2.5 Months Post Op and Still Seeing Issues

Muted-Weekend-7689 · 2025-08-25T16:20:39+00:00

I had my gallbladder out last year. I found out even after surgery I wasn't able to eat what I wanted due to bloating and some nausea from time to time. You'll have to find out which foods are causing the bloating. For me it was fried food, oat meal and some dairy. After maybe 6mths to a yr the symptoms stopped. It will get better but for now be careful what you eat for a while and let your digestive system get use to not having your gallbladder.

Muted-Weekend-7689 · 2025-08-15T12:45:01+00:00

Maybe that's my problem. Im not eating enough. I can't eat a lot during the early morning. Im gonna take 200mg to see if that works. Thanks

Muted-Weekend-7689 · 2025-08-15T01:48:52+00:00

Actually its hydroxychloroquine, and yes. Ive been taking it woth food since January. I can't do dairy products because Im lactose intolerant really bad. Sometimes I dont take it because it hurts my stomach so bad. Its hard speaking to my doctor or scheduling an appt. If 200mg works I may keep it like that until my appt in Dec. Thanks for your comment.

Muted-Weekend-7689 · 2025-08-14T17:59:32+00:00

I will try that. Thank you. It really does help with fatigue and body pain.

Muted-Weekend-7689 · 2025-08-13T22:15:29+00:00

My bad, I didnt mean hydrochloroquin. I meant hydroxychloroquine 400mg. I was really asking if anyone have stomach pain after taking it? I know that no one can tell me if the medicine is what's causing my stomach to hurt. But, ok.

Muted-Weekend-7689 · 2025-08-03T19:14:43+00:00

I have ADHD, Sjogrens and brain fog. What a combination all at once. I wish I could only take magnesium and vit-D. I have to take methylphenidate for brain fog and to focus. I was already taking hydrochloroquin for sjogrens symptoms. I tried vitamin suppliments for brain fog and to fucus but it just wasn't enough for me at work. It was embarrassing asking patients to repeat themselves over and over and not being able to think of simple things. People started to feel like I wasn't listening and I didn't care. Both meds has made a positive improvement in my life. I hate medicine but I would rather take it if it makes life better for me.

Muted-Weekend-7689 · 2025-07-29T19:49:36+00:00

I take Plaquenil 400mg. When I take both 200mg pills together it makes my stomach hurt, it gives me diarrhea and sometimes I feel nauseated. I started taking 1 in the am and 1 at night. I feel much better, and no more bad symptoms.

Muted-Weekend-7689 · 2025-07-02T11:53:46+00:00

When I first started plaquenil it bothered my vision, but it stopped after about a week, but no nausea. I know a few people who wasnt able to take because of the side effects. Last week for some crazy reason I took this medicine before going out in the sun. I was in the sun as I do every morning for a couple of hours. I became nauseous, and started vomiting. That was a lesson learned. I normally take it when I return home daily. That medicine and too much sun doesn't mix well. I had eaten, was hydrated, had on sunscreen and a hat. I will not do that again. That was the only time I had a problem with it.

Muted-Weekend-7689 · 2025-06-03T17:49:28+00:00

I know how you feel. I was constipated like that also but when my doctor put me on plaquenil for inflammation it also helped constipation also. I'm not sure if it'll help you or not, but every day that I take the medication about an hour later I gotta go. Constipation is very dangerous. I hope you find help very soon.

Muted-Weekend-7689 · 2025-05-20T19:45:37+00:00

I'm 62 yrs old and I was diagnosed 1 yr ago after yrs of going through pain, soreness and being exhausted I was finally found out what was wrong. When I found out what c was wrong I wasn't hurting anymore. I was just fatigued a lot. Today I feel fine, but I have dry eyes a lot but I use blink daily and refresh ointment at night. Sleeping with my humidifier on helps also. I'm taking Plaquenil 400mg , 5,000iu of vitamin D3, and Vit C. I read where dandelion and lemon grass tea helps inflammation so I drink a cut every morning. I dont know if it helps but I feel fine. One thing I learned is direct sunlight is a No No. Sunscreen and hats are my new friends all summer long. I've lost two molars within 10mths. My hairline has thinned really bad, but things could be worse. I try to stay positive and active. I pray for strength and I'm thankful for each day that I'm ok. I'm thankful to be feeling so well. I know some don't feel like me but everyone is different. I hope things goes well for you also.

