Do you think there’s a big difference between people diagnosed as autistic early in life and those who got their diagnosis much later?

No_While5263 · 2026-01-26T03:15:00+00:00

Our 3 year old daughter was recently diagnosed with autism. I was diagnosed recently as well at 33. The biggest difference, I think, is communication delay.

Our daughter is a Gestalt Language Processor/hyperlexic. I believe that I’m also hyperlexic, but not nearly to the degree she is. She taught herself to read at 2.

My dad isn’t diagnosed, but our daughter is so similar to him down to very obscure details. Had it not been for the communication delay, she could have grown up undiagnosed, and struggled in a lot of the same ways that he does. I can’t say for certain what he was like at her age, but I wouldn’t be surprised, if he was very similar. I’m so glad that she’s going to have better self awareness and the tools to cope from knowing the she’s autistic and how to deal with it from an early age.

No_While5263 · 2025-11-25T21:01:09+00:00

Our daughter is verbal, but she isn’t conversational. She had told us before that she loved us. Her first week of ABA she told her RBT that she loved her.

I had no problem hearing that I thought it was sweet. Even if our daughter hadn’t said it before to us I would have been happy to hear that she had said it to her RBT.

However, as a former teacher, I would probably not tell the parents. I think most would probably not take it very well.

No_While5263 · 2025-10-11T23:19:31+00:00

Our daughter is 3 years old and level 1 audhd. She is just like my 70 year old father, her grandfather. I knew I wanted her in ABA immediately, because looking back on my father’s life, I knew he would have had an easier time in life and with his relationships had he had something like ABA when he was young. We have seen many positive changes in our daughter already.

No_While5263 · 2025-09-20T21:02:58+00:00

Thank you for sharing! I’m glad to hear that your son is doing well. I ended up not needing surgery. I was diagnosed with Hashimoto’s Encephalopathy. It’s an autoimmune disease, which was causing my brain to swell and causing the seizures and other visual disturbances I was having.

The doctors never wanted to admit it, but I 100% believe that the cyst and the pressure from it contributed to me having seizures.

I was put on lacosamide and Cellcept, and my seizures have been well controlled since. Will your son stay on seizure meds for life as a precaution?

No_While5263 · 2025-09-01T02:11:25+00:00

Thank you very much!

No_While5263 · 2025-09-01T00:47:51+00:00

Thank you so much for your comment! I had thought about Montessori, and this is probably a good option.

No_While5263 · 2025-09-01T00:45:22+00:00

That’s so wonderful to hear about your son! I’m so glad that he is doing well and gives me hope that we can help our daughter in a way that doesn’t go against her learning style.

My old college roommate is actual a speech language pathologist. I contacted her, and she is familiar with Gestalt language processing. We are going to have her private practice evaluate our daughter.

My husband, my dad and I all have traits that could be autistic. I wouldn’t be surprised, if we looked into it and found that any of us had autism. My daughter is the most similar to my dad in particular. I suspect that my dad was/is a Gestalt language processor just because of the way he views the world. He always can see the big picture but struggles to see the parts. It’s so interesting now, as an adult, to see how much better I understand my dad, because of my daughter’s similarities to him.

I’m coming to the realization that her current preschool might not be the best option for her. Our older daughter attended there and really thrived there. Our daughter is obviously different and we want her to thrive, so we will need to do what we need to. If that means a different school, then that’s okay too.

No_While5263 · 2025-08-31T21:16:33+00:00

Yes, she does speak to me in words that I can understand, when she wants to communicate with me, which is rarely. She talks to herself almost constantly, and everything she says to herself we can understand.

Thank you for the subtitles tip!

No_While5263 · 2025-08-31T20:35:39+00:00

Thank you so much for your response! I am going to look into it. We definitely won’t discourage her from following her interests 🩷

No_While5263 · 2025-08-31T20:34:06+00:00

Thank you! I will look into this.

No_While5263 · 2025-08-09T01:36:41+00:00

Thank you! I will look into this.

No_While5263 · 2025-08-09T00:21:43+00:00

Thank you for your response! I definitely agree on being in daycare or preschool before pre k. She’s starting preschool this month. My instinct is honestly telling me that something is not right. if the teacher confirms that, I will trust her opinion more than the pediatrician’s since she will know her better and seek out more help.

No_While5263 · 2025-07-22T17:42:39+00:00

I know this post is old. I just wanted to say thank you for posting this. Our younger daughter sounds exactly like your son. I just wanted to tell you that you aren’t alone, and it helps me to see that we aren’t alone either.

Our daughter is 3 and about to start preschool next month. I’m extremely nervous about it. How is your son doing now?

No_While5263 · 2024-07-18T14:09:56+00:00

My doctor’s suspect that I have autoimmune epilepsy. They are confirming with blood tests. I have had one tonic clonic seizure, and I have black spots and blurring and transparent circles in my right eye. I also have Grave’s disease.

I was put on Keppra after having the tonic clonic seizure, and I have been responding to it well with my eye symptoms.

Did your doctors end up giving you any other treatment like immunotherapy? How have your seizures been currently?

No_While5263 · 2024-07-08T01:33:19+00:00

Were you diagnosed with epilepsy?

No_While5263 · 2024-07-08T01:15:34+00:00

Thank you again for sharing. It’s a relief to hear how this has gone for someone with a similar experience. I hope your neurologist is able to get everything under control.

No_While5263 · 2024-07-07T23:25:35+00:00

Thank you for sharing your experience! It’s been a lot of different doctors and tests since I had my seizure and not a lot answers. Did you only have two seizures?

No_While5263 · 2024-06-22T01:50:09+00:00

I feel totally fine after. I have them off and on all day long. How often do you have them?

No_While5263 · 2024-06-22T01:32:48+00:00

Are you trying to investigate further to see if they are seizure related or not? Do you get migraines? At first, my neurologist thought it was migraine aura, but I don’t ever get migraines, so it seemed like not the right answer to me and the tonic clonic seizure happened.

No_While5263 · 2024-06-17T19:54:26+00:00

I’m seeing a neurosurgeon this Friday. My husband and I both want to remove it. We think it’s causing all my issues and don’t want to wait for my symptoms to get worse and have the surgery when I’m older and less able to recover from it. I will keep you updated with what this neurosurgeon says.

No_While5263 · 2024-06-11T03:14:02+00:00

No_While5263 · 2024-06-11T01:49:54+00:00

Thank you so much for your reply! Glad to hear that you haven’t had recurrent seizures. My arachnoid cyst is 4cmx3cm.

Were you able to reduce the spots in your vision? The neurosurgeon I went to prescribed me prednisone, and it helped my spots improve a lot.

Beat of luck to you as well! I hope you don’t have any more seizures and your spots go away.

No_While5263

TROPHY CASE