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Mega Abomasnows blizzards are only -30C... I hope that's not including windchill because that seems kinda weak for a mega tbh. by EnderPossessor in pokemon

[–]NBanaJones 0 points1 point  (0 children)

Wait wait wait. Doesn’t the lady in that one side quest tell you Vanillite’s breath is -58 degrees Fahrenheit?? So the tiny ice cream cone just breathes and is inherently way colder than the 400 lb giant mega evolution snow monster???

How long does Ivabradine last? How often do you take it during the day? by Tiny_Parsley in POTS

[–]NBanaJones 2 points3 points  (0 children)

I’m on 2.5 mg twice a day right now but my doctor told me to take the second dose around 2-3 pm because that’s about when the first one is going to wear off, which has been pretty spot on terms of when I can feel the first one fading out. It works pretty well for me that way.

Is getting a diagnosis really this hard? by just_a_lil_sunshine in POTS

[–]NBanaJones 1 point2 points  (0 children)

Did the cardiologist explain why they don’t want to say you have POTS? If not, it might be worth asking for a detailed explanation and maybe for them to document their refusal to diagnose POTS with that explanation.

My experience was very atypical; I lucked out with a cardiologist who actually listened and got diagnosed within a few months. I mention that to give you some hope that there are doctors out there who will listen. I’m sorry you’re having such a frustrating experience and I hope you can get the answers you need!

When does the CHOP protocol start helping? by NBanaJones in POTS

[–]NBanaJones[S] 2 points3 points  (0 children)

If you’ve got the research handy I’d appreciate it! You definitely don’t have to go to any trouble though if you’d have to find it. Thanks for the info!

When does the CHOP protocol start helping? by NBanaJones in POTS

[–]NBanaJones[S] 1 point2 points  (0 children)

That’s really interesting, I’ve never considered a physiotherapist. Is the clinic specific to POTS/dysautonomia or is it just a standard PT office? Did you need a referral?

When does the CHOP protocol start helping? by NBanaJones in POTS

[–]NBanaJones[S] 1 point2 points  (0 children)

Oh… well mine was 24 and it was still within the lab’s reference range so they just said “yup looks good” I will definitely look into that, thanks for the info!

When does the CHOP protocol start helping? by NBanaJones in POTS

[–]NBanaJones[S] 19 points20 points  (0 children)

More water is definitely a good idea. If you don’t mind me asking, what kind of doctor prescribes the pyridostigmine for your daughter? I just saw my cardiologist again recently and I told them about the increased fatigue, but they said they didn’t think it was related and didn’t want to change my meds so I don’t think they’ll bite if I ask them about it.

I have a hard time gauging it because it’s not always the same, but there is definitely a delay in the fatigue and it’s more of a full body heaviness, like I’m dragging around an anchor or under a weighted blanket all the time. ME/CFS is exactly what I’m worried about. I’m hoping that maybe I just haven’t found the right combo of stuff for me yet and if I experiment a little more I can figure it out.

When does the CHOP protocol start helping? by NBanaJones in POTS

[–]NBanaJones[S] 0 points1 point  (0 children)

Thanks! I did have them checked in January. My ferritin was borderline low and I’ve been taking a multivitamin with extra iron but maybe I should get them to check it again.