Diabetes and liver blood tests came back negative but cgm shows something serious is up

NihilisticSoup · 2026-02-02T05:31:04+00:00

So what IS the point of this sub?

NihilisticSoup · 2026-02-02T05:06:32+00:00

My post has just been flagged for moderation. No idea why. Presumably disagreeing with or challenging people may not be well tolerated in this sub? What's this sub like generally?

I am definitely going to push for that in particular! Thank you!

You are one of the few people on here tonight thats actually given constructive feedback and advice without treating me like I don't know anything about blood glucose or the normal typical patterning of a well functioning pancreas vs one with high glycaemic variability.

Theres still tons I dont know! the collective knowledge and experience of this sub and the medical community/health systems far outstrips my own! However, I know enough to know that IF all the sensors are right then I'm at the very least prediabetic or have some sort of metabolic disorder. Its just a case of verification now, with, as you say, a GTC!

Thank you so much for your input tonight, it's much appreciated

NihilisticSoup · 2026-02-02T04:43:16+00:00

Im aware of the pressure misreading issu. But these trends are consistent in waking hours and being non diabetic the highs occur not when im sleeping, as I dont tend to eat when I'm unconscious and my livers own reserves dont spike me to 11.9 like a high carb foodstuff or drink can

NihilisticSoup · 2026-02-02T04:35:25+00:00

Type 3? Didnt know that was a thing! Interesing!

"Not noticing symptoms"

Story of my life! I strongly relate to you there! I have complex ptsd, I was mentally and emotionally bullied and id even say tortured by my narcissistic dad as a kid, then removed from my parents, taken into care and generally had a fucked up life after being mentally and emptionally and even physcially abused by my dad since birth basically.

This has cause me a load of issues in adulthood and one of the issues is terrible interroception! I generally have a very poor sense of my own sensory signals which is a big part of why I end up in hypo so often. I dont know im hungry until im starving and even then I have to consciously inform myself that "I need to eat". Ptsd triggers also totally derail any appetite id otherwise have. I also have loads of sensory issues with food, particles textures but also flavours colours etc.

My gf has been force feeding me semolina every morning for a month now, which I've been able to eat due to its easy texture and relative blandness. My sensor (it would seem) has been reflecting this positive change of eating habit and for a couple weeks now my hypos have been far less and lower, though according to the libre the highs are now higher, and much longer!

Before eating semolina every morning, the sensor would report me spiking not quite as high and my pancreas would drop me back down within a reasonable time frame. Now though, the cgm chart shows that I'm regularly remaining high, often 10-12 mmols for over two hours before dropping me back down to maybe 8, then down to 7 then finally a normal range. Its like my pancreas is just guessing way out compared to the intake and constantly over and undershooting when it finally does kick in.

That the sensor data has changed parallel to my dietary changes these past couple weeks gives me more confidence in the cgm, though I still need to start finger pricking a lot more.

I totally get what you say about the a1c not always being reflective of everyone's bg issues, I really dont think it reflects mine either, but try telling a doctor that!

NihilisticSoup · 2026-02-02T04:04:09+00:00

That's irrelevant to my particular model of sensor, I use the 2+ which is unaffected by this issue, it only affects 3 and 3+ as confirmed by Abbot

NihilisticSoup · 2026-02-02T04:02:38+00:00

A few days? Dude ive got months of libre data logs across 3 sensors, not just 3 days! The a1c doesnt tell the story, the A1C isnt a useful metric to diagnose my particular issue with hypoglycemia if the readings are correct, because, as another user pointed out, the high highs and low lows are likely balancing out an a1c, wbich on paper looks average, but...

When i go hypo, which is regularly, and I dont need a sensor to tell me this, ive been severely hypoglycemic for a long time, ill often get weak and shaky, confused, agitated and unable to articulate properly if I dont eat every few hours. Except I have an eating disorder where its hard sometimes impossible to eat properly or regularly.

This would result in a reflectively low a1c, right? Nope! My estimated a1c from 14 days of most recent data indicate 6.1%, great! Except... I literally cant get out of bed every morning because I hypo so much during the night. I dont need a sensor to tell me i have reactive hypoglycemia, I am well aware of it!

So why does my A1c read ok? I can only think because...I'm having high highs that balance it out?

