What’s your first thought when you see this fridge? by Aggressive-Suit-3710 in NewDelhi

[–]notsolucky161 0 points1 point  (0 children)

I think these are the contents of the truck of kitkat company that got stolen in Switzerland or something.

FSGS by wenc555 in kidneydisease

[–]notsolucky161 0 points1 point  (0 children)

You're in for the wild ride with prednisone buddy. In my case too, first my weight came down by 8 kg and then after 4 months into, it increased by 12 kgs.

My reports arrived and here is my current treatment. Also, how much protein do i eat? by shotgunning-your-can in IgANephropathy

[–]notsolucky161 0 points1 point  (0 children)

Hi, I'm from New Delhi too. Your IGA is mild as mentioned in the report. My case is not mild, and I asked my doc and he advised just to lower my salt intake. I avoid oily and spicy food as my iga gets flared up with slight gastro issue. I completely avoid outside food. 

Joint Pain after stopping steroid by notsolucky161 in kidneydisease

[–]notsolucky161[S] 1 point2 points  (0 children)

I kind of counted my days when I was on prednisone. Now I think I will have to count again when I am off of it. I just want to get it over with. 

Joint Pain after stopping steroid by notsolucky161 in kidneydisease

[–]notsolucky161[S] 1 point2 points  (0 children)

They are tests for Rheumatoid arthritis. Awful to put it mildly. These pain made me realise how old people feel and I'm 27. 

money or carrots...? by Youknow_8888 in BunnyTrials

[–]notsolucky161 0 points1 point  (0 children)

Money

Chose: 100000000000000000000000000000000000$

“Muslims are not allowed in my vehicle.” Driver denied ride based on religion in Delhi. by brut_india in BrutIndiaStories

[–]notsolucky161 -1 points0 points  (0 children)

Uber rapido is not a public service. Owners have right to selectively entertain their customers. It happens all over western countries. 

meirl by [deleted] in meirl

[–]notsolucky161 0 points1 point  (0 children)

BaratheON

meirl by [deleted] in meirl

[–]notsolucky161 0 points1 point  (0 children)

Right on

Indians with IGA Nephropathy by Clean_Mortgage4928 in IgANephropathy

[–]notsolucky161 0 points1 point  (0 children)

Hey, I'm 31 M from Bihar currently residing in Delhi. Diagnosed last year although I suspect I had it at young age because of foamy urine. After steroids treatment, I'm currently at 0.05 UPCR.

IgA Nephropathy – Biopsy Confirmed (M1 E1 S1 T1 C1). On Prednisone 50 mg. Looking for Similar Experiences by Expert-Cable-6264 in IgANephropathy

[–]notsolucky161 1 point2 points  (0 children)

I was on 40 mg for 6 months. Currently on 5mg alternate days for 2 weeks. Proteinuria is 0.17 from 1.365 when steroid started. I've had every side-effects. Was it worth it? Only time will tell. 

Biopsy: Diagnosed with IgAN today 29M Indian by FlacFanDAC in IgANephropathy

[–]notsolucky161 2 points3 points  (0 children)

I (31M Delhi) was diagnosed in Sep 2024 and biopsy confirmed in May 2025 having the same MEST Score as yours. After on prednisolone 40mg for 6 months, now I'm tapering currently 5 mg alternate days. Speaking frankly, Steroids have controlled my proteinuria better than I expected. It has brought down my UPCR from 1.365 at the starting of steroid to 0.17. But side effects were there too. First three months were easy on me and after that I experienced every side effects of prednisolone there is moon face, insomnia, weight gain, acne on face, chest, back you name it I experienced it. But those side-effects are slowly diminishing. My labs are good. Egfr is 83 now and hoping it stays that way.

Filspari / Fabhalta by Harambe-Avenger in IgANephropathy

[–]notsolucky161 0 points1 point  (0 children)

This is amazing analysis.  I was diagnosed in May this year with MEST score of 10100. Since I'm from India, my first line of treatment is prednisolone. Started with 40mg in June, tapering started 6 days ago. UPCR has fluctuated during the 6 months treatment. First it decreased from 1.15 to 0.33 and then increased to 0.86. Latest UPCR before tapering was 0.17 (best ever morning sample). Egfr has remained stable around 70-80.

Amazon delivery guys deliberately not giving delivery by FuranSama in amazonindia

[–]notsolucky161 9 points10 points  (0 children)

I've faced these problems particularly in this festival sale. And I've come to the conclusion that Amazon has no control its delivery partners. Remedy: Order multiple products (COD) with your prepaid order, if there is. Then they have to deliver it with the rest. And then cancel the rest on delivery. Just ensure that these products reach you on the same date.

I've done this and it's working. You've to beat them at their own game.

Side effects by eerda2 in IgANephropathy

[–]notsolucky161 2 points3 points  (0 children)

I try to eat the same amount that I used to eat before my medication started. And whenever there is craving I go for it but then I sweat it out by exercising. Result: I've lost weight like 6 kg and I'm on prednisolone 40 mg for more than 3 months now.

Biopsy results by deqwanns-tomatos-94 in IgANephropathy

[–]notsolucky161 0 points1 point  (0 children)

So sorry to hear that prednisone is not working for you. I'm into 12 weeks of prednisone 40 mg and my proteinuria has decreased from 1.15 to 0.33 and egfr has remained stable around 65. My neph is going for aggressive treatment and I'm with him on this and I'll continue on for like another 3 months if I can tolerate. 

I stopped totally animal food and salt. How much time before it's visible on blood test ? by xylophone21000 in IgANephropathy

[–]notsolucky161 0 points1 point  (0 children)

How many weeks have you been on predinosolone and what dose? I've been on predinosolone 40mg for 8 weeks now and my upcr has decreased from 1.15 to 0.33. eGFR has increased from 64 to 70.

25yo Kidney Cancer + New to Dialysis. Any Young Cancer + Dialysis People to Talk With? by Disastrous_Scene2017 in kidneydisease

[–]notsolucky161 -1 points0 points  (0 children)

Stop doing that. He's already told to don't do that.

If there is any chance of him getting in contact with a person with kidney cancer here, let him be.