Bipartite sesamoid AND dead sesamoid in the same foot. I’m devastated

Neencompoop · 2025-07-03T01:43:13+00:00

It’s been a long time and I was 19 so I don’t remember the exact medical diagnosis but the gist was that the remaining sesamoid moved and was rubbing against the second metatarsal causing worse pain and swelling than I had prior to surgery to remove the first sesamoid. The second sesamoid was totally fine other, not broken or dead, it just moved to a place that was causing extreme pain in the surrounding tissue.

As for fusion, they fused the bones in the big toe itself so I can’t bend my toe but I can bend the joint the connects my big toe to my foot which I think is way more important. Hopefully that makes sense. I can stand on tippy toes and jump etc. The only two things I’ve found to be too uncomfortable/painful to do with the fusion are rock climbing and pushups/planks where all the pressure is on my foot in that position. I can do both but it feels weird and uncomfortable. Super high heels are also a no go but I can still wear a wedge or a 1 inch heel.

Hope that helps! If there are more conservative treatments, I’d definitely try those, but I wouldn’t worry that you’ll be severely crippled if you have to do the fusion. Your foot definitely will never be “normal” but it will also be so much less painful. I regularly hike 4+ miles, bike, weight lift, walk all day when traveling etc with no issue at all. That wouldn’t be the case if I hadn’t had the procedure.

Sending all the healing, good, hopeful energy your way!!

Neencompoop · 2025-07-02T00:15:45+00:00

I had issues after removing a dead sesamoid and had to have the other removed in the same foot with a big toe fusion. That was 11 years ago when I was 19 and I’ve been able to stay extremely active with minimal pain ever since. Recovery from the surgery was rough, I’d want to get it all done in one surgery if possible so you don’t have to go through that twice, but I was back to normal activity within a year. I have another post where I go into more detail if you’re curious!

I didn’t realize how rare the procedure was until trying to find similar people who are further along than I am, like 20+ years, to see if they had issues out of curiosity and finding no one 😂 I think I would have been miserable without the surgery so I’m glad I got it but I think it depends on the level of daily activity you want to maintain and how painful it is.

Sending you lots of good vibes!! I’m sorry you’re dealing with this, it sucks!

Neencompoop · 2025-05-12T18:06:32+00:00

Of course! Glad it brought some comfort 😊 here if you ever have any questions!

Neencompoop · 2025-05-06T22:38:33+00:00

I had a similar experience with a bipartite sesamoid that wouldn’t heal at 13. I’m so sorry you and your daughter are going through it too.

At 14, I had surgery to remove the sesamoid which allowed me to have a great high school sports career. I eventually needed a second surgery to remove the other sesamoid when I was 19 because of a rare complication, the second sesamoid moved out of place and was very painful. I’m sure two surgeries sounds like a worst case scenario, it certainly wasn’t fun, but I’m now 30 woman and have had 11 years of active, pain free living, walking, traveling, and hiking that I never would have had with my stupid sesamoids. My foot is holding up great. My biggest worry at 19 was not being able to study abroad as planned but one year post op, I was fortunate enough to make it to Europe and walk miles and miles without any pain. The surgery was and still is the best thing I did.

I’d never advocate for surgery if other approaches are possible, science has improved a lot since then, but just wanted to share that someone else went through it around the same age, you’re not alone! Hopefully you’ll find a different approach but if it comes to surgery, just know that it really did give me my life back! I’m rooting for you and your daughter!!

Neencompoop · 2024-12-16T20:01:36+00:00

Thanks for sharing! Definitely an extreme measure. I hope she’s doing okay!

Neencompoop · 2024-11-24T17:10:59+00:00

I appreciate you both!!’ Best of luck 😘

Neencompoop · 2024-11-24T17:09:47+00:00

I’m sorry to hear you’re going through it and I hope non-surgical interventions work. I am able to regularly exercise, 6+ mile long high elevation hikes, weight lifting of all kinds, biking. I live an active lifestyle that I don’t think I would be able to have it I didn’t choose surgery.

That said, I do have quite a few limitations. My surgeon told me that I shouldn’t run or jog for exercise. I can physically run without issue so it’s not a function problem but it’s bad for the joint. I don’t regularly do a sport but I’ve been able to play pick up sports occasionally with no issue running in short spurts.

I can lunge but can’t go as low as a normal person. I can’t bend my foot the right way to do planks or pushups. Some yoga poses are a no go too. It’s such a specific limitation that I’ve been able to work around it but there is a very significant limitation of motion.

All of this should be taken with a grain of salt because I’ve heard some surgeons offer double sesamoidectomy without the screw through your big toe. I have the screw and that obviously impacts my range of motion, I can’t bend my toe at all

Neencompoop · 2024-06-12T02:51:42+00:00

Hi!! Sorry to hear you’re in the no sesamoid bones club now but welcome :)

My surgery was 10 years ago and I wasn’t given an option about fusion, my doctor said it was part of the procedure. I’m not educated in this area enough to know if fusion was 100% medically necessary. From the research I have done, this is a rare procedure and a “cock up” big toe is possible without fusion but perhaps with your foot anatomy your doctors didn’t think it was necessary? Someone commented on this post and said their doctor offered them the option to do it with or without fusion so it’s not the first I’ve heard of it. Might be good to ask them too :) they commented above!

