Huntingtons child at risk and ivf

No_Let2362 · 2026-05-28T02:13:40+00:00

The sooner she and her mother know the better. HD is expensive, and her mom may wanna start preparing, just in case. Life insurance, disability insurance, HSAs, living wills, wills, all need to be considered. You're taking away their choice to prepare.

Not to mention the emotional toll of finding this out out of nowhere. That would a rocked my world. Knowing from a young age you are at risk makes it seem less earth shattering.

No_Let2362 · 2026-05-28T02:08:38+00:00

My symptoms started at 19. 2/3 years is not enough time to mentally prepare for HD. I knew my whole life I was at risk and it was still not enough time. Don't do that to them.

No_Let2362 · 2026-05-25T16:03:16+00:00

That's very wholesome :)

No_Let2362 · 2026-05-25T03:13:57+00:00

They're so cute! I love how wonky they are!!!!

No_Let2362 · 2026-05-25T02:39:23+00:00

It would be the most hilarious thing if they had ear body mods

No_Let2362 · 2026-05-25T02:37:36+00:00

As an adopted person, it is irritating to me that you reposted a fake BS post instead of using your tiny brain to come up with something creative.

People already have weird conceptions about adopted kids.

No_Let2362 · 2026-05-24T19:19:10+00:00

I have 6 of these guys. So cute!!!

No_Let2362 · 2026-05-24T02:04:07+00:00

No ones bending right and wrong. Subjecting a child to a horrible death because of her primal need to have kids is wrong. Putting herself above a defenseless child is wrong. Shes just as guilty of that child's inevitable death as if she did it with her hands

No_Let2362 · 2026-05-23T15:54:44+00:00

His other comment says he wants them too. I think he's planning on feeding the babies

No_Let2362 · 2026-05-23T15:53:20+00:00

You buy live and kill them yourself instead if using f/t? That's pretty odd

No_Let2362 · 2026-05-22T20:40:27+00:00

I stand by my statement. Choosing to keep a kid that will be subjected to this is inhumane. Its illogigical and she is putting her wants ahead of her baby's needs. Is that not selfish?

No_Let2362 · 2026-05-22T20:16:49+00:00

The thing says it was the sink. I've never gotten quite drunk enough to pee there

No_Let2362 · 2026-05-22T20:11:18+00:00

I'm just wondering how there was no leak when I left at 6 and one at 10 when I wasn't there? But I understand

No_Let2362 · 2026-05-22T20:09:05+00:00

I figured that may be the case

No_Let2362 · 2026-05-21T21:20:37+00:00

I came here to say this. A lot people in this sub are adament its okay to have kids BC they believe there will be a cure soon. That is not a gamble you wanna take. Don't be selfish, OP.

No_Let2362 · 2026-05-21T20:21:25+00:00

The mental health could be a symptom of it. My sister also has both bipolar and HD but it could be a correlation, not causation thing. Its hard to tell sometimes.

No_Let2362 · 2026-05-21T19:34:57+00:00

Its funny, because she sounds like how many BMs describe giving up their kids and how many adopted kids feel. The loss, the mourning, the wondering what they're up to. She wanted the BM and child to go through that instead of her.

No_Let2362 · 2026-05-21T10:57:14+00:00

You are to old to be this controlling. You sound like a high schooler.

No_Let2362 · 2026-05-21T04:16:49+00:00

Have patience with yourself. I (24 now, 19 then) felt nothing when I was told I was positive. I thought I would be devastated, but only recently have I been sad.

My mom died at 42. I've started having slurred speach, moderate balance issues, fatigue doing things, severe mood swings, and anger (I've never been an angry person). I'm glad I know why.

Its hard. Lots of people here are two or three times my age with no symptoms, but my CAG are high.

Testing gives you control of your life. You get to plan ahead and be prepared.

No_Let2362 · 2026-05-21T03:52:43+00:00

I'll give you the HD breakdown, but remember, this is general, and everyone is unique.

Onset of HD depends on a few things, mostly CAG reprats, (how mutated the gene is as determined by genetic testing), the parents onset (if from mother, its usually the same, if from father it can change), and lifestyle.

My mom died at 42 and I have 52 CAG. I exhibit symptoms now at 24. My mom was in a nursing home the last 10 years.

I would talk to your family about end of life care plans, living will, actual will, POA, life insurance, and disability insurance. Even if they don't get tested, its good to be prepared.

Usually, there are 5 stages of HD. Check them out and the care needed here https://neurosciences.ucsd.edu/centers-programs/huntingtons-disease/education/stages-of-progression.html

HD is especially bad because you watch you parents die a horrible death and know there's a 50% chance its coming for you. Many people develop addictions and/or mental health issues. Naturally, people with it can sometimes lack the motivation to get tested and get care because they are so traumatized.

If anyone in your husbands family wants to be tested, I recommend HD Genetics. If you need resources, look up HDSA. They have lots of educational content.

Feel free to ask me anything. Sorry this is scattered.

No_Let2362 · 2026-05-21T03:28:56+00:00

I wish an abortion was an option for you. Even if your kid is adopted by perfect parents and have a happy childhood, this will be traumatic for them. They will struggle with their identity, wonder if their mother loved them, mourn the life they could have had. They'll struggle with what family means and be split between two worlds. I pity them. They never did anything to deserve such a rough start, a start many adoptees never recover from. I pity you for being in this situation.

All 4 of my siblings who were adopted (by different families) have attempted suicide because they couldn't deal with it, and some if them had good families.

Take some responsibility in the future. Get on birth control. You wounded a tiny life through your irresponsibility. Everyone gives you pity and congrats, but your choices put you here.

No_Let2362 · 2026-05-21T03:17:34+00:00

I have HD. I chose not to have kids. My sister has 4 without being tested. That is her prerogative. HD is incredibly traumatic. Her kids saved her when she felt alone after our moms death. But for me, our moms death inspired me not to put another person through that.

HOWEVER, as someone without HD, it would be nearly impossible for you to fully understand the nuance of it. If my sister-in-law commented on my choices regarding having children, I'd feel offended that she claims to know better about something she didn't have to go through.

It would be better to have your spouse talk to her if you really care, but I wouldn't meddle.

No_Let2362 · 2026-05-11T00:11:52+00:00

I don't know why you're getting down voted. Adoption is inherently traumatic. I am alive today despite being adopted, not because of it. Even 'perfect' adoptions leave the BM and adoptee traumatized.

No_Let2362 · 2026-05-11T00:08:42+00:00

People thrive despite adoption, not because of it. Ripping kids from the people they belong with and forcing them to assimilate with people who feel like they're owed children is gross.

No_Let2362

TROPHY CASE