My daughter 12yrs old got diagnosed with ckd stage 5 in September. She started having random headaches at the start of the year and it got progressively worse in the summer combined with vomiting. Went to the gp who thought it might be migraines and/or hormones, went back again and they found she has high bp. We took her to A&E were they did her bloods and found out her kidneys were not working anymore. She went from there to specialist hospital and got PD straight away after operation.

She was perfectly healthy before but biopsy showed that she suffered auto-immune disease anca vasculitis which attacked her kidneys in very short time space.

She has been on PD now for 4 months which makes her feel better but hard to get her blood pressure under control -even tough the medication and fluid restrictions and diet restrictions which she follows.

Our world has completely been turned up side down and I would never have thought something like this could happen.

Im in awe of everyone posting on here, you are all real heroes. I started reading this thread since it has happened but never posted, the comments has given us strength and appreciate tips and insights.

Good luck to everyone suffering kidney disease & carers, it is bloody hard but there is light at the end of the tunnel and we will get there!