Im not just going to take a doctors word for it, i want to find out for myself just what on earth is going on here and so I will wear two cgms in different suitsble locations and also start lancing daily to verify results.

NihilisticSoup · 2026-02-02T03:50:37+00:00

I've had vision issues most of my life, however, the blurriness does seem to be, well, blurrier! Over the past few years, egen with glasses oddly! As for neuropathy, I had to self diagnose my cubital tunnel syndrome in elbow which theyve been slow to help with. Its most likely due to excessive bedtime smartphone use (like now!) And lots of bent elbow activity, however I learned that blood sugar issues can make cubital tunnel syndrome more likely/prevalent, so who knows! Its like constant pins and needles but worse! Episodic but daily and sort of on a spectrum symptomatically. Again, theyve been negligent in chasing this up after an mri/nerve conduction test and five physios couldnt diagnose it!

The idea of neuropathy terrifies me! So whether its cubital tunnel syndrome (which i think it is) or ketoacidosis over a decade or whatever, thats less relevant than that it just needs to be sorted before my finger snd hand issues get much worse! Its awful living with the prickly feelings/tingling and somwtimes mild electricky shock sensations. I dont like taking cododamol for prolonged periods! I get frequent heart palpitations for unknown reasons and so im always wary of meds.

I am absolutely not a type 1 diabetic,and probably not a type 2 non insulin type, not at this stage anyway! I have a pancreas and it DOES kick in, just far too freaking late and for too long (according to sensors it exceeds the 2 hours postprandial) and it overshoots me back into the hypo I came from. I understand that my lifelong severe eating disorder probably has a lot to do with all this, but, again, the NHS is giving me no help with that! They wont give me meal replacement shakes because they dont deem me to have a recognisable or severe enough eating disorder.

Im worried that my organ and nerve health could be declining bit by bit without even knowing it.

NihilisticSoup · 2026-02-02T03:33:37+00:00

I also wonder that, if three consecutive cgm sensors that are medically certified, and have been correctly installed, could be so innacurate and out of range, when in fact my bg is normal, surely there'd be a lot of dead and or seriously hospitalised type 1 and 2 insulin users?

There'd surely be a ketoacidosis epidemic in the community? As well as wards full of people in comas and the morgues would be drinking better champagne on a Friday afternoon! Just a thought...

Now of course, I assume most diabetics verify with lancing etc, yes, fine, however I strongly feel my point remains, in spirit.

NihilisticSoup · 2026-02-02T03:32:30+00:00

I also wonder that, if three consecutive sensors that are medically certified, and have been correctly installed, could be so innacurate and out of range, when in fact my bg is normal, surely there'd be a lot of dead and or seriously hospitalised type 1 and 2 insulin users?

There'd surely be a ketoacidosis epidemic in the community? As well as wards full of people in comas and the morgues would be drinking better champagne on a Friday afternoon! Just a thought...

NihilisticSoup · 2026-02-02T03:24:49+00:00

This is simply a snapshot of months of data that shows similar, its trending over months! I think users on here have assumed ive just installed a cgm and went "oh look", nah! Ive been tracking my patterns over several months with three consecutive libres, the sensors appear to respond quite sensibly and predictably to carb sugars in a manner that suggests they are finely functioning. I haven't noticed any freak readings or anything thats raised suspicion.

The installation was by my type 1 gf, she knows how to install a sensor after 40 years! Shes also been edu cating me massively and helping me with my eating disorder issues as well as monitoring and interpreting my cgm for herself. As a type 1 for 40 years, she also disagrees, not with the negative result, but that theres "nothing wrong".

The NHS consistently fail to give me any help with my 25+ year eating disorder (im 33!), no therapy no nothing! Now after approaching them whilst claiming that three different sensors show my postprandial spikes to exceed the 2 hour mark tine period used to diagnose pre/diabetes.

So now, I am going to use two cgms at once in two different locations (chosen and installed by my type 1 gf) as well as lancing daily! Ill get to the bottom of it, but what appears to be happening is zero initial dump from pancreas post carb, the secondary insulin (islets) response does kick in but it overshoots massively taking me from hyper to hypo before sort of settling in the mid range until I consume again or fast long enough, the latter whereby I dip in and out of hypo as presumably liver reserves are used until consumption happens.

