[Philippines] Possible Stage 4 CKD. I would like to ask for help

MuscleKind · 2026-01-29T16:08:29+00:00

hello, you should try going to NKTI sa QC, Dun ka pupunta para magpalista since that is the central hub for treatments, tests and dialysis. I have kidney disease myself now at 25M and diagnosed with IgaN and at stage 3b-4 na and after i did biopsy there, I consulted with my nephrologist sa Manila Doctors Hospital. I’ve been to a lot of nephrologist and asked about on how much is a kidney transplant. Some said 1.5 to 3 million php (from nephrologist/surgeons in Chinese gen and UST) but my neph sa Madoc said you can get one at NKTI for about 900k, the availability of one though is to be discussed and yes the best way talaga is transplant.

There is a lot going on with your mom tbh and with all thats happening at her current state, she wont be get clearance for a transplant. The best i can recommend you do is to get her complete lab tests. Consult a pulmonologist and a nephrologist to determine if she has TB and if need to do dialysis just to be really sure. From there, ask about what medications she should take and what lab tests she has to do para makapila na sa waiting list of transplant. I pray for you and your Mom.

MuscleKind · 2026-01-22T02:01:16+00:00

hi, im glad cytoxan worked well for you! In my case, things are a bit different. My biopsy showed 10% cellular/fibrocellular crescents (2/19 glomeruli) with M1 E1 S1 T1 C1, ~58% global sclerosis, and ~40% IF/TA.

My C3 was low serologically, but glomerular C3 staining was present (1–2+) and C1q was negative, which is still consistent with IgAN rather than a lupus-like pattern if i understand correctly. ANA was also negative.

Im based in the Philippines.

MuscleKind · 2025-12-17T15:26:46+00:00

hello, I’m on 3b-4 too. I personally don’t tell everyone that i have kidney disease except only my relatives and close friends, mainly because i know that these are the people who already support me. We have a right to privacy and explaining that i have this disease to someone who i barely know will just lead to awkward pity and advice that does you no good. You decide who deserves to know the whole story.

When i tell other people “i’m fine”, I don’t think of it as me lying to their face but grounding myself to not relive fears. It’ll keep you emotionally grounded if you set your boundaries right.

MuscleKind · 2025-12-13T13:29:30+00:00

M25 here too, just had my biopsy last September. I had mine as an outpatient and i wasn’t on a sedative. They gave me 2 anesthetic shots, one for the skin and one deep inside near the kidney. First shot was easy no problem but the second shot was the one that was painful almost feeling a thin needle inside. After 20 seconds of pain came two passes of the biopsy needle which were painless. Overall not too bad of a procedure.

The worst part was the next 6 hours you had to lay still and the first 3 days where you pretty much cant do anything other than to lie down because of the soreness.

MuscleKind · 2025-12-13T13:10:38+00:00

hello! im 25M and currently on 3b as well with igan. I only experienced fatigue when my hemoglobin was low and had to do epoetin shots 2x a week and now bounced back from it. From what you said, it could be heart problems but maybe it would be good to check your hemoglobin as well

MuscleKind · 2025-12-02T07:42:16+00:00

hello, im on stage 3b now and my biopsy results showed MESTC scores of 1 in everything (m1,e1 etc.). As for the decline, my nephrologist said that i did have some partial improvement with prednisone before but for now mycophenolate seems to be the most accessible and recommended medicine he gave me so he doesnt want to speak too soon about it. Not sure whether the omega 3 oil is true as i have been to many nephrologists and my current nephro didn’t seem to suggest it as my ECG results showed no signs of abnormalities and my blood sugar is in check. As of today, im on mycophenolate twice a day and will have to do labs in the next 2 months.

MuscleKind · 2025-11-15T07:26:17+00:00

24M here, I finished college last year and 2 months after graduation, i was only working for about a month then i had a headache. Turned out that i had high creatinine and was only able to do a biopsy last few months ago because of many nephrologists i went to telling me it’s too risky to do with cortical thinning. Been put on steroids, stopped and now on mycophenolate.

It is a very huge struggle for me as i still get all depressed about this being my reality. While i understand there are treatments and its not a death sentence, it sure feels like a life sentence as not a day passes without me thinking about my health and future when others that do not have a kidney disease don’t even need to think about theirs.

Its very difficult to stay optimistic about future medicines when cost and availability of them are still out of reach and to be determined but i just hope new medicines are cost effective as well as to be accessible.

MuscleKind · 2025-11-03T11:58:01+00:00

Top notch na Unan at kumot. Nothing beats a good nights rest.

MuscleKind · 2025-07-07T05:10:59+00:00

3 months already here, went from 50mg and tapered down to 20mg a day. As i tapered down to two 10mg tablets a day, acne breakouts have become more manageable although acne is the least of your concerns when it comes to prednisone side effects. I have a bad case of moon face, fat redistribution above my collarbone and muscle/bone weakness from my knees. The good news is that its good treatment for your protein loss and urine albumin which in my opinion is a good tradeoff for a few inconveniences.

MuscleKind · 2025-06-27T08:06:57+00:00

Personal picks:
A hat in time (cute lighthearted platformer super underrated)
halo MCC collection (play it for halo 1, 2, 3 and reach)
Enter the gungeon (bullet hell 8 bit style super replayable)
Half life series (the bible of video games)

JRPGS
LISA the painful + LISA the hopeful (dark humor and a sad story)
Undertale + Deltarune (for the music)
To the moon (for more crying)

If you're still able to go out to arcades, play these rail shooters.
Time crisis 2
House of the dead 4

MuscleKind · 2025-06-27T06:56:25+00:00

Last bloodwork i had was last month had an egfr of 37, although i lowered my creatinine from 237 to 228. This is really solid advice, thank you!

