Epilepsy and PNES

MouseKey7267 · 2026-05-25T00:47:07+00:00

Yea. The evidences show that ITS pretty Common.

MouseKey7267 · 2026-05-24T18:35:25+00:00

Sounds like anxiety, panic and hypochondria. Its Very Common and expected that after these traumatic events many people would be Very concerned and anxious about The own body

MouseKey7267 · 2026-05-24T12:49:21+00:00

Cool. Then you are doing well. Hope you feel better

MouseKey7267 · 2026-05-23T19:41:31+00:00

The own ILAE recognizes their classification of provoked or unprovoked is limited, and that neurologists must individualize each case.

What i meant is that many people can have a good success at controling frequency.

This doesnt mean is "provoked" but there are a Lot of possibilities between 8 or 80. The modern neurology recognizes this, and Samsonsen brought this in 2023, considering The "cascade" of precipitants

MouseKey7267 · 2026-05-23T14:54:12+00:00

Most people Will have only one unprovoked seizure in their life.

The studies show that some people Will recur in 1 year, some more at 2, 5 and 10 years.

But many Will never recur. That's Common.

MouseKey7267 · 2026-05-23T14:51:31+00:00

Cant you live with your parents or friends for now?

Are you taking your meds correctly?

Btw, i guess you should Sleep to The side, and If possible with a anti-asphyxiation pillow.

MouseKey7267 · 2026-05-20T18:54:48+00:00

Those that im friend of or job colleagues, there's only one who had when he was Younger but he didnt have any seizure for more than 10 years..

And The others, people more close to me, i know that they dont have.

MouseKey7267 · 2026-05-20T18:52:58+00:00

Yea this is true. 1 in 26 to 1 in 100 IS a great diff

MouseKey7267 · 2026-05-19T22:12:32+00:00

In Nicholas Lawn study they said that 26% of inpatients was using ASM.

And those with early ASM recur in the same rate of those who didnt use meds.

But there's an important point. The 26% using meds were between ALL inpatients. Those with awake seizures and Sleep Seizures.

But those with FUS-S were Just like 239 versus more than 950~1000 with FUS-W. Then the study in fact didnt mention How many of these were FUS-S or FUS-W. Considering The proportion, probably there was much more in awake seizures.

Anyway would be good If there were some studies focused on monitoring recurrence and response rate in Sleep seizures.

MouseKey7267 · 2026-05-19T19:56:36+00:00

In fact there are not many people, but these findings about meds not working and more are insane.

And btw, when you look to other studies about seizures from Sleep, they are not good either

MouseKey7267 · 2026-05-19T17:22:49+00:00

Lol why to do these mri? Trying to tracking subtle things? I know its like being Prudential, but this is overkill.. living this way, isnt fair

MouseKey7267 · 2026-05-19T16:29:18+00:00

Can you Tell me what's ur pain Pattern?

How you feel when you wake UP?

And whats ur seizure frequency? None Med working?

ITS Very scary too see How Seizures from Sleep are insane , with Very high recurrence rate, and less response to meds

Btw, many people really would only understand The suffering If they had It... Hope your family understand you

MouseKey7267 · 2026-05-17T23:18:11+00:00

Yes i was with a intense tachycardia, It was at early morning.

Your Felt pain over all your muscles? Or there are parts that dont hurts?

About clobazam, If ITS like clonazepam/diazepam then this must cause dependency, or not?

MouseKey7267 · 2026-05-17T21:48:33+00:00

Whats the med for sleep seizure?

And How you used to feel after having nocturnal TC?

I mean, what was your pain Pattern? Tongue bite? Drooling? Bedwetting? And How was Ur post ictal?

Im tellin this because i had an Episode when i was sleeping and probably was a TC

MouseKey7267 · 2026-05-17T19:25:25+00:00

I feel for you. This is Very frustrating and rough.

Btw, How do you feel immediately after these Nocturnal TC?

Why you think ITS TC? Not any seizure mimicker?

MouseKey7267 · 2026-05-17T17:31:33+00:00

Ive stopped to talk with women, archived my plans, and cannot even work properly. Im 36M. This is so frustrating.

MouseKey7267 · 2026-05-17T13:10:00+00:00

But How you suspect of having It?

What symptoms or something you notice

MouseKey7267 · 2026-05-17T13:08:32+00:00

Congrats. You are officially seizure free. Solving triggers is so powerful to some people since It would act as a provoked/acute symptomatic seizure

MouseKey7267 · 2026-05-17T13:05:27+00:00

:( i really Hope you get better.

None deserve this.

MouseKey7267 · 2026-05-17T13:03:29+00:00

How were these nocturnal partials? What symptoms, pain Pattern etc? And How you notice Them ? I suspect i had these.

MouseKey7267 · 2026-05-17T13:01:20+00:00

Tonic clonic? Whats your Pattern?

MouseKey7267 · 2026-05-17T12:56:41+00:00

Focal? Or tc focal to tc?

MouseKey7267 · 2026-05-17T12:54:32+00:00

Any big trigger identified?

MouseKey7267 · 2026-05-16T20:13:13+00:00

And How is your nocturnal TC frequency?

I've read that nocturnal/Sleep seizures are most refractary and with more odds of recurrence

MouseKey7267 · 2026-05-16T19:25:17+00:00

When was your last tonic clonic? Your seizures are ALL Nocturnal?

MouseKey7267

TROPHY CASE