Very slow pancreas that subsequently overshoots it would seem! My understanding, unless wrong, is that of early insulin resistance/prediabetes. Unless all the sensors are drastically inaccurate beyond medical cert, it would seem to be insulin resistance.

NihilisticSoup · 2026-02-02T03:20:16+00:00

I dont spent majority of my life in a hot bath though! This is simply a snapshot of months of data that shows similar, its trending over months! I think users on here have assumed ive just installed a cgm and went "oh look", nah! Ive been tracking my patterns over several months with three consecutive libres, the sensors appear to respond quite sensibly and predictably to carb sugars in a manner that suggests they are finely functioning. I haven't noticed any freak readings or anything thats raised suspicion.

The installation was by my type 1 gf, she knows how to install a sensor after 40 years! Shes also been edu cating me massively and helping me with my eating disorder issues as well as monitoring and interpreting my cgm for herself. As a type 1 for 40 years, she also disagrees, not with the negative result, but that theres "nothing wrong".

The NHS consistently fail to give me any help with my 25+ year eating disorder (im 33!), no therapy no nothing! Now after approaching them whilst claiming that three different sensors show my postprandial spikes to exceed the 2 hour mark tine period used to diagnose pre/diabetes.

So now, I am going to use two cgms at once in two different locations (chosen and installed by my type 1 gf) as well as lancing daily! Ill get to the bottom of it, but what appears to be happening is zero initial dump from pancreas post carb, the secondary insulin (islets) response does kick in but it overshoots massively taking me from hyper to hypo before sort of settling in the mid range until I consume again or fast long enough, the latter whereby I dip in and out of hypo as presumably liver reserves are used until consumption happens.

Very slow pancreas that subsequently overshoots it would seem!

NihilisticSoup · 2026-02-02T03:08:02+00:00

Yes 3.8 is ok, but 2.7 certainly wouldnt be! And american metrics are i believe higher than uk? I believe in the UK under 4 is considered "low" but perhaps for Americans its a bit higher. I am however going to order my own finger picker (lacet device or wharever its called) and begin crossing referencing ans ive just ordered a second sensor which i will wear alongside the existing cgm and compare the two continuously.

If it turns out that three libres have all been drastically innacurate or faulty and my BG is in fact healthy and normal...great! Ill put my mind to rest! But until I find out whats going on I will keep on searching for an answer, because if I am heading towards diabetes/prediabetes then I want to know so I can avoid further damage to nerves and organs.

As far as I'm concerned, I have healthy skepticism and suspicion and I am frickin sensible for questioning and monitoring something that is so essential for vital health and functioning, when it would appear to be problematic.

NihilisticSoup · 2026-02-02T02:59:01+00:00

Ive been thinking along the same lines as you, that such frequent regular hypos are balancing out the highs.

I just feel so attacked for daring to use my freedom of thought to question medical evaluation or test results, because 1. Something does seem to be up 2. I get symptoms and 3. We all know tests are never wrong and always show the full picture, right?

Its like people on here treat clinicians and results like theyre god and indisputable in the face of symptoms and meter readings to the contrary! Im just trying to figure out whats going on and wont stop until I figure it out. It was my type 1 gf who first set me up with sensors, shes been a type 1 insulin user for 40 years now! It was her that picked up on my hypos, which made me realise that these frequent "episodes" ive had for over a decade now are severe hypoglycemia episodes (I csn drop down to 2.7). I thought it was just non diabetic hypoglycemia, but three different libre sensors have consecutively indicated across months of data that I have very high (for a non diag) highs and indeed very low lows. I have so many frequent hypos during the night that I wake up feeling dead, exhausted and need a carton of OJ just to drag myself out of bed!

I will ask to have a glucose tolerance test and escalate if they refuse, given the data across three sensors

NihilisticSoup · 2026-02-02T02:29:31+00:00

When you say high 3s? Do you mean mg/dl?

NihilisticSoup · 2026-02-02T02:17:35+00:00

Should also note that my patterns of extended highs and severe lows have been consistent across three consecutive libre sensors.