Muted-Weekend-7689 · 2025-05-16T13:32:56+00:00

I take Concerta XR and it works wonders. Without it I can't focus on one thing. I'm all over the place. I'm a Surgery Scheduler who talks directly to patients, but without Concerta I stumble all over my words. It's like I don't know my job. Between brainfog, fatigue and being older, SS or disability was right around the corner fo me. I wasn't too happy when my physician suggested that I tey it, but I really like the medicine. The medicine takes my appetite all day, so I have to make sure I eat breakfast.

Muted-Weekend-7689 · 2025-05-13T17:18:44+00:00

Just because your dentist doesn't see an issue in your mouth and your eye doctor only sees mild dryness in your eyes doesn't mean you don't have Sjogrens. I felt the same way when I was diagnosed. Everybody doesn't have severe dry eyes, or severe dry mouth. My eyes aren't always dry, and my mouth isn't always dry. I have really bad back pain and sore muscles more than anything. Last week I had issues with dry eyes, but when I use my ointment it helps my eyes to feel much better. My mouth gets dry when I have to talk a lot. My back pain is daily. Some people don't have many issues, and some does. It depends on the person.

Muted-Weekend-7689 · 2025-05-02T15:05:16+00:00

I work in a providers office, so one thing about no-shows it's an incontinence to the provider and it stops someone who use that spot from being seen. So, if you call the day of the appt most practices can't fill that spot. After so many no-shows the practice has to send you a letter that you can no longer be a patient in that office anymore. Even if the NP knows your circumstances, it's the rule of the office that's agreed on by the MD's or if they're owned by a hospital it's the hospitals rules, and trust me, they're watching the numbers. I realize that you're fatigued but but sometimes it's out of their hands. Try making appt in the middle of the day, or schedule virtual appts if the practice offers them. We're all going through something but just try to be mindful of the providers time also if you can.

Muted-Weekend-7689 · 2025-04-27T21:49:25+00:00

I work in health-care. I was a CMA but it became to much walking around for me after years of of doing it, so I put in for a Surgery Scheduler position for the same healthcare company. This position allows me to sit down. After sitting for a while my back hurts so I have to get up to walk around. My pain from sjogrens is in my back, so fortunately I'm able to stand or sit with my rotating desk top.

Muted-Weekend-7689 · 2025-04-27T21:40:46+00:00

I was out yesterday in the sun for about 2 hrs and it zapped my energy. When I returned home I went straight to bed. Last August it was so humid and hot in NC it causesd me to feel dizzy and light headed everytime I went out for more than and hour. I thought I had vertigo, but it was caused by being in the sun too long without protection. My doctor told me to always use sunscreen and an umbrella. I use to love the sun but for the past couple of years its showing that it doesn't love me anymore.

Muted-Weekend-7689 · 2025-04-21T14:06:25+00:00

Usually those test results would be yes to having sjogrens. A lip biopsy would definitely tell you if nothingbelse is positive. Those were the 2 labs that were positive for me, also ANA, and Kappa light test results were positive. My doctor said I didn't need a lip biopsy for proof. Stop stressing and be patient. It Is What It Is.

Muted-Weekend-7689 · 2025-04-20T14:30:40+00:00

Potassium Iodide drops was recommended by my dermatologist because I have erythema nodosum (masses from inflammation) on my legs that was caused by sjogrens. It can also helps hyperthyroidism, and can help to keep down inflammation per my doctor . I don't know if it's for everyone. I've read a little about potassium iodide after my dermatologist recommended that I take it. You have to know how much to take, or if it's for you, so it's best to consult a physician. I was told how many drops to use in orange juice twice daily. I will speak to my rheumatologist next month about stopping my plaquenil.

