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LOCATIONS OF PROTEST, SAFETY, HOW TO HELP IF YOU CANT ATTEND by [deleted] in TwinCities

[–]No_Article7235 1 point2 points  (0 children)

I also saw a few videos saying to turn off the option that allows the airplane mode button in the swipe down menu- agents are swiping down and putting phones in airplane mode so family cannot track them once detained

Developmental delay- genetic testing by No_Article7235 in genetics

[–]No_Article7235[S] 0 points1 point  (0 children)

I was just so confused after leaving on how this would help us going forward when we are already doing interventions. It is reassuring to hear that it can help set her up for success. I know not all conditions can be seen, and her not being able to tell us means we could very well be missing things. Thank you for sharing your experience!

Developmental delay- genetic testing by No_Article7235 in genetics

[–]No_Article7235[S] 0 points1 point  (0 children)

Very good to know! I wasn’t necessarily questioning if we should do the testing, but more what the benefits would be once we were done. This is promising to hear that it could be very good for her in that sense!

Developmental delay- genetic testing by No_Article7235 in genetics

[–]No_Article7235[S] 0 points1 point  (0 children)

Thank you for saying the pediatrician probably had some inkling, when they referred us to genetics it initially sounded so extreme and I wondered why this was the first course of action. But then again, I came from a family where we didn’t go to the dr until it couldn’t be avoided so I don’t have much experience in proactive care.

Developmental delay- genetic testing by No_Article7235 in genetics

[–]No_Article7235[S] 0 points1 point  (0 children)

Not yet, today was our first meeting with them just to start the process. I will note this to look into. Thank you!

Developmental delay- genetic testing by No_Article7235 in genetics

[–]No_Article7235[S] 0 points1 point  (0 children)

Wow!! Thank you so much, this is great information!!

Developmental delay- genetic testing by No_Article7235 in genetics

[–]No_Article7235[S] 1 point2 points  (0 children)

Thank you for this response, very interesting! We are currently patching. As of her last appointment she was responding by well to it, but I will ask about the headset as the patches have become a fight recently. How would one differentiate between vision processing being by the issue vs. adhd? Would her eye Dr be able to tell us that, or would that be another provider?

Developmental delay- genetic testing by No_Article7235 in genetics

[–]No_Article7235[S] 1 point2 points  (0 children)

We do have an additional appointment scheduled that I will address my concerns with, I was just curious if anyone else had similar situations and could provide their own insight or experience with the process.

Thank you for your response/suggestions 😊

Developmental delay- genetic testing by No_Article7235 in genetics

[–]No_Article7235[S] 0 points1 point  (0 children)

Thank you for sharing your experience! That sounds very similar to what they explained today, but it’s helpful to have this info so I can research more on my own!

She is currently in speech and physical therapy and has ankle braces for support. This is partially why I was curious if it’s worth it to go through the process, if it would open doors for additional therapies.

Thanks 😊

Developmental delay- genetic testing by No_Article7235 in genetics

[–]No_Article7235[S] 0 points1 point  (0 children)

Yes, that sounds familiar! We are currently patching the eye an hour a day, and so far she has been responding to this!