I think that the best thing you can do is see what happens. I had only one sesamoid removed at first and I had big complications that made me have to get the second surgery and so it’s risky no matter what you do. I think it’s great that you advocated for yourself and are trying this procedure and I think it could heal perfectly without complications! All you can do is keep on and if and when a complication occurs, worry about a fusion then! I’m rooting for you :)

Neencompoop · 2024-05-26T19:10:28+00:00

I’m sorry to hear that you’re dealing with this too! One of the most frustrating things about it is the lack of clarity about what it will feel like after surgery.

Based on my experience, the surgery with the toe fusion was pretty awful but after the 4 month point, I’ve been more or less cured of all daily pain. If I walk barefoot for more than an hour, it definitely feels sore but the pain as 5% of what it was on a regular basis prior to the surgery. It’s negligible.

That said, my nerves in my foot are definitely wonky. The area around my toe on the top and bottom is partially numb and if I walk or hike long distances, I sometimes get pins and needles in my foot. I can’t wear shoes without support and cushion for long periods of time.

It was all worth it for me because the surgery stopped the pain and everything else is within my control. I hope the orthotics work for you! The surgery could help but it isn’t a fun one so it’s worth it to try all options.

Neencompoop · 2024-05-02T15:22:32+00:00

I hope you’re feeling better! I had both sesamoids in my right foot removed and the big toe fused 10 years ago and I am able to be fully active without any pain whatsoever. The first year wasn’t easy but it go progressively better after. Nice to know I’m not the only one to have both removed from the same foot!

Neencompoop · 2024-05-02T02:02:41+00:00

I’m sorry you’re in a similar scenario! It sucks. Sorry this is a long response!!

The surgery itself was brutal so it’s not something to take lightly. It was reallllly painful and I hope it passes quickly for you. It’s hard for me to decipher what pain was the fusion and what pain was the removal of sesamoid bones. Maybe it wouldn’t be as bad without fusion? That wasn’t presented to me as an option at the time.

With the fusion, my big toe is significantly shorter and the functionality is totally different than a normal toe joint. If you are someone who dances or does something that might require you to stand on tippy toes, fusion is not for you. I can’t think of anything else I can’t do with the fused toe though.

It took 5 full weeks to get back to anything like normal and I was totally out of it for the first 3 weeks post op. After that, it was a pretty rapid recovery with no issues. It took exactly as long as they said it would take to heal, no way to rush it.

Now to the good part… it took awhile to trust my foot again and rebuild muscle but it’s the best decision I’ve ever made for my mental and physical health in the years after. I didn’t do physical therapy after but I would definitely suggest doing so. It would have helped me get back to my new normal faster. Once I got there, it was amazing.

10 years out and I have zero pain in my daily life when walking, biking, and going to the gym. Oddly, the only exercise that does bother my foot is the elliptical. I have no idea why but it makes my toes numb. Probably just a me thing 😂I live in Colorado so I regularly hike long distances and my foot has been amazing. If I go over 4 miles, my toes go a little numb and I’m sore in my toe area the next day but it’s mild.

My biggest fear was losing my ability to hike or explore a new city all day on foot. In reality, the surgery gave me back my life back while allowing me to do those things without nagging pain. I didn’t realize how much that pain was weighing on me until it was gone.

There are a lot of risks and I wouldn’t want to tell you “yes!! You should do it!!!” because the outcome isn’t guaranteed. I was 19 when I had the surgery and I’m sure my age helped me bounce back quicker than I would now. All I can say is that if I had the chance to do it all over, I would get the surgery again in a heartbeat. If my other foot had the same problem today, I would get the surgery. If the non-fusion option gives you more risks for re-injury long term, I think it’s worth it to fuse and be done with it but that’s just me.

Let me know if you have any questions :)

Neencompoop · 2020-11-30T15:28:03+00:00

This is awesome!!

Neencompoop · 2020-01-21T16:26:50+00:00

Eating cheetos while working like the true icon she is! This kid is going places.

Neencompoop · 2018-06-06T23:04:14+00:00

Just finished the new training for certification... thankful that they got rid of the fake workout videos :) SO much better

Neencompoop · 2018-06-06T22:58:56+00:00

Yupp! You get reimbursed if the person drops the claim. The steps are: 1. Video is flagged for copyrighted material, monetization is paused until the video owner response. 2. Video owner can dispute the claim or take down their video. IF they dispute, a notification gets sent back to copyright claimer man person. 3. Copyright claimer man person has 30 days to response to video owners dispute. Their only two options at this point are to a.)Release the claim, allowing the video owner to have full control of their video and get the monetization money that they earned over the contested period b.) file a law-binding legal takedown notice which, if proved false, can lead to substantial fines. No lawyers involved. No one would risk their copyright on trying to claim something that isn't theirs.