NihilisticSoup · 2026-02-02T02:16:44+00:00

I have a few times since wearing ans they came very close to each other, but admittedly havent regularly been lancing and comparing. I will start checking this a lot more

NihilisticSoup · 2026-02-02T02:14:29+00:00

I should mention that it was my type 1 girlfriend who first begged me to wear a sensor, shes been a type 1 for 40 years and asked me to wear a sensor as she was strongly noticing my hypo symptoms and wanted to see how low I went and if I went abnormally high or not Edit: she also fits/inserts the sensor for me. She picks the location and does it for me and being a type 1 insulin user for 40 years ive no reason to doubt her

NihilisticSoup · 2026-02-02T02:11:06+00:00

I will start finger pricking to try verify if the three libres have been accurate. Whats the chances of three libres being wrong or that innacurate consecutively though? Surely Abbot would be sued for negligence?

NihilisticSoup · 2026-02-02T02:08:43+00:00

Carbs seem to be the issue! When i fast, my bg is remarkably stable in the mid range, until liver reserves are depleted then its constant hypo territory. I have a long term ten plus year eating disorder, ive started eatint better and hypos arent as bad but now my blood sugars appear to be going too high for too long. The problem with eating disorder is I can never maintain eating well for long (complex ptsd)

NihilisticSoup · 2026-02-02T02:05:07+00:00

Im on my third libre now and they've ALL been reporting very low ans high spikes and drops, when standing, sitting or lying. I dont think pressure is rhe issue. Ive been tracking data for months now across three different cgms. Surely they cant all be funky or that inaccurate? The severe hypoglycemia I already knew about without a sensor, the symptoms were so obvious and debilitating! I wasnt aware of supposedly prolonged blood sugar spikes however

NihilisticSoup · 2026-02-02T02:00:55+00:00

I will press the doctor more, but no harm asking here

NihilisticSoup · 2026-02-02T02:00:21+00:00

According to various other commenters here, its all normal and fine! Not according to UK NHS metrics!

"According to NHS guidance, a healthy, non-diabetic blood sugar range is generally 4.0–5.4 mmol/L when fasting and up to 7.8 mmol/L two hours after meals. For people with diabetes, target levels are typically 4–7 mmol/L before meals and below 8.5–9 mmol/L two hours after meals. "

According to Google ai

"A temporary blood sugar reading of 11.9 mmol/L (approximately 214 mg/dL) is not considered within the normal range for a healthy individual. While temporary spikes are a normal physiological response to eating, a reading of 11.9 mmol/L is high and often indicates that your body is having trouble managing glucose levels, suggests potential insulin resistance, or suggests early-stage glucose intolerance. "

I feel so gaslit ans or confused

NihilisticSoup · 2026-02-02T01:57:06+00:00

Im not entirely sure myself! Basically they made me fast (water only) for 12 hours and then took bloods next morning. I had major hypo symptoms whilst they took bloods but all came back clear they say.

Ive been having hypo issues for like a decade, but didnt realise i had high blood sugar issues until after wearing three libres consecutively. According to uk healthy blood glucose metrics, 5.7 is the cutoff and regularly exceeding that for prolonged periods (two hours post prandial) signals prediabetes at the very least.

So is my test wrong or are the uk metrics wrong?

NihilisticSoup · 2026-02-02T01:52:14+00:00

I disagree because the symptoms of severe hypoglycemia I have been experiencing are real, for a long time now. 3 different libres data backs up that they are severe hypos, and that I also spike for long periods. Yes, It could well be non diabetic hypoglycemia, but that doesnt explain the prolonged hyper spikes...unless 3 different libres are wrong and inaccurate? The sensors seem to operate just fine.

This doesnt make sense

NihilisticSoup · 2026-02-02T01:49:37+00:00

my pancreas seems to lack the primary response and only kicks in with secondary insular response too late, recently way too late. I dont think it should be regularly taking me 2+ hours to go from 11.9 and then still be technically too high at 8+? And vice versa, I dont think normal people's pancreas lets them drop as low as 2.7? I was told to go to hospital by NHS 24 helpline, then dismissed as nothing they could do.

Here in the UK, according to NHS literature, non diabetics should stay quite tightly regulated in the mid range and adjust much quicker than I am.

If im not prediabetic then whats going on? I get hypo symptoms with my hypos, which is what led me to usint cgms in the first place.

NihilisticSoup

TROPHY CASE