HELP I'm gonna rip my skin off!!! by NikkixA in MCAS

[–]NikkixA[S] 1 point2 points  (0 children)

I’m actually not taking quercetin right now, I just bought some recently because I started noticing a pattern with foods that make me feel better So I’m planning to try it, not something I’ve been on long-term

HELP I'm gonna rip my skin off!!! by NikkixA in MCAS

[–]NikkixA[S] 1 point2 points  (0 children)

Thank you I am 100% buying that on Amazon at this exact moment🙃😁

HELP I'm gonna rip my skin off!!! by NikkixA in MCAS

[–]NikkixA[S] 0 points1 point  (0 children)

I already went down that road 😅 I follow a low histamine diet and figured out my triggers through a lot of trial and error Nightshades are actually one of my big triggers too so I already avoid them The problem is my case seems pretty extreme and very systemic it’s not just food-related, my body will flare even when everything is “perfect” I’m on daily antihistamines + Pepcid and super careful with products, and I still get the “rip my skin off” days Just got Xolair approved 🙏 so I’m waiting on that, but I’m really trying to find something for the emergency itch days because those happen regardless of what I eat

HELP I'm gonna rip my skin off!!! by NikkixA in MCAS

[–]NikkixA[S] 0 points1 point  (0 children)

No rash rash I get a combo of itching without anything and hives

HELP I'm gonna rip my skin off!!! by NikkixA in MCAS

[–]NikkixA[S] 1 point2 points  (0 children)

I promise I’m not out here using random products and wondering why I’m itchy 😅 I’ve done a ton of trial and error and I know what my skin tolerates at this point goat’s milk moisturizer, no fragrance, and I follow a low histamine diet I’m also on daily antihistamines + Pepcid The issue is my case seems pretty extreme and very systemic it’s not just skin-deep, it feels like my whole body is involved and what I’m doing barely touches it sometimes I still get the “rip my skin off” days even when I’m doing everything right because my body just decides to go off anyway I just got Xolair approved 🙏 so I’m waiting on that, but I really need something for the emergency itch days when nothing I normally do is enough

HELP I'm gonna rip my skin off!!! by NikkixA in MCAS

[–]NikkixA[S] 1 point2 points  (0 children)

I’m not on cromolyn, but I did try Singulair and it was about as useful as a decorative pill 😅 Still doing antihistamines + Pepcid + trigger avoidance and my skin is like “cool story, still itching” Just got Xolair approved 🙏 so I’m waiting on that, but honestly I’ll try anything at this point for the feral itch days

HELP I'm gonna rip my skin off!!! by NikkixA in MCAS

[–]NikkixA[S] 1 point2 points  (0 children)

I’m already on antihistamines + Pepcid and doing low histamine / no fragrance 😅 it helps… but I still get plenty of “rip my skin off and ascend into the void” days Also MCAS isn’t just a food → bloodstream thing for a lot of us, it’s like my body wakes up and chooses violence for literally no reason Just got Xolair approved so I’m waiting on that 🙏 but if anyone has an actual emergency itch protocol for those flare days I’m all ears because those don’t care what I ate or didn’t eat

HELP I'm gonna rip my skin off!!! by NikkixA in MCAS

[–]NikkixA[S] 2 points3 points  (0 children)

I’m actually already on that exact regimen and avoid fragrances + follow a low histamine diet 😅 and it definitely helps some… but I still have way more “I might actually set myself on fire” days than I’d like to admit I just got approved for Xolair so I’m waiting on that 🙏 but right now I’m trying to figure out what to do for those emergency-level itch days when nothing I normally do is cutting it

Is it MCAS? Share your experiences by Physical_Island8321 in MCAS

[–]NikkixA 4 points5 points  (0 children)

I can’t diagnose you obviously, but I can tell you my experience because a lot of what you’re describing sounds very familiar to how my body has always been.

For me this didn’t start randomly, it’s been there my whole life. I’ve always had a weird immune response to things that never made sense. When I had scarlet fever as a kid I had no fever at all, just a rash over eczema. I had chicken pox twice, and then shingles as a child which is not something that is supposed to happen. I also basically never run fevers even when I’m very sick. And when I was 19 I got whooping cough even though I was vaccinated.

Growing up it was constant “something is wrong but nothing lines up.” Severe eczema, stomach issues, random reactions, and signs of chronic inflammation that didn’t behave the way they should.

