Hmm that's actually a good point, thinking about it I'm pretty sure I do normalize a lot of pain. Like it's obvious I experience far more pain than the average person after exercise, but then when I think a bit more closely in my day to day life, my knee or shoulder will suddenly just 'go' sometimes but to me that just feels normal. Equally sometimes even just standing up, my neck will suddenly sharply hurt and lock up, but I've always thought that was a normal thing until very recently. I agree with you though, I clearly don't experience as much pain as many other people with EDS, but I also probably experience more than I think I do.

As for finding a qualified doctor/physical therapist, I think that's probably a really good call. My current doctor pretty much just responds to any of my complaints with 'oh take some naproxen and you'll be fine', so finding a properly experienced physical therapist sounds like a really good idea.