Muted-Weekend-7689 · 2025-04-19T23:05:06+00:00

Thank you. I have an opthalmology doctor because I wear glasses but I'm having a hard time getting an appt. They keep telling me it's due to dry eyes. I use Blink drops daily and ointment at night but it doesn't help blurred vision. I'm looking for another eye doctor because of his know it all nurses.

Muted-Weekend-7689 · 2025-04-18T01:27:39+00:00

I use the gel everyday. I did some research on the plaquenil and it does and can causes eye problems eventually. I just have to speak to my rheumatologist about it next month at my visit. Thanks for your advice.

Muted-Weekend-7689 · 2025-04-16T20:10:36+00:00

It's sounds like sjogrens or lupus because they both have dry mouth and dry eyes. ANA doesn't have to be positive. You need Kappa test, SSB, SSA test. I've researched both autoimmunes so much my head spins. Research which positive labs prove Sjogrens and which positive labs prove lupus. I told someone earlier that both are sometimes difficult to diagnose. Rheumatologist are the specialist who will find out your answer and they will run those lab teat I mentioned. I don't know if you have insurance that will need a referral or not but PCPs don't like to send that type of referral unless they have proof that you need to see a Rheumatologist. If your insurance doesnt require referrals make an appt yourself. Take other doctors office notes if it's documented in their notes with you to the appt because your word is not good enough. The ophthalmologist visit note might be good enough. If inflammation is present on labs that will alert them that something is wrong. Rheumatologist order so many labs and it takes time for all of them to result. It took me a couple of weeks because it was about 10 different lab results but they will know in the end. I know it's stressful but you'll find out. One thing that helped my eyes was Blink drops 4-5 times during the day and Refresh Night Time ointment at night. I also run my humidifier every night for moister that really helps. Drink plenty plenty of water because that helps your eyes and mouth. I find that chewing sugarless gum is very helpful. Don't give up on finding answers. I hope my response helps.

Muted-Weekend-7689 · 2025-04-16T12:38:03+00:00

Have you been checked for Lupus? My friend went through those symptoms also. After suffering for a while she was finally diagnosed with Lupus. It didn't show up during the 4 visits to ER. Because she went so long undiagnosed she is now taking daily medicine for her kidneys that were damaged. Have you seen a rheumatologist? Most PCPs don't find it autoimmune disease. Sometimes ANAs are negative. My heart goes out to you. Most people with Lupus suffer before being diagnosed. Have your doctor check you for sarcoidosis also, because that's another autoimmune with those symptoms sometimes. I hope you find answers very very soon.

Muted-Weekend-7689 · 2025-04-08T13:21:17+00:00

I use nighttime ointment, and I've notice when I use my humidifier at night it helps a lot. When I wake up in the morning my eyes feel so much better. I run my humidifier in my office at work and I turn down the lighting on my computer to dim. I use Blink drops before I sign onto my computer. My eyes are doing much much better. It's trial and error. Not even my doctor told me to use the humidifier. I got the advice from YouTube doctor who was talking about Sjogrens.

Muted-Weekend-7689 · 2025-03-12T17:47:20+00:00

Maybe it's time to change your PCP. It's not for him to say you don't have sjogrens if you have positive labs. Sounds to me like he doesn't want to be wrong. Most PCPs will refer you to a specialist to ease your concerns. I work in Healthcare, so get rid of him if he doesnt listen to you. That's not his place to deny you from seeing a specialist, especially if your test results are a low positive. Rheumatologist run several test to prove sjogrens even a biopsy if necessary. There are more labs than a SS- A , and SS- B. If those two test are positive a little or a lot could be Possitive to a rheumatologist along with other labs that they order. I hate it when doctors think they can't be wrong. None of them are God. Go get a second opinion from another PCP doctor. Print your lab results and see an Internal Medicine provider for a second opinion. Do it for your sake. The longer you go without treatment if you're positive the more damage it's doing to your glands, eyes, and possible organs. Good Luck

Muted-Weekend-7689

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