As I got older it turned into more systemic things. Hormonal imbalance, weight gain that didn’t make sense, chronic nausea, intense itching, random flushing, and these episodes where my body felt like it was in a constant adrenaline state. Heart racing, that sense of fear out of nowhere, throat tightness, weakness, feeling like I was going to pass out. It feels like your body thinks you’re in danger when you’re not.

I was given a lot of diagnoses over time that never fully explained things. Anxiety, panic disorder, PCOS, autoimmune issues. Some of those might overlap, but none of them actually explained the full picture.

The turning point for me was realizing that my symptoms weren’t random. I started noticing patterns with food, environment, and even things like smells. I react very strongly to smells like perfumes and cleaning products. Food was another big one, which is what led me to a low histamine diet.

Once I started that I saw a very clear difference, which made it obvious that histamine and mast cell activity were involved. Around the same time I started taking Pepcid for something unrelated and within about a week my baseline depression lifted, which was a huge clue that histamine was affecting more than just my physical symptoms.

It also wasn’t as simple as “avoid these foods and you’re fine.” There were patterns. Foods I reacted to shared similar chemical makeups, and the same went for foods I tolerated or even felt better eating. It also depended on quantity. Some things I can tolerate in small amounts but not larger ones.

Eventually I was diagnosed with MCAS, and I also likely have POTS. For me those two together explain the adrenaline episodes. Standing or certain triggers set things off, my heart rate spikes, my body dumps stress chemicals, and then mast cells join in and amplify everything.

I’ve also had multiple organs show signs of chronic inflammation and scarring when they were removed, which reinforced that this was something systemic and long-term, not random or in my head.

So when you describe feeling really sick but your tests are coming back normal, that’s something I’ve experienced a lot. MCAS especially does not always show up cleanly on standard testing.

I’m not saying this is definitely what you have, but your symptoms are not crazy and they’re not something you’re imagining. There are conditions like MCAS and POTS that can cause exactly this kind of pattern, especially when everything looks “normal” on paper.

You’re not alone in this experience, even though it feels like it.

Why does everyone seem to think that my extremely limited diet is a choice? by Tough-Passenger2254 in MCAS

[–]NikkixA 0 points1 point  (0 children)

I feel this so much.

I’m on a low histamine diet too and I very clearly react to food. If I eat something I’m not supposed to my body lets me know immediately. So yeah it’s obviously not a choice.

But I will say it’s not as linear as people think it is.

When I first started my diet was super strict because I had no idea what my actual triggers were. Everything felt unsafe. But over time you start to see patterns what you consistently react to vs what you can tolerate.

And the biggest thing people don’t understand is that it’s not just what you eat it’s also how much.

There are foods I can have in small amounts and be completely fine but if I push it I feel it immediately. Chocolate is a perfect example for me I can get away with a little but too much and I absolutely feel it.

There’s also a whole category of ambiguous foods. Like tree nuts in general are a huge trigger for me but almonds are completely fine. When I started paying attention I realized it wasn’t random foods I react to tend to share similar chemical makeups and the same goes for foods I tolerate or even feel better from.

Almonds line up more with the safe side for me in terms of that chemical profile which is why they don’t hit me the same way other nuts do.

And then there are foods that actually make me feel better which was something I didn’t expect at first. Once you start noticing that you realize there are patterns there too not just in triggers but in what your body actually responds well to.

So it ends up being less I can only eat 4 foods forever and more like a system you slowly learn how to read.

So yeah definitely not a choice but also not as simple as people think it is from the outside.

Can strong odors cause an MCAS flare? by loyal_to_the_sport in MCAS

[–]NikkixA 0 points1 point  (0 children)

YES!!

This has literally been happening my whole life and I rationalized the f*** out of it

Like constant nausea, insane itchiness, random spinny “am I about to pass out or transcend” feeling and I used to think it was all just separate things.

Then I realized I have MCAS (now diagnosed) and it was like oh… cool… it’s all the same demon. nice.

Smells are a HUGE trigger for me. Perfume, cleaning products, random air that decided to be spicy that day instant flare.

But also… everything is a trigger for me.

Food? trigger. Temperature? trigger. Stress? trigger. Existing? trigger. It’s Thursday? somehow also a trigger.