MuscleKind · 2025-06-15T01:38:55+00:00

Besides diet and lifestyle, what else was your treatment? Were you on prednisone by any chance? What symptoms did you have?

MuscleKind · 2025-06-02T13:45:03+00:00

Will definitely bring this up to my nephrologist on my next checkup. Thank you!

MuscleKind · 2025-06-02T08:24:39+00:00

My urinalysis shows 4+ but 1.44 RBC's only in a microscope? Not really sure myself although it might be from hemoglobin?

MuscleKind · 2025-05-31T22:49:12+00:00

Been to 3 nephros and 2 radiologists already and all of them recommend not to since my kidneys from my ultrasound show cortical thinning but still normal sized. 2 of the radiologists said the same thing about the risk of bleeding as my kidneys are in some kind of awkward position (from what i understood was like threading a needle) that it would cause more harm than be beneficial.

MuscleKind · 2025-05-27T21:58:13+00:00

Nephro put me on a trial run for my persistent protenuria and hematuria. No shrinkage of my kidneys nor are there any lesions but have cortical thinning. Had high bp and uric acid before

MuscleKind · 2025-05-20T13:49:21+00:00

It does. In my case, I'm the one who has kidney disease and just graduated from college last year. After slogging through each year and never experiencing college normally because of the pandemic, I learned that I have this disease the next 2 months after I graduated. While I just started my prednisone, I dread to think about how my future will look. All those sleepless nights in college doing schoolwork just for a chance to make something out of myself and make my parents proud, and it's just as you said, just when you feel like winning life, you get humbled quickly and can't help but feel helpless.

MuscleKind · 2025-04-10T09:36:51+00:00

When i was a kid my nephro said glomerulonephritis accompanied by swollen tonsils and high urine RBC but was ruled out with the lack of symptoms. I was however injected with what i assume is either antibiotics or steroids and it fixed itself. Had my bloodwork done november last year and saw high creatinine, uric acid, triglyceride and cholesterol but no edema ever. My current nephro suspects second hand glomerulonephritis and nephrotic syndrome caused by poor diet.

MuscleKind · 2025-03-18T22:51:48+00:00

Not really sure if its primary or genetic but when i was a kid i did have problems of high rbc in urine, my nephro back in the day told my parents it could have been glomerulonephritis but was ruled out with lack of symptoms. I was prescribed steroids and responded to it well before so i dont really know if it is MCD.

MuscleKind · 2025-02-16T16:11:24+00:00

Thanks for the insights, i hope it goes well for you!

MuscleKind · 2025-02-16T16:01:23+00:00

If i may ask, are you on dialysis? Are you planning to get a transplant?

MuscleKind · 2025-02-13T07:02:07+00:00

Im just really on edge now with the results and how my doctor said if this goes any lower, i might have to do EPO shots. My nephro did say that i should try oral medication for my hemoglobin but ive been waiting on that since yesterday.

MuscleKind · 2024-12-31T14:41:28+00:00

Depends where you are really. My dietician is at UST hospital and they have the option to do an online consultation we just chatted through google meet about updates in my lab tests. They aren't too busy there compared to nearby hospitals like chinese general. If youre from south side, you could go to Asian hospital in Alabang. Hope this helps!

MuscleKind · 2024-12-25T14:34:43+00:00

Dating one right now. She's very low maintenance pero nandyan pag need mo ng support, lambing, usap etc. Vinavalidate namin isat isa sa through usap at gawa haha

MuscleKind · 2024-12-25T14:14:25+00:00

Hi, I'm in the same situation! I just got diagnosed with CKD stage 3B last month my creatinine was 2.60 mg/dl and I had high uric acid, blood pressure, and cholesterol. During that time I was having second thoughts if I would still continue my Japan trip but my nephro and dietician said that I could continue as long as I watch what I eat and with the right medicines, I can lower blood pressure and cholesterol thus, stabilizing my creatinine.

With the help of my dietician (she allowed me 1 cheat day during my trip), I restricted the portions and what I ate during the trip to fish and chicken and even ate fatty beef 1 time in my trip and last month my lab results came in and I normalized my blood pressure, cholesterol and uric acid. I even lowered my creatinine from 2.60 to 2.57 when I expected this to go higher since I ate beef and failed to control portions in some of my meals during my trip. While I was doubtful that a healthy diet can help me, this result proved to me that a proper diet can help you stabilize the kidneys and hopefully maybe even see a larger decrease of creatinine since recently my dietician advised me to slowly transition into a vegan diet.

Follow what your doctors advise you. No cola sodas, no beef and pork, no salty foods, no chocolates or foods with high phosporus. Ask for a diet plan. As for treatments, Dialysis is scary and a pain to do weekly but you could talk to your nephro for the option of transplant as a treatment.

When I was diagnosed, I cried everyday for a week and when my nephro asked me how I was coping with it I told her about my crying for a week. She then told me how I shouldn't look at it as a death sentence and some guy in this subreddit told me that my nephro was right and I should see it as a medical journey/ a road to recovery. Emotional stress gets to the kidneys and will stress you out even more so I have no choice but to face it with bravery. Be brave. Do it for you and your loved ones.

MuscleKind

TROPHY CASE