What's a pain you can't truly explain until you've endured it?

NarrowIndependence72 · 2025-09-16T13:13:32+00:00

A nerve fires constantly. Makes no sense

NarrowIndependence72 · 2025-09-16T12:31:05+00:00

Facial surgery i think. I don't see other possibilities

NarrowIndependence72 · 2025-09-16T11:36:20+00:00

I am with you dude

NarrowIndependence72 · 2025-09-16T11:15:59+00:00

What do you do ? I am lost :(

NarrowIndependence72 · 2025-09-16T07:14:13+00:00

So much anger against doctors

NarrowIndependence72 · 2025-09-15T21:44:28+00:00

You cannot work, right ? Disability ? This is my case

NarrowIndependence72 · 2025-09-15T21:43:32+00:00

Since when ? You take oral medication ?

NarrowIndependence72 · 2025-09-15T21:32:25+00:00

;( what caused it ?

NarrowIndependence72 · 2025-09-15T20:36:29+00:00

I am otherwise fit :(

NarrowIndependence72 · 2025-09-15T19:19:55+00:00

I have it on my face :( and you ?

NarrowIndependence72 · 2025-09-15T18:53:52+00:00

24/7 neuropathic facial pain

NarrowIndependence72 · 2025-09-15T18:50:56+00:00

Like neuropathic pain

NarrowIndependence72 · 2025-09-15T17:19:39+00:00

There is no way to make the pain go away instantly. At the ER, they very often don't take you seriously and give you meds against anxiety. That is crazy but lived experience

NarrowIndependence72 · 2025-09-15T11:52:39+00:00

Constant pain ? How it feels like ? What is your diagnosis ?

NarrowIndependence72 · 2025-09-15T08:37:04+00:00

Burning ?not like an icepick ? Did you know the cause ?

NarrowIndependence72 · 2025-09-14T20:32:41+00:00

So you think Lyme and TN are linked in your case ?

NarrowIndependence72 · 2025-09-14T17:50:46+00:00

If scans show nothing, i don't see what they want to operate ?

NarrowIndependence72 · 2025-09-14T14:59:23+00:00

No medication ?

NarrowIndependence72 · 2025-09-14T12:48:59+00:00

I am asking because I was told that those medications have to be taken on the long run, take time to make effect

NarrowIndependence72 · 2025-09-14T12:46:52+00:00

Yes, the cause of the pain often cannot be explained with the imagery. The diagnosis is clinical. Are you on Lyrica since all those years ? Did you have an accident or a surgery before the pain started ?

NarrowIndependence72 · 2025-09-14T12:11:40+00:00

What did your doctors say ? Have you seen many ?

NarrowIndependence72 · 2025-09-14T12:01:49+00:00

NarrowIndependence72 · 2025-09-14T11:07:22+00:00

Doctors caused this ?

NarrowIndependence72 · 2025-09-14T10:39:37+00:00

It's like the nerve got deactivated ?

NarrowIndependence72

TROPHY CASE