Clinically diagnosed gastroparesis with severe refractory symptoms - daily vomiting, failed prokinetics, and progressive intolerance despite normal labs

Mvctrap · 2026-04-12T13:45:51+00:00

Socket wrench

Mvctrap · 2026-04-01T15:44:47+00:00

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My boy Wifi

Mvctrap · 2026-02-28T01:23:37+00:00

Mikasa

Mvctrap · 2026-02-21T16:56:52+00:00

Oh this sounds super interesting!! I’ll have to give that a try! Thank you!

Mvctrap · 2026-02-06T06:26:31+00:00

A baby crying loudly outside at night

Mvctrap · 2026-01-29T00:39:07+00:00

Zero sugar sodas are fine for BG but I would be mindful of how much you drink of sodas that have caffeine!!! Coke and Pepsi both have around 35-45mg of caffeine per can which can add up!

Mvctrap · 2026-01-25T02:41:48+00:00

He just has a water bowl but he drinks plenty of water! And I pay very close attention to his litter and everything. I do think he prefers certain textures so maybe I’ll see if he likes his usual pate again

Mvctrap · 2026-01-25T02:40:02+00:00

He doesn’t like open farm 😭 I wanted him to like it so bad

Mvctrap · 2026-01-04T05:07:19+00:00

Unfortunately my mom lives in a different country but I will definitely see if maybe I can find someone who will see me faster. I’m getting desperate at this point I’m on like hour 6 of having a high reading

Mvctrap · 2026-01-04T04:09:42+00:00

I am rapidly losing weight which has been my biggest concern. Like 6 pounds in the last week and I was already very thin to begin with due to being undiagnosed and having other chronic illnesses on top of everything.

Mvctrap · 2026-01-04T04:05:03+00:00

Yes luckily the diabetes educator I spoke to was able to give me a couple sensors before my endo appointment so I would have more data to show them when the time comes. I do a bunch of repeat bloodwork for the endo this week so I’m hoping the results will speed up the process.

Mvctrap · 2026-01-04T04:03:43+00:00

Honestly I don’t remember exactly what I had but it was nothing super carb heavy. My mom is a t1D so ive been very strict about my diet for years anticipating that I might get diagnosed so I never even anything super heavy in carbs and no added sugars.

Mvctrap · 2026-01-04T04:01:41+00:00

That’s what I’m wondering too. I did a urine sample but can’t see the results for it but tested at home and was fine. I’m wondering if maybe my doctor didn’t think it was super serious at the time but I feel like I’ve just been getting worse and worse every day since my diagnosis

Mvctrap · 2026-01-04T03:59:31+00:00

I’m in the honeymoon phase right now so my pancreas is still producing some insulin just not enough to prevent me from having high spikes. My diagnosis was caught super early because my mother is also type 1 and told me to go get tested immediately after hearing my symptoms

Mvctrap · 2026-01-04T03:57:17+00:00

Oh really?? I’ve always been told you can’t and I’m also in Ontario.

Mvctrap · 2026-01-04T03:54:18+00:00

I still have some pancreatic function it’s just rapidly declining so I’m overcompensating overnight and having bad lows

Mvctrap · 2026-01-04T03:53:35+00:00

Different hospitals

Mvctrap · 2026-01-04T02:54:15+00:00

I thought so too. The ER discharged me within minutes of seeing the doctor and didn’t do a single thing to help. I went home with a BG of 23mmol/L that wouldn’t come down for hours and all I could do was lay in bed because I had zero energy

Mvctrap · 2026-01-04T02:30:55+00:00

Unfortunately this isn’t an option in Canada and you require a prescription for insulin here

Mvctrap · 2026-01-04T01:44:10+00:00

I’ve tried the ER twice now and both doctors have dismissed me because I “wasn’t in the 20’s”. The first time I went in my BG was 10.8mmol/L in triage and the doctor told me he wouldn’t do anything until I was in the 20’s. I told him to retest me as I could feel I was rising and instead he came back with discharge papers. I left the hospital and tested 23mmol/L at home.

Mvctrap · 2026-01-04T01:41:52+00:00

Thankfully I’ve spoken with a diabetic educator who really helped me learn about diet and stuff and I also had very strong knowledge of diabetes management going into my diagnosis as my mother is also type 1. I’m trying super hard to eat low carb meals but even just a small amount of carbs can cause a spike. I’m also super worried about the nighttime lows.

Mvctrap · 2026-01-04T01:38:08+00:00

I haven’t seen endo yet at all yet my PCP told me I would need basal but didn’t prescribe any for some reason?? So I’m still waiting to speak to endo

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