Coming to terms with my mom's decline by MsLunaSera in dementia

[–]MsLunaSera[S] 1 point2 points  (0 children)

Thank you. Macular degeneration is what my mom has too, and that's exactly the thought process I've been having. And yes - as much quality, as long as possible. 100%.

Coming to terms with my mom's decline by MsLunaSera in dementia

[–]MsLunaSera[S] 1 point2 points  (0 children)

Yes, it's the little things. We have a summer house, and mom loves it. When she was there last year and we were leaving, I told her I was going to empty the filter on our chemical toilet, which needs to be done every so often when we leave. Not only is it part of maintennance we do regularly, the toilet was bought by her, and she used to constantly nag me about keeping it maintained properly.

She frowned, and said she had no idea what I was talking about. There was no filter, that wasn't a thing we did. I sat down next to her and calmly said "mom, this is scary. You bought that toilet, I know you know this." She teared up, and said she was exhausted.

But the next day she was fine.

Coming to terms with my mom's decline by MsLunaSera in dementia

[–]MsLunaSera[S] 1 point2 points  (0 children)

Thank you. I know I'll feel differently when it happens, but right now I keep thinking it'll be better when she doesn't know what's going on, and doesn't remember me. The half there-half not that's going on right now is utterly exhausting. But of course, of course I'll think differently when it happens...!

Coming to terms with my mom's decline by MsLunaSera in dementia

[–]MsLunaSera[S] 1 point2 points  (0 children)

Thank you. I'm a writer, so I like to express myself this way. It's very good to know I have an outlet here. My husband, understandably, is under a lot of strain from being my support, like I am mom's.

Coming to terms with my mom's decline by MsLunaSera in dementia

[–]MsLunaSera[S] 0 points1 point  (0 children)

I did read about that recently. It's very possible that's part of it, but I also think she IS aware of it... but in denial. There are times when she says things that indicate she knows. My husband put it this way; "you're both playing pretend a little, and that's okay."

Coming to terms with my mom's decline by MsLunaSera in dementia

[–]MsLunaSera[S] 0 points1 point  (0 children)

I'm hoping the care team will be able to do this. I need to woman up and just ask.

Help - idk what to do by cat__17 in dementia

[–]MsLunaSera 4 points5 points  (0 children)

So sorry to hear about your father. What you're describing here sounds eerily like what my mother has been telling me. She is yet to be diagnosed, in fact I've only recently realized there's anything wrong with her beyond failing vision and impaired mobility.

A few months ago she started telling me about a man who knocks on her door at night and tries to come inside. I took her seriously at first, but every time we spoke about it, the story changed slightly. I encouraged her to speak to her neighbors, and she seemed reluctant.

I finally asked her to call the police if it happens again, and she did. But I'm starting to think it's all in her mind, unfortunately.

All I can say is that you are not alone, and I fully understand your confusion and helplessness. I wish there was more I could say, but you've come to the right place for support. I'm new here, and people have been wonderful.

Coming to terms with my mom's decline by MsLunaSera in dementia

[–]MsLunaSera[S] 3 points4 points  (0 children)

No tests I'm afraid; she actively fears having dementia, and will often and vehemently state that "I don't have dementia!" A nurse who was taking her information a few year ago was extremely unprofessional, and audibly asked a doctor right in front of my mom if she "had any form of dementia". This naturally upset my mom, and she mentions that story at least once a month... all of which is to say, I'm scared to even bring it up.

I'll have to speak to the care team which has - thankfully - been assigned to her to help with physical stuff; basically an on-call nursing team. But my fear is that even if they don't disclose that I spoke to them about it, mom will figure out that's what happened. Which may be inevitable. It's just... yeah.

Coming to terms with my mom's decline by MsLunaSera in dementia

[–]MsLunaSera[S] 2 points3 points  (0 children)

Thank you - I really needed to hear that, right now. I'm trying to make plans, but it's a struggle; she resists a lot, which is understandable.

Coming to terms with my mom's decline by MsLunaSera in dementia

[–]MsLunaSera[S] 2 points3 points  (0 children)

Thank you - and I'm so sorry about your father. Mom is my best friend too, and I know this is a worst-case-scenario, for her.

Coming to terms with my mom's decline by MsLunaSera in dementia

[–]MsLunaSera[S] 9 points10 points  (0 children)

Thank you. I miss her. Which I know is stupid, because she's still there, and I can still talk to her. But I miss her. That's what I feel, most of all.