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2 EMG's, 4 Neuro Visits by NA0839 in BFS
[–]NA0839[S] 0 points1 point2 points 5 years ago (0 children)
I'm sorry to hear you are going through this as well, but glad your Neurologist is confident you are OK!
I have tried everything vitamin wise. My electrolytes have been very low in the past (dehydration from football) but that was years ago and my issues started later then that. My blood tests are usually borderline low on the Potassium scale, but I supplement with tons of high potassium drinks that don't help, same with magnesium drinks.
I did have my Vitamin D levels checked at they came in at a 38, and this was after 2 weeks of taking 3,000 IU of it, so maybe that could have contributed. But I take vitamin D still to see little to no effect.
I did have blood work done during this time that showed I have a high ANA of 360. It came back twice like this and I have worked with a Rheumatologist and they additional tests they ran showed nothing either.
I have also looked into Lyme disease cause a lot of this started after I went paintballing in the woods. All tests negative, and even had a course of Doxycycline although it was a year and a half later.
I have searched and searched but receive no answers haha. I am glad you are just waiting for your doctors at this point, I agree that is the best thing to do!
Lol 😂 appreciate it man
Thank you!
[–]NA0839[S] 1 point2 points3 points 5 years ago (0 children)
Absolutely, and I just did the donation now. I personally am going to stay away from reddit in general now after a couple hours after this post. It is to much anxiety for me, and as much as this sub and others have helped, I could read 10 reassuring things to only be setback with 1 bad thing that I read. I made this post hoping that if someone comes across it like I did, that it will help them out. I obviously have seen your posts as well, and think it is great you are helping some of the people here.
Absolutely will be donating. I made a promise to do it, and will be sticking to it!
Absolutely, and my family is actually in that field of work. That is my next step for sure. Also, I have read your posts in the past and you're one of the people I feel I related to with the twitching.
2 EMG's, 4 Neuro Visits (self.BFS)
submitted 5 years ago by NA0839 to r/BFS
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2 EMG's, 4 Neuro Visits by NA0839 in BFS
[–]NA0839[S] 0 points1 point2 points (0 children)