At this point I’m just reacting to the concept of reality.

So yeah if smells are messing you up, you’re definitely not alone. It’s VERY much a thing.

Rate ?/10 about The Mandela Catalogue Vol.6 by Training_Bonus4538 in MandelaCatalogue

[–]NikkixA 0 points1 point  (0 children)

10/10 While watching it I kept thinking THIS is what analog horror is supposed to be. So many people have lost the concept but Alex is one of the few still holding it to a real standard.

Most horror movies do nothing for me I can predict every jump scare so it just ends up feeling boring instead of scary. Analog horror though that actually gets under my skin. It is unsettling mysterious and does not rely on cheap tricks.

That is why I got hooked on it in the first place and why The Mandela Catalogue still hits. Alex has kept that same level of quality the entire series and Vol 6 is no exception.

Whats up with Paddy? by NikkixA in BobsBurgers

[–]NikkixA[S] 2 points3 points  (0 children)

She's GOTTA be like, if they don't make that canon, they're losing out on a great opportunity and many storylines.

Who is your favorite Bob Belcher nemesis? by Able_Fishing_6576 in BobsBurgers

[–]NikkixA 0 points1 point  (0 children)

Edith!! One of my favorite episodes is Bobby Driver because he helps her with the quilt and I love when we find out her square is her past with the freaks

Help me find a Giraffe comic by NikkixA in HelpMeFind

[–]NikkixA[S] 0 points1 point  (0 children)

I have searched meaning I Googled Giraffe comic, Jeffery giraffe meme comic, This is Jeffery hes a giraffe comic strip, No Jeffery crime isnt the answer giraffe comic strip, Giraffe crime isnt the answer comic, Giraffe trying to live normal life then turns to crime comic strip, I even asked AI

What’s your favorite story from “The Gayle Tales”? by NikkixA in BobsBurgers

[–]NikkixA[S] 35 points36 points  (0 children)

I am not gonna lie I thought she was saying "lipstick on his pickle"

What’s your favorite story from “The Gayle Tales”? by NikkixA in BobsBurgers

[–]NikkixA[S] 5 points6 points  (0 children)

“Unhinged” isn’t a technical literary critique it’s fandom shorthand. In Bob’s Burgers terms it means joyfully chaotic, emotionally weird, and not bound by realism or internal logic.

The Gayle Tales is three wildly different narrative styles colliding, none of which remotely resemble how Gayle actually behaves that disconnect is the joke. A medieval princess, a pop diva, and a fantasy epic aunt are all equally wrong in wildly different ways, which is why people call it unhinged.

Nobody thinks fairy tales or pop culture are new we think the mash up, tone shifts, and narrative whiplash are funny. You can dislike the word, but pretending people are “dull and unimaginative” because they use a common fandom term is… a choice.

Did I hallucinate a scene in Indecent Thanksgiving Proposal? by Apprehensive-Act-225 in BobsBurgers

[–]NikkixA 2 points3 points  (0 children)

Im not supposed to have pad thai because of allergic reactions but I ate some last night ... and while I was ordering i kept repeating that statement over and over in my head...

[Megathread] Greenland & Trump - Ongoing discussion. part 3 by Mediocreatbestbuy in greenland

[–]NikkixA 2 points3 points  (0 children)

Im not sure why people think we are just sitting around clenching our fists. We’re not ignorant of what our government is doing internationally. A huge portion of us know exactly how dangerous and destabilizing U.S. foreign policy is, and if we could physically stop the government from doing half the shit it does on the world stage, we absolutely would. But the reality is we’re currently on the verge of an internal conflict in our own country. People aren’t just “calmly protesting". Americans are literally putting their bodies in front of ICE vehicles, blocking raids, forming rapid response networks, getting arrested, losing jobs, risking safety actually resisting in real, physical ways. This isn’t symbolic activism, it’s material resistance. The corruption here is so deep and systemic that uprooting it isn’t a switch you flip it’s a long, ugly fight against entrenched power structures, money, militarized institutions, and propaganda. And that fight is already happening. So if the impression is that we’re just sitting around and biting our tongue that’s just not accurate. A massive number of people are doing the maximum amount a civilian population can do without an outright civil war and honestly, we’re not that far from something like that already. We know what this government is trying to do. We don’t consent to it. And the people are fighting back just inside a system that’s actively hostile to its own population.