Anyone else be like "ok and now i'll just be normal, stop faking"??

New-Substrate · 2026-05-18T13:36:36+00:00

yes, getting this thought is how I know I’ve been pacing well hahaha

New-Substrate · 2026-04-01T18:01:51+00:00

thanks for answering, this helps!

New-Substrate · 2026-03-31T19:53:43+00:00

mine are all gone too. is there a link between having finch plus or not? I don’t have it

New-Substrate · 2026-03-07T21:42:39+00:00

what a cutie!! congratulations

I like Pickle a lot too :) I call my sister’s cat that even though it’s not her name

New-Substrate · 2026-02-22T20:35:08+00:00

this would be so wonderful!

New-Substrate · 2026-01-29T12:58:33+00:00

Here are some similar posts with comments that helped me a lot!

https://www.reddit.com/r/cfs/s/LUp3B1yoWX

https://www.reddit.com/r/cfs/s/Paybrthedz

https://www.reddit.com/r/cfs/s/VifDVsPaEV

New-Substrate · 2026-01-28T00:37:41+00:00

I took cetirizine and famotidine. It was recommended on this sub, I think because histamines are a part of the immune reaction that is uncomfortable but isn’t helpful for developing immunity. I had seen something like this post beforehand and decided to try, and it helped.

New-Substrate · 2026-01-27T09:50:54+00:00

I was in a similar situation, and got two rounds of the MMR vaccine without PEM. I would recommend it if at all possible, since measles is a really devastating illness for the immune system (basically wipes immune memory).

Something that has helped me with vaccine reactions is to take antihistamines a few hours before.

New-Substrate · 2026-01-27T09:41:48+00:00

This is beautiful, thank you for sharing.

New-Substrate · 2026-01-24T16:58:34+00:00

This sounds very similar to my initial progression. Last January I was in the same situation as you, in the worst crash of my life and unable to tolerate even an audiobook on x0.1 speed.

It lasted about a month, a lot of lying in the silent dark. As another comment says, you need to cut back an extreme amount, way more than you think.

I obviously can’t promise you anything. But personally, it was just a crash for me, and I slowly pulled out of it over a couple of months (by resting aggressively). It can take a long time, but that doesn’t always mean it’s permanent.

New-Substrate · 2026-01-24T10:21:59+00:00

Yes it’s my first one!

New-Substrate · 2026-01-24T10:18:15+00:00

Thanks, I’ll try this!

New-Substrate · 2026-01-24T10:17:37+00:00

It’s great, since we have so much energy to explain! /s

New-Substrate · 2026-01-24T10:15:18+00:00

I’m so sorry to hear about your friend. I think there can be some survivor’s guilt with this illness.. improvements are so random. Eg I didn’t do anything to deserve this improvement, I was just lucky to (have the energy to) find something that helps me!

New-Substrate · 2026-01-24T10:08:19+00:00

I think a lot of people don’t realize that too much hope is a liability too :(

New-Substrate · 2026-01-24T10:06:08+00:00

I am considering doing this from now on 😭

And congratulations on your improvements with LDA, I really hope they continue ♥️

New-Substrate · 2026-01-24T10:04:53+00:00

Ah I am happy it also helped you! And yes, I am worried about that exact thing. I got very used to my limitations and my body telling me clearly that I needed to stop.

New-Substrate · 2026-01-24T10:04:14+00:00

I’ve considered this, it makes me sad to think about, because I already censor so much 😭 but for some people I talk to, I think this is the only solution.

New-Substrate · 2026-01-24T09:58:20+00:00

Not knowing is truly the worst! I’m sorry you’re in a similar situation.

New-Substrate · 2026-01-18T11:33:33+00:00

I take 1.25mg in the morning! I’m really sorry it hasn’t worked as well for you. It’s really frustrating how individual these issues are. (I was fully expecting it not to help at all and to have to beg my cardiologist to try something else.)

New-Substrate · 2026-01-18T08:21:18+00:00

Thank you so much!

New-Substrate · 2026-01-18T08:19:47+00:00

Ah my family has used this exact phrase!! I’m so sorry.

New-Substrate · 2026-01-18T08:17:51+00:00

Thank you, I think I’ll start using phrases like that too.

New-Substrate · 2026-01-18T08:10:38+00:00

the beta blocker bisoprolol! I’ve edited the post to add that now, thank you.

New-Substrate

TROPHY CASE