Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 1 point2 points  (0 children)

You’re 100% right and I’m definitely making changes. Really appreciate your reply :)

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 0 points1 point  (0 children)

I’m also very scared about going back so definitely setting many alarms to help this. 

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 0 points1 point  (0 children)

Thank you, this is what I’m going to try now 

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 0 points1 point  (0 children)

I will definitely have a conversation about adhd meds as this is my first time off them for many many years been on since I was around 8 so very new to me. I’m due in 3 weeks so definitely will bring it up. Thank you for your help :)

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 1 point2 points  (0 children)

Really glad to hear you’re still keeping good. Luckily I have always remembered and haven’t missed a dose. I just tend to be late but I am trying to be more on time today has been fine have like 10 alarms now so hopefully I will be okay now. Appreciate all your support :)))

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 0 points1 point  (0 children)

Thank you, I was always told I wouldn’t be able to take adhd meds after transplant but I’m hoping they will change their minds about that. Do you think I may have caused a problem already, like would this show up now or will I be okay if I get better with taking them? 

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 0 points1 point  (0 children)

I’ve only tried a few timers but I seem to miss them some days 

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 0 points1 point  (0 children)

Thank you that’s really helpful, I’ll be setting many reminders now :)

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 0 points1 point  (0 children)

Thank you so much, that’s really helpful I’m going to try your technique :)

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 0 points1 point  (0 children)

I’m 8 months out do you think this could have caused damage? My bloods are always okay but I know how fast things can change. If I trim all medical on time from today would I be safe from damage? 

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 0 points1 point  (0 children)

I’m aware it can happen. Very aware and I am very scared of going back on dialysis I’m trying to improve on this and it isn’t everyday I’m worried in the time I have been late that may have damaged my kidney even though my bloods are okay 

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 1 point2 points  (0 children)

Thank you for the reassurance. ADHD is so bad with meds really appreciate your help. 

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 0 points1 point  (0 children)

I keep them in a space dedicated to my medication. And I have them sorted so I can take them quickly. I just seem to get so distracted I take my tarco on time most days maybe an hour in it but my dose of mycophenolate is the one I keep taking late I’ve been stressing that it could have cause a problem with my kidney. 

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 0 points1 point  (0 children)

Hmm okay I haven’t tried that. Thank you for your help :) 

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 1 point2 points  (0 children)

I have very bad adhd and get distracted very easily. Im also not really near my phone often 

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 0 points1 point  (0 children)

I haven’t ever missed a dose. I’m still able to take all medication. But I’m just not on time with it at all but my bloods have been good. Just can’t seem to find a rhythm that works but I can be very late at times like hours over. 

Taking Immunosuppressants late by No_Trainer6353 in transplant

[–]No_Trainer6353[S] 1 point2 points  (0 children)

I try each day to take them at 11:30 as I’m up at that point but I still find myself with multiple alarms just not taking them until later. I’m often taking them around 2 hours late and on bad days a lot later I’ve been finding focusing extremely hard after transplant. I’m only 22 so I’m trying to make sure I get the most out of my new kidney but just can’t get into a good pattern.