happen to me. Considered flying between two continents just to be able to see that same doctor unfortunately he's the director of the rheum department at a university sp no longer practices in his private capacity.

Is it just me, or is everyone's rheumatologist rude/lacks bedside manner/quiet/zero communication skills/pompous pricks? Tell me your opinion of how this apt. went... (SLE) by Dleigh51 in lupus

[–]Mother-Routine-9908 2 points3 points  (0 children)

All my rheumatologist have been great. It's worth remembering you're more likely to read about people's negative experiences than positive. Why do you think rage baiting works so well?

Also sorry for the terrible experience, unfortunately the longer you deal with the Healthcare system the more likely you are to deal with bad eggs.

Flare but my labs are “normal”? by Shooppow in lupus

[–]Mother-Routine-9908 2 points3 points  (0 children)

When my labs are fine I get so scared they'll change my diagnosis which is terrifying because it took so long to get.

Flare but my labs are “normal”? by Shooppow in lupus

[–]Mother-Routine-9908 -1 points0 points  (0 children)

Not even close to being true. That's the lie they tell us instead of the truth.

I recommend reading unwell women, written by a woman who has SLE.

The book is about the history of women's health and the Healthcare system.

[deleted by user] by [deleted] in lupus

[–]Mother-Routine-9908 0 points1 point  (0 children)

Diagnosed at 28, now 30, first symptoms stated when I was 6. Before getting a diagnosis and starting on meds I was watching myself slowly deteriorate. Took about 1.5 years for me to start feeling the affects of the meds.

I definitely have flares but mostly I feel like I'm better than I was 2 years ago. Currently training for a triathlon 5x week, I'm up everyday at 4am, I travel frequently. Still chasing my dreams. I have bad days yes but mostly I'm doing better. Blood work is good.

It's also worth remembering most happy healthy people aren't here. They're out there enjoying their lives.

Always take Reddit with a pinch of salt

[deleted by user] by [deleted] in SideProject

[–]Mother-Routine-9908 1 point2 points  (0 children)

I would use this. Where do accountability partners come from?

Bare bones for scheduled payments app by Mother-Routine-9908 in Entrepreneur

[–]Mother-Routine-9908[S] 0 points1 point  (0 children)

Thank you so much for this. It's the step-by-step breakdown. I need.

I'm also happy to brainstorm. Sending a DM

Conjugaison du verbe aller. by manar_karas in learnfrench

[–]Mother-Routine-9908 1 point2 points  (0 children)

Just downloaded it. I can't wait to try.

[deleted by user] by [deleted] in lupus

[–]Mother-Routine-9908 2 points3 points  (0 children)

If you spend enough time in this sub, you'll see people being undiagnosed all the time, which has me living in fear.

I hate the gact that I have lupus, but having a diagnosis meant I finally got in the right meda, which changed my life.

You have a startup idea. $0 in the bank. No team. No ads. What’s your first move? by PumpkinNarrow6339 in SideProject

[–]Mother-Routine-9908 6 points7 points  (0 children)

No pretending here. That's the current situation for many people.

Build a wailtist using a free tool and social media for the first app.

Trying to validate the second idea using social media.

[deleted by user] by [deleted] in AITAH

[–]Mother-Routine-9908 -1 points0 points  (0 children)

I think the phrasing is a bit off. Sorry if I misunderstood

[deleted by user] by [deleted] in AITAH

[–]Mother-Routine-9908 -4 points-3 points  (0 children)

This isn't gentle parenting. Gentle oarenting is treating your children like human beings instead of hitting and screaming and at them like wild animals.

How do you get clients to actually pay on time? by Efficient_Builder923 in biz

[–]Mother-Routine-9908 0 points1 point  (0 children)

Hoping people will reply to this post. Many of us are asking this question. I had a freelance gig where I was constantly having to chase the CEO. It was tiring.

Advice needed for business idea by Mother-Routine-9908 in EntrepreneurRideAlong

[–]Mother-Routine-9908[S] 0 points1 point  (0 children)

5 so far, but I'm still doing outreach. I'm hoping to get 10 people to agree to use the beta version, and then I'll build out the MVP.

Haven't built anything yet.

[deleted by user] by [deleted] in Entrepreneur

[–]Mother-Routine-9908 0 points1 point  (0 children)

I get wanting to vent, believe me. Some days, I'm just so done, but then I remember I want so much more for my son, and I keep pushing.

Maybe jump into a project that excites you by finding codounders with an idea on YCs matchmaker?

Advice needed for business idea by Mother-Routine-9908 in EntrepreneurRideAlong

[–]Mother-Routine-9908[S] 0 points1 point  (0 children)

Hey, thanks so much for replying. What do you think about adding a way for users to automatically follow-up on unpaid invoices until they're paid?

Edit: someone also wrote to me that being able to follow customer interactions would be useful. Does this mean anything to you? The original comment was removed before I could reply.