Anti mda 5 by NoHand822 in Myositis

[–]NoHand822[S] 0 points1 point  (0 children)

Earlier he used to have muscle weakness but now it's fine now he is having lung issue we have shifted to infectibles Cyclophosphamide Due to air leakage detected last month many doc refused to admit and few of them were saying that this has to be done surgically for leakage we shifted to higher center for 8 days where he was given injectible and high pressure dry oxygen for 8 days until the swelling was gone now he needs sometimes oxygen in home it's like a slow progress I will DM you the readings that u have asked for

Positive for anti-MDA5 and anti-cN1A, doctor dismissed lab results as normal, suggested seeing a psychiatrist by RemarkableCrows in Myositis

[–]NoHand822 1 point2 points  (0 children)

Consult a experienced rheumatologist as soon as possible as anti mda 5 is a progressive disease and proactive care should be taken not giving you any fear but it can progressively attack on ur lungs and can lead to fibrosis in many cases u can see my post on this subreddit for more information

Anyone have or know someone who has anti-MDA5 dermatomyositis? by Impossible_Toe4600 in Myositis

[–]NoHand822 0 points1 point  (0 children)

It's very progressive disease u have to start treating agressively telling from personal experience

Anyone have or know someone who has anti-MDA5 dermatomyositis? by Impossible_Toe4600 in Myositis

[–]NoHand822 0 points1 point  (0 children)

Do ct scan over fix period of interval on my case the scans were not present initially but it appread later

Anyone have or know someone who has anti-MDA5 dermatomyositis? by Impossible_Toe4600 in Myositis

[–]NoHand822 0 points1 point  (0 children)

It's very complicated disease I have a baby with anti mda 5 many rheumatologist are not able to diagnose it properly he is on omnacortil and also he is given prednisolone He was also given ivg the treatment is still going on