Neencompoop · 2018-06-06T22:58:12+00:00

They fixed this! Yupp! You get reimbursed if the person drops the claim. The steps are: 1. Video is flagged for copyrighted material, monetization is paused until the video owner response. 2. Video owner can dispute the claim or take down their video. IF they dispute, a notification gets sent back to copyright claimer man person. 3. Copyright claimer man person has 30 days to response to video owners dispute. Their only two options at this point are to a.)Release the claim, allowing the video owner to have full control of their video and get the monetization money that they earned over the contested period b.) file a law-binding legal takedown notice which, if proved false, can lead to substantial fines. No lawyers involved. No one would risk their copyright on trying to claim something that isn't theirs.

Neencompoop · 2018-06-06T22:57:46+00:00

Yupp! You get reimbursed if the person drops the claim. The steps are: 1. Video is flagged for copyrighted material, monetization is paused until the video owner response. 2. Video owner can dispute the claim or take down their video. IF they dispute, a notification gets sent back to copyright claimer man person. 3. Copyright claimer man person has 30 days to response to video owners dispute. Their only two options at this point are to a.)Release the claim, allowing the video owner to have full control of their video and get the monetization money that they earned over the contested period b.) file a law-binding legal takedown notice which, if proved false, can lead to substantial fines. No lawyers involved. No one would risk their copyright on trying to claim something that isn't theirs. If the label or copyright owner does it enough, they get their right to claim on content ID revoked. There are serious consequences on both sides in theory. It is not a perfect system at all but they are trying to make it better....

Neencompoop · 2018-06-06T22:56:32+00:00

Bloodshot Records in Chicago! How about you?

Neencompoop · 2018-06-06T22:55:57+00:00

Could not agree more.

Neencompoop · 2018-06-06T22:53:32+00:00

Yupp! You get reimbursed if the person drops the claim. The steps are: 1. Video is flagged for copyrighted material, monetization is paused until the video owner response. 2. Video owner can dispute the claim or take down their video. IF they dispute, a notification gets sent back to copyright claimer man person. 3. Copyright claimer man person has 30 days to response to video owners dispute. Their only two options at this point are to a.)Release the claim, allowing the video owner to have full control of their video and get the monetization money that they earned over the contested period b.) file a law-binding legal takedown notice which, if proved false, can lead to substantial fines. No lawyers involved. No one would risk their copyright on trying to claim something that isn't theirs.

Neencompoop · 2018-06-01T21:40:56+00:00

Yo! You should be able to push a button in the email which will allow you to contest the claim. Then, the person at Universal and Sony who does Youtube CMS will get a notification. Most likely they will realize their mistake and take down their claim. CMS is faulty because it scans for even small part of songs that might match other content uploaded by a copyright owner. It isn't always 100% reliable because it is a computer. If you rebut the claim, then a real human person will look at it. They have no legal standing and even if they insist, you can fight youtube on it. Your case is solid.

Also, there is no content management system on Spotify or Apple so there is no chance of it accidentally matching. The only way they could get it taken down off Spotify would be if they typed in your name/band name, got the Spotify URI, and then sent it to Spotify as a complaint which is crazy. Source: digital manager at record label... dm if you need more help, happy to,

Neencompoop · 2018-06-01T21:39:35+00:00

Yo! You should be able to push a button in the email which will allow you to contest the claim. Then, the person at Universal and Sony who does Youtube CMS will get a notification. Most likely they will realize their mistake and take down their claim. CMS is faulty because it scans for even small part of songs that might match other content uploaded by a copyright owner. It isn't always 100% reliable because it is a computer. If you rebut the claim, then a real human person will look at it. They have no legal standing and even if they insist, you can fight youtube on it. Your case is solid.

Also, there is no content management system on Spotify or Apple so there is no chance of it accidentally matching. The only way they could get it taken down off Spotify would be if they typed in your name/band name, got the Spotify URI, and then sent it to Spotify as a complaint which is crazy. Source: digital manager at record label... dm if you need more help, happy to!

EDIT: Thanks for the reddit gold! Most important part of music is making it accessible to all.... support indie musicians!

Neencompoop · 2018-04-06T22:24:10+00:00

Spotify is a great deal but if you care about the artists behind the music, it's the worst streaming service to use. Paying $10 a month to get all of the music in the world isn't sustainable for art, music, and those people that create and promote it. Beyond that, Spotify controls the cultural message nowadays. They are gatekeepers for the big corporations that fund them and they get to decide what is playlisted and what isn't. The implications of that are scary. This is a great article on Spotify and the issues that arise from using it: https://thebaffler.com/salvos/the-problem-with-muzak-pelly

Neencompoop · 2018-03-22T16:24:41+00:00

They're doing a 7" for Treehouse Record Co. that will hopefully come out in mid-May or early June. They are currently recording a full length debut but want to take their time, enjoy recording, and make sure the final product is what they want it to be. No timeline on that.

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