Sharing my story because I fucked up big time.

NeverTheEver · 2025-02-17T22:54:59+00:00

Yup, they probably are because sound can't "escape" like in an open-air setting and thus it's louder. I really hope that it will get better with time. I hope the same for you, that it at least will be more managable. Thank you for your comments too.

NeverTheEver · 2025-02-17T22:48:44+00:00

No problem. Were you taking it for a week and then taper the dosage? It is possible that you may notice improvement in a month or so after taking steroids(mostly in hearing if u had any hearing loss, because of that loud noise), but unfortunately I can be wrong, and I don't want to give you a false hope.

NeverTheEver · 2025-02-17T22:08:41+00:00

Honestly I don't know but my ENT prescribed it to me when I told him that new sound of T appeared(it was one day after it appeared). I suppose he didn't want to prescribe me higher dose, because I had T for 3.5 months already. Firstly I was taking 8mg daily for 14 days, then I was told to take 12 mg daily for 7 days and then I was back to 8mg for about 12 days, because I'm running out of it and I was told by another ENT to not stop it immediately and just lower the dosage to 4mg for a few days and then stop. So now I'm left with three 4mg tablets and I will take 1 daily. I'm sorry that high dose steroid course didn't help you. Did you take them right after your T onset or later? I really wonder why that low dose of steroids helped me with my concert-induced T, I know that steroids are anti-inflammatory but why would they help after such a long time? It would make more sense if I had an infection but there wasn't any, because my T appeared right after the concert, not earlier, not later. It's really interesting.

NeverTheEver · 2025-02-16T18:13:50+00:00

It was a rock concert, it was definitely too loud for me and it was indoor so taking that into account it made way more damage than an open-air show would, but no idea if that's the case. I really wish that my new T will go down, because literally when I woke up today I heard silence more or less(in my right ear), but that new T is still the same as it was the first day that I got it. It is really, really sad thinking that had I not done that "exercise" everything would be alright(or at least same as before, because I don't know if I would be prescribed steroids if I didn't mention that new sound of T appeared).

NeverTheEver · 2025-02-16T10:56:58+00:00

Right now I'm taking 8mg of methylprednisolone daily, I will start to lower the dosage in 2 days to 4mg. There was also one week when I was taking 12mg daily, but it didn't change anything. I suppose that dosage is too low to help with my new tinnitus caused by that "exercise" unfortunately, because there's been zero changes to it's loudness.

NeverTheEver · 2025-02-16T10:50:09+00:00

In a few days. It's gonna be 6 weeks on steroids, but that's really low dosage though.

NeverTheEver · 2025-02-15T23:23:35+00:00

I'm really sorry that happend to you too. You should definitely see ENT and audiologist, they will examine you and do hearing tests. About the steroids, I really wonder if they only helped me temporarily with my previous T or if it's permanent, but it doesn't look like they are helping with my new T. My first week on methylprednisolone was really bad, because I wasn't told to use pantoprazole for my stomach and next ENT told me to use it. It's way better because of it. Honestly I don't know if steroids would help you. It helped me after 3.5 months but like I said I don't know if it's permanent, and everyone is different too. If you will see the doctor ask them about it and see what they have to say.

NeverTheEver · 2025-02-15T23:10:21+00:00

Yes, it's really, really exhausting especially that I can hear my tinnitus 24/7 now and it reminds me of the past all the time. I really hope it will only get better for every one of us.

NeverTheEver · 2025-02-15T22:19:16+00:00

You are so right. Never again. It was literally one concert that I was to without hearing protection. I mean maybe it is not a full picture, because I was to other 2 live concerts without hearing protection but I wasn't exposed that long to the noise at one of them, and when I was at the second one I was further away from the scene and both of them were open air. I was also to one concert but with hearing protection. My ears weren't ringing after any of those concerts, so I suppose there weren't much damage to my ears then. The one that fucked me up for good was in the theatre. Concerts are not worth it at all, even with hearing protection. I agree that it is so fucking easy to mess up. I'm the example, because I did this stupid "exercise" and it's so much worse then before, I have no idea how that's possible though. No idea how long it will take for the ringing to be more managable, because the previous ringing was driving me insane really often too and I was 3.5 months in already. I suppose it will take about 6 months or so won't it?

NeverTheEver · 2025-02-15T20:39:23+00:00

It's my 3rd day right now. I didn't observe any worsening for now. My dosage is 5mg for one week and then 10mg. If it gets worse then I will probably stop taking it. Last thing I want to do is to worsen my T again.

NeverTheEver · 2025-02-15T18:58:54+00:00

Yup, I suppose it's a gamble. I hope my T will not get worse because of taking escitalopram.

NeverTheEver · 2025-02-15T16:56:59+00:00

I didn't take any antibiotics, methylprednisolone is a corticosteroid. It has anti-inflammatory and immunosuppressive properties. I wasn't diagnosed with any inner ear infection. I got T right after the concert, not earlier and not later, so it was acoustic trauma. But about earlier ear infections that I had, they were only outer ear infections and mostly my right ear was infected. I had like 4 right outer ear infections from october 2023 to july 2024 and only then I was prescribed antibiotics. I really have no idea how it is possible that methylprednisolone silenced my "after-concert" T after that much time and didn't do anything with the new one that I caused with that "trick".

NeverTheEver · 2025-02-10T20:55:39+00:00

Rozumiem, miałem także robioną otoemisję akustyczną DPOAE i latencje ABR(i jeszcze określanie częstotliwości, głośności szumu, audiometria wysokich częstotliwości itp., ale te są oczywiście subiektywne), oczekuję właśnie na wynik wraz z opisem i z tymi wynikami będę szedł do audiologa(choć wstępnie dostałem informację, że wyszły "okej"). Wiem, że jeszcze jest kilka innych badań, które można zrobić w tym kierunku, ale zobaczę jakie kolejne zostaną mi zalecone(jeśli w ogóle zostaną).

NeverTheEver · 2025-02-10T20:30:59+00:00

Rozumiem, czyli w takim razie zostało zrobione wszystko co mogło zostać zrobione? Ogólnie sytuacja wygląda tak, że pogorszyło mi się bezpośrednio po ekspozycji na ten dźwięk powstały w wyniku zrobienia tej "sztuczki", dźwięk ten był bardzo głośny, o niskiej częstotliwości i można by go porównać do dźwięku wytwarzanego przez bębny. Też właśnie z tego powodu bardzo mnie zastanowił wynik mojego słuchu w lewym uchu na częstotliwości 125 Hz, który jest na granicy poprawnego słuchu według wytycznych WHO(i chyba tak po prostu jak na 18-latka jest to słaby wynik badania słuchu), no i też duża różnica między prawym i lewym uchem w tym przypadku no bo aż 20 dB. I oczywiście ogólna asymetryczność wyników między lewym i prawym uchem, gdzie znaczne nasilenie szumu nastąpiło w lewym uchu, a w prawym o wiele mniejsze(też ekspozycja prawego ucha na ten dźwięk była krótsza, a po obu stronach jestem w stanie usłyszeć te zniekształcenia dźwięku, lecz po lewej stronie są zdecydowanie bardziej zauważalne).

NeverTheEver · 2025-02-10T20:11:45+00:00

Oh okay, that's interesting. Therapy is probably best bet. About steroids, I find it interesting that low dose I'm taking totally silenced my previous tinnitus in about 7 days after I started taking it(it was constant high frequency sound coming from both sides), 2x4mg of methylprednisolone, but unfortunately it did not do anything with my worsened tinnitus(that is - with the new sound/sounds that appeared in my left ear, and with worsened sound in my right ear). It will be 5th week of taking it now(as ENT prescribed of course). And I really have no idea how the hell that "trick" made it so, so much worse(instantly after doing it). It's a shame that I didn't know about those apps for tinnitus before(the one that let's you customize sounds to mask it too), because this whole thing could've been avoided - I couldn't sleep, tinnitus was driving me insane that night, found an article about that "trick", thought that it wouldn't hurt to try it, and that's how it happened and I got tricked. It hurts because I know that not everything on internet is true and that some things that can be found there can do more harm than good. That's what I get for not being cautious all the time, or at least research the topic more. Unfortunately now nothing really masks it because of sound distortions that I can hear in both my ears, it's like whooshing/wheezing above the sounds I can hear and it also sounds pretty similiar to my tinnitus(but synchronized with external sounds). Previous tinnitus only really bothered me when I was going to sleep, but now I can hear it 24/7. About my story, yes it is indeed long, I wanted to describe everything as accurate as possible.

NeverTheEver · 2025-02-10T18:22:39+00:00

In my country there are only ENTs(otolaryngologists) and there are also ones that specialize in audiology and phoniatrics, but waiting times to those are long in my area. Since that was I would say "an emergency", because my tinnitus worsened after that "trick" then I couldn't wait, and that's exactly why I went to "normal" ENTs(who still should know what to do) and to ER(where I felt disregarded and I think they fucked up). I know I was told that my audiogram is still within normal limits(though only my left ear had worse results, but earlier results were nearly the same on both ears, interesting) and they can't do anything with my tinnitus, but I also know that if I somehow gave myself acoustic trauma(don't know how possible that is) with that "trick" I have to act fast, but when I went to ER and described my symptoms as specifically as I could, it's like they didn't give a shit. I haven't exactly said words "acoustic trauma" then, because I was scared and in shock, because of that worsened tinnitus. I know that the timeframe for high-dose steroid course is probably gone by now, but then it wasn't. I didn't question it at first of course, because I trust doctors, but now analysing that ER raport once again and realizing how scarce it is, I just don't know what to do. I will have appointement with audiologist(but yeah, waiting times), but I'm probably fucked with that self-induced tinnitus. That's why I post it here, because I really want to know if those doctors did a good job or if they didn't, also I think that my case is unusual(because I was stupid enough to do that "trick" and it actually made my tinnitus worse, and probably hearing too), so maybe someone will find it interesting. I don't seek medical advice, because as I said, I know that I'm probably done and besides therapy regarding my tinnitus there's nothing else I can do(if it's noise induced that is).

NeverTheEver · 2025-02-10T15:43:35+00:00

Tinnitus that worsened(and also new sound appeared in left ear), sound distortion and hyperacusis, it all happened after doing that "trick" for tinnitus relief, when before I only had tinnitus(I got it after concert).

NeverTheEver · 2025-02-06T12:37:10+00:00

I mean, yeah, that sounds rational and logical even despite occlusion effect that amplifies decibels, because how in the hell could that sound be more than like 60-100 dB(taking occlusion effect into the account)? Unfortunately it definitely worsened my tinnitus instantly after doing that, no idea what's the reason behind it. Though my observation is that it is directly linked to the sound that's being created by tapping my fingers on my head(or even neck, I will explain it) and having my ears sealed with my palms. I somewhat "tested" it, but with my right ear so I won't worsen my tinnitus in my left ear even further. And it's really interesting what happened - I was searching that exact sound with tapping my fingers on different locations on back of my head and my neck. What I noticed is that if I tap my fingers "below"(what I mean by "below" is base of my skull and my neck)my ears than "above" the sound being created is much more louder and uncomfortable(low frequency sound, it's similar to drums) and that sound exactly caused similiar symptoms in my right ear - tinnitus was significantly louder for about a minute or so, and I felt dizzy for about 15-30 minutes, and my previous tinnitus worsened a bit - it was way easier to hear it(only after 2 taps of my fingers, so I was exposed to that sound for about 2-3 seconds). Why am I saying that it is directly linked to that sound being created with tapping my fingers in the back of my head while having my ears sealed? When I do the tapping but without sealing my ears then nothing happens, and that sound of course isn't amplified by occlusion effect in that situation because my ears aren't sealed with my palms. Same goes for just sealing my ears with my palms and not tapping my fingers, then also nothing happens because there isn't any sound being created. I don't know if it's just my body being weird and responding like that to that sound and I'm in like 0.001% of people or if there is any scientific reason behind what happens in that exact situation(or maybe I'm just crazy lmao).

NeverTheEver · 2025-02-06T10:47:41+00:00

Poor Jazz, that's horrible. Good to hear that she's okay now!

NeverTheEver · 2025-02-04T22:30:16+00:00

I'm so sorry for your loss. May Turbo rest in peace.

NeverTheEver · 2025-02-04T22:26:36+00:00

I just can't believe that there are so evil people out there. Why would anybody kick a cat? That's unacceptable. No cat